Question 1

What is USACFA?

Accepted Answer

USACFA (pronounced – you-sak-fa) is the United States Adult Cystic Fibrosis Association, Inc. USACFA was formed to provide a source of information and education for adults who have CF – regarding the basis, nature and progression of CF, as well as the latest treatments and research to fight CF. It also assists in the psycho-social aspects of coping with CF on a day-to-day basis. Providing a network and a forum for communication among adults who have CF, their families and medical professionals, USACFA publishes CF Roundtable.

Question 2

Who runs USACFA?

Accepted Answer

USACFA is a non-profit corporation with no paid employees. It is governed by a Board of Directors, all of whom are adults who have CF and volunteer their time. It is not affiliated with any other organization.

Question 3

Where is the USACFA office?

Accepted Answer

USACFA is operated out of the homes of the Members of the Board of Directors all over the United States. We have no corporate offices.

Question 4

Where does USACFA get its money?

Accepted Answer

We no longer ask for subscription fees from our readers. However, reader donations are still an important source of income for us. We also receive grants from medical/pharmaceutical companies and foundations, but we get no funding from the Government.

Question 5

What is CF Roundtable?

Accepted Answer

CF Roundtable is a publication for adults who have CF, and it’s published four times each year. Most articles in CF Roundtable are written by adults who have CF.

Question 6

Does CF Roundtable accept advertising?

Accepted Answer

There is no advertising in CF Roundtable. However, corporations can make donations or grants to USACFA, and they will receive recognition in the publication. All donations are greatly appreciated.

Question 7

How can I get an article printed in CF Roundtable?

Accepted Answer

Send your submission by email to cfroundtable@usacfa.org. Include a title and byline. Please send two recent photographs of yourself in JPEG format.

Question 8

What is a Focus topic?

Accepted Answer

A Focus topic is the main theme for a particular CF Roundtable. Each issue has a different one. https://www.cfroundtable.com/newsletter

Question 9

Will CF Roundtable print articles written by people who do not have CF?

Accepted Answer

It is policy that articles written by adults who have CF get first printing priority. Articles by others are printed as space allows.

Question 10

How can I subscribe to CF Roundtable?

Accepted Answer

You may register to receive the publication online or via the registration form found in CF Roundtable itself.  You have the option to receive the publication electronically online, by hard copy in the mail, or both.  Once you are registered you will receive a link to access recent and past copies of CF Roundtable.

Question 11

How can I tell when it is time to renew my subscription to CF Roundtable?

Accepted Answer

There will be no renewal process.  Once a year, you will be asked to update your subscription preferences so that we may keep our files current. You can update your information (change of email or home address) at any time from any email sent from us. This option will appear on the bottom right of all correspondence. You will be able to click on the “update subscription preferences” link to do so.

Question 12

Do I have to send money with my renewal?

Accepted Answer

No.  CF Roundtable is a free publication for all who register to receive it.  However since there are numerous costs to maintain our website and print and mail the hard copies of the publication, any donation amount is greatly appreciated. Your donations enable us to maintain our high standards of production and to keep CF Roundtable free for years to come!

Question 13

Does USACFA share my name and personal information?

Accepted Answer

No, USACFA does not give, rent, or sell any information about our subscribers to anyone.

Question 14

If I make a donation to USACFA can I deduct it on my taxes?

Accepted Answer

USACFA is a 501(c)(3) non-profit, tax-exempt organization. All donations that are received are tax deductible.

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