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USACFA blog
We feature blog posts about a variety of topics related to life with CF. If you would like to write a blog, send us an email at blogs@usacfa.org and we will get back with you as soon as possible. If you are looking for our blogs from our previous site, click here and you will be directed to the page. As always, click here to subscribe so you don't miss a publication or a blog post.
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CMTX-101: A Novel Approach To Treating Infections By Breaking Down Biofilms
Despite the overall health improvements modulator therapies have brought to the cystic fibrosis population, many with CF still rely on...
Jan 163 min read
149 views
get compensated for being part of research on bronchiectasis
M3 Global Research is looking to hear from patient advocacy group members, based in the USA, to provide their insight on the treatment...
Feb 6, 20241 min read
51 views
Mental Health Concerns in Adults with CF: Development of a Brief Mental Health Screener
The Mental Health Advisory Committee of the Cystic Fibrosis Foundation (CFF) is seeking participation from individuals with cystic...
Jan 8, 20241 min read
76 views
Abbvie Announces CF Scholarship Thriving Student Award Recipients
Two incredible students living with CF have been selected as recipients of AbbVie’s CF Scholarship Thriving Student Awards. Grace and...
Nov 8, 20231 min read
40 views
Watch The Power of two for free!
To honor the life of Isa Stenzel Byrnes & Ana Stenzel, please watch The Power of Two documentary for free. Since Isabel Stenzel Byrnes’s...
Sep 21, 20231 min read
43 views
AbbVie Calls on Public to Vote for the 2023 AbbVie Cystic Fibrosis Scholarship "Thriving Students"
Online and mobile voting is open to the public now through September 27 to help determine this year's two Thriving Students 40 students...
Sep 15, 20233 min read
36 views
USACFA mourns the loss of Kathy Russell
Kathy Russell April 17, 1944 - May 13, 2023 It is with great sadness that we share the passing of Kathy Russell at age 79. Kathy was so...
Jun 28, 20233 min read
144 views
New oral Enzyme to combat Malabsorption
Anagram Therapeutics Launches to Advance Orally Delivered Enzymes to Treat Malabsorption Syndromes and Nutrient Metabolism Disorders Dr....
Apr 7, 20234 min read
149 views
AbbVie's 30th Annual Cystic Fibrosis Scholarship “Thriving Student Awards”
Online and mobile voting is open to the public now through September 28 to help determine this year's two Thriving Scholars Forty...
Sep 16, 20223 min read
35 views
CF Doesn't Take Time Off
By Sonya Ostensen Like CF, life can be messy. While my squirrel mind was going in a million directions of commitments and items to tackle...
Jun 15, 20224 min read
130 views
AbbVie Celebrates 30th Anniversary of CF Scholarship with Opening of Application Period for Students
Student with a text book with other students on their desktop computers in the background
Apr 14, 20223 min read
52 views
Survivor's guilt, holocaust education, and CF advocacy
By: Xan Nowakowski, PhD, MPH <<< Listen to Xan Nowakowski read their blog below>>> PAVEL: Maybe your father needed to show that he was...
Feb 24, 20227 min read
171 views
Routines And Their Effect On Health And Responsibilities
By: Daniel Gonzalaz For most, our daily routine consists of work, health, daily chores, and sleep. We tend to try and set up everything...
Jan 10, 20224 min read
54 views
Blessed With A Future: Lung Transplant brings Renewed hope
By: Jennfier Cuello <<<<CHECK OUT NEW FEATURE BELOW: HEAR JENNIFER TELL HER STORY > My name is Jennifer Cuello, and I live with cystic...
Dec 19, 20214 min read
281 views
In The Spotlight with Josh Stegeman
By Andrea Eisenman and Jeanie Hanley Please welcome Josh Stegeman who lives in St. Louis, MO. He is 43 years old, has been married for 20...
Nov 28, 20216 min read
777 views
Self Advocacy: My Story of Disability Discrimination
The torso of a woman who has been fired from her job carrying a box of her belongings.
Oct 17, 20215 min read
209 views
Thank Heaven!
By Jeanie Hanley, M.D. It was an experience I had only imagined, but wondered whether my physical limitations from CF would allow me to...
Sep 7, 20213 min read
62 views
ABBVIE Scholarship Awards Voting
AbbVie Kicks Off Two-Week Public Voting Open for the 2021 AbbVie CF Scholarship Thriving Student Awards
Aug 23, 20213 min read
35 views
The Power of Restorative Yoga for Healing
By Sydna Marshall It’s no secret that my sinuses are terrible. Arguably, they should be a contender for worst CF sinuses ever. I’ve had a...
Aug 14, 20214 min read
81 views
CF in India Amidst the Worst Pandemic in a Hundred Years
When I first read that the new strain of COVID-19 was claiming upwards of 4,500 lives and over 450,000 new cases per day in India I, like mo
Jun 28, 20214 min read
61 views
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