We receive calls from people who want to know more about CF Roundtable which is produced by the US Adult Cystic Fibrosis Association (USACFA). They think we are a large organization with a paid staff. We aren’t!

Incorporated in 1990, USACFA is an independent 501(c)(3) non-profit, tax-exempt organization which is operated entirely by adult volunteers who have cystic fibrosis (CF). USACFA is not affiliated with other CF organizations.

The purpose of CF Roundtable is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it.  It also offers a forum for CF adults to communicate with each other.

You can read excerpts from previous issues of the newsletter, covering such diverse topics as dating, organ transplants, and working and living with CF. Or check out the latest news involving the disease. Our many columnists provide insights on a wide variety of subjects related to CF.

Our readers deserve the best possible publication, and we’re working hard to provide that. A Focus topic for each issue is selected to appeal to a broad base of people with CF, and we’re always interested in new ideas or topics. Submit an article to us by clicking HERE

All of our Board Members are 100% volunteer and they all have Cystic Fibrosis.

Click a picture to read a bio.

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Beth Sufian

President

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Amy Gutierrez

Vice President

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Sydna Marshall

Secretary 

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Jeanie Hanley

Treasurer

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Andrea Eisenman

Executive Editor

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Ella Balasa

Director 

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Lara Govendo

Director 

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Grace Knight

Director 

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Sonya Ostensen

Director 

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Mark Tremblay

Director

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Devin Wakefield

Director 

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*The CF Roundtable does not give medical advice. Any medical opinions represented in these articles are those of the writer and do not represent the views of USACFA, any of our community partners, or any other group or individual. We strongly suggest you consult your doctors regarding any medical references and before altering your medical regimen in any way. USACFA does not endorse any products or procedures. 

Registered Charity Number : EIN # 93-1036770

© United States Adult Cystic Fibrosis Association 2019

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