speakers bureau

The Board of Directors of the Adult US Cystic Fibrosis Association is proud to support a Speakers Bureau, bringing the voices and personal perspectives of adults living with CF to the CF community including fundraisers, education days, conferences and other events. Information about each speaker and the topics they’ll present is provided in the Summary List below with more detailed information further on. We look forward to finding a speaker for your event. Please fill out the form below and someone will contact you regarding your event.

our speakers & 
their topics 

Branding

Consulting

CF Roundtable Secretary
Ella Balasa

                                                                                             

  • Traveling with CF – Self-Advocacy for CF

  • Mental Health and Well-being with CF – Challenges of living with CF

  • Living a Happy and Fulfilled Life with CF

  • Importance of Support of Family and Friends for Persons with CF

  • Relationship with Doctors and CF Facility

  • Choosing a Career with CF 
     

  • Patient Advocacy 

  • Research

  • Clinical Trials

  • Success and CF 

  • Healthcare and CF

  • Balancing Work, Life, and CF

CF Roundtable Director
Lara Govendo, MSEd.

• Living with CF

• All things Mental Health, Advocacy (self and others)

• Education

• Transplant

• Organ Donation
• Relationships with Doctors and CF facilities

• Exercise

• Challenges of CF

• Traveling with CF

• Living a Happy and Fulfilled Life with CF

• The Importance of Support People

• Care Coordination

Vice President of CF Roundtable
Amy Gutierrez, MBA
  • Living with CF

  • Mental Health

  • Challenges with CF

  • Travel with CF

  • Family and CF

  • Success and CF

  • Patient advocacy

  • Education

  • Choosing careers

  • Balancing school, work and CF

  • Employment and CF

  • Healthcare and CF

  • Relationships with doctors and care facilities

  • Sexual and reproductive health and CF

  • Exercise

  • Research

  • Social Security and CF

Former CF Roundtable Director
Tré LaRosa

• Living with CF

• Mental Health

  • Balancing School, Work and CF

  • Traveling with CF

  • Family & CF

  • Success & CF

  • Sexuality & CF

  • Organ Donation

• Healthcare & CF

  • Research

  • Relationships with Doctors & CF Facilites

  • Exercise

  • Clinical Trials

  • Choosing Careers

  • Patient Advocacy

  • Transplantation

CF Roundtable Volunteer
Laura Mentch, Ed.M.

  • Adult Diagnosis of CF – Sexual Health and CF

  • Talking with Children about Sexuality

CF Roundtable Director
Xan Nowakowski, Ph.D, M.P.H.
  • Living with CF

  • Mental Health

  • Challenges of CF

  • Success & CF

  • Sexuality & CF

  • Patient Advocacy

  • Education

  • Choosing Careers

  • Balancing school, work & CF

  • Employment & CF

  • Healthcare & CF

  • Relationships with doctors & care facilities

  • Sexual & Reproductive Health & CF

  • Research

  • Late Diagnosis

  • Scientific discussions on CF mechanism of disease and CFTR modulators mechanism of action

Social Worker
Isabel Stenzel Byrnes, LCSW, MPH

  • Living with CF – Mental Health

  • Challenges of CF – Traveling with CF

  • Family and CF – Success and CF

  • Sexuality and CF – Patient Advocacy

  • Education and CF – Choosing Careers

  • Balancing School, Work and CF – Employment and CF

  • Health Care and CF – Relationships

  • Transplant and Organ Donation – Exercise and CF

  • Relationships with Doctors and Care Facilities

CF Roundtable Director
Mark Tremblay

  • Living with CF

  • Mental Health

  • Balancing School, Work and CF

  • Traveling with CF

  • Family & CF

  • Success & CF

  • Sexuality & CF

  • Healthcare & CF

  • Research

  • Relationships with Doctors & CF Faciilites

  • Exercise

  • Clinical Trials

  • Choosing Careers

  • Patient Advocacy

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