community outreach

 

We are proud to offer programs for the cystic fibrosis community including the educational and inspirational Webcasts, Speakers Bureau, Academic Scholarships, the Founders and Jacoby Angel Awards, Clinical Trial information, and everything you need to know about Conferences and Retreats.

The CF Roundtable 2022 JEANNINE RICCI MEMORIAL WEBINAR SERIES provides the opportunity for people with CF to share important information and life experiences with the CF community. The series is named after past CF Roundtable Board member who was an advocate for access to medication and treatment for all people with CF and for mental health related treatment. The Ricci family has generously donated funds to CF Roundtable to support the webinar series. Please click here to watch the webinars.

The Board of Directors of the Adult US Cystic Fibrosis Association is proud to support a SPEAKERS BUREAU bringing the voices and personal perspectives of adults living with CF to the CF community including fundraisers, education days, conferences and other events. USACFA will cover all expenses of providing speakers for your event. To learn more about booking a speaker and to read information about each speaker and the topics they’ll present, please click here

Every two years FOUNDERS AND JACOBY ANGEL AWARDS are given to members in the CF Community. Our CF Roundtable® readers nominate individuals who make outstanding contributions to the CF Community. The USACFA Board of Directors votes on the nominees. Nominations will be accepted in the summer of 2019 with the Award Ceremony in the fall. Please click here for more information about past nominations and how to nominate someone. 

Research advancements for Cystic Fibrosis are occurring at a record pace. CLINICAL TRIALS are focused on attacking CF from many different angles such as treating the underlying cause of CF as well as treating the symptoms of CF such as infection, inflammation, and gastrointestinal complications. Click on the links below to find a clinical trial.  Your participation may not only benefit you, but the CF Community as a whole. Be sure to check both websites, as each one may be missing some participating study locations. CLICK HERE for The Cystic Fibrosis Foundation’s Clinical Trial Finder and CLICK HERE for the NIH clinical trial database.