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USACFA blog
We feature blog posts about a variety of topics related to life with CF. If you would like to write a blog, send us an email at blogs@usacfa.org and we will get back with you as soon as possible. If you are looking for our blogs from our previous site, click here and you will be directed to the page. As always, click here to subscribe so you don't miss a publication or a blog post.
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CF Doesn't Take Time Off
By Sonya Ostensen Like CF, life can be messy. While my squirrel mind was going in a million directions of commitments and items to tackle...
Jun 15, 20224 min read
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ABBVIE Scholarship Awards Voting
AbbVie Kicks Off Two-Week Public Voting Open for the 2021 AbbVie CF Scholarship Thriving Student Awards
Aug 23, 20213 min read
35 views
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How Mom Dealt with my CF Diagnosis (Part II)
Doing this interview with my mom stirred up memories that both brought out sappy tears and made us laugh. While we have had our differences,
Jun 2, 20214 min read
196 views
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Online Options Give Power To People With Disabilities
The first time I ever did school remotely was in sixth grade when I was in the hospital for two weeks due to a CF exacerbation. School had a
Jan 11, 20214 min read
161 views
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Becoming a Filmmaker with Cystic Fibrosis
Becoming a filmmaker has been a confusing journey that began with an abrupt entry into adulthood. The summer I graduated from high school an
Nov 10, 20204 min read
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Back to the Familiar Two-Step
Most people with CF know what I mean when I say that I feel like I am in a perpetual loop of one step forward, two steps back. And, sadly, i
Nov 4, 20203 min read
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Respecting Self and CF with Time Management and Healthy Boundaries
When I was asked to join the Board of USACFA earlier this year, I ardently wanted to say “yes”. But I paused first and asked questions. Sinc
Oct 26, 20204 min read
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IMAGINE IF: Being a Middle-Aged Black Male Anomaly with Cystic Fibrosis
“Imagine If” you were born a healthy-looking black baby boy who is alert, bubbly, and full of energy. A bundle of joy who is proudly held by
Jul 28, 20204 min read
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Marathon Training with CF
Next, I set larger goals for myself. I wanted to keep growing and developing this habit of exercise. I took on the challenge of running a 10
Jul 22, 20203 min read
92 views
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Join FamilyCon -The CF Virtual Event
For those of you who don’t know FamilyCon which is being held this year on Thursday,
June 18 from 7-11 PM Eastern Daylight Time and Saturday
Jun 12, 20202 min read
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Finding Comfort & Opportunity in Social Distancing
Although this period of COVID-19 has been both challenging and awkward, I have found it to be an opportunity to take a breath and enjoy what
May 18, 20204 min read
430 views
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Transplant Story: Conquering COVID-19
Nobody was allowed to be there with me due to the “no visitor” rule. In communicating with my loved ones, I had to release them from their a
Apr 29, 20204 min read
364 views
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A Triumphant Transplant Testimony
This month we’re celebrating Donate Life month by highlighting personal stories of those with transplants. One of our directors, Lara Govend
Apr 14, 20206 min read
867 views
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Fighting CF with Family and Friends
During this pandemic, many of us are experiencing a shrinking of our social support
networks so that only a handful of family, friends, and
Mar 26, 20204 min read
222 views
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CF and COVID-19 in Seattle
That clinic day, at the University of Washington Hospital & Medical Clinic, things looked different the moment I walked in. The mask & hand-
Mar 16, 20204 min read
1,090 views
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The Harvest: Transitioning to life with Trikafta
Months went by of agonizing impatience. My paperwork funneled through hundreds of bureaucracie, shuffling through the hands of one cog in th
Feb 1, 20207 min read
1,177 views
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Cf: My Current Fear
Being diagnosed with a terminal illness at 18 years old is terrifying. Two weeks ago, I turned 31 and I am having a very difficult time acce
Jan 29, 20203 min read
526 views
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CF Infertility: A Masculine Perspective
Society has placed on men the false idea that to be “perfectly masculine,” you must never show emotion under any circumstances, always be in
Jan 22, 20205 min read
625 views
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The Future of CF
No one knows what the future may hold. However, based on the progress that has been
made in the diagnosis and management of CF in the past s
Dec 27, 20194 min read
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CF rare mutations and the fear of being left behind
Not being included in the breakthrough therapies for the CF community makes me experience a lot of bittersweet emotions that are hard to exp
Dec 17, 20193 min read
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