CF Roundtable Secretary

Ella Balasa

• Traveling with CF – Self-Advocacy for CF

• Mental Health and Well-being with CF – Challenges of living with CF

• Living a Happy and Fulfilled Life with CF

• Importance of Support of Family and Friends for Persons with CF

• Relationship with Doctors and CF Facility

• Choosing a Career with CF 
   

• Patient Advocacy 

• Research

• Clinical Trials

• Success and CF 

• Healthcare and CF

• Balancing Work, Life, and CF

CF Roundtable Director

Lara Govendo, MSEd.

• Living with CF

• All things Mental Health, Advocacy (self and others)

• Education

• Transplant

• Organ Donation
• Relationships with Doctors and CF facilities

• Exercise

• Challenges of CF

• Traveling with CF

• Living a Happy and Fulfilled Life with CF

• The Importance of Support People

• Care Coordination

Vice President of CF Roundtable

Amy Gutierrez, MBA

• Living with CF

• Mental Health

• Challenges with CF

• Travel with CF

• Family and CF

• Success and CF

• Patient advocacy

• Education

• Choosing careers

• Balancing school, work and CF

• Employment and CF

• Healthcare and CF

• Relationships with doctors and care facilities

• Sexual and reproductive health and CF

• Exercise

• Research

• Social Security and CF

Former CF Roundtable Director

Tré LaRosa

• Living with CF

• Mental Health

• Balancing School, Work and CF

• Traveling with CF

• Family & CF

• Success & CF

• Sexuality & CF

• Organ Donation

• Healthcare & CF

• Research

• Relationships with Doctors & CF Facilites

• Exercise

• Clinical Trials

• Choosing Careers

• Patient Advocacy

• Transplantation

CF Roundtable Volunteer

Laura Mentch, Ed.M.

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• Adult Diagnosis of CF – Sexual Health and CF

• Talking with Children about Sexuality

CF Roundtable Director

Xan Nowakowski, Ph.D, M.P.H.

• Living with CF

• Mental Health

• Challenges of CF

• Success & CF

• Sexuality & CF

• Patient Advocacy

• Education

• Choosing Careers

• Balancing school, work & CF

• Employment & CF

• Healthcare & CF

• Relationships with doctors & care facilities

• Sexual & Reproductive Health & CF

• Research

• Late Diagnosis

• Scientific discussions on CF mechanism of disease and CFTR modulators mechanism of action

Social Worker

Isabel Stenzel Byrnes, LCSW, MPH

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• Living with CF – Mental Health

• Challenges of CF – Traveling with CF

• Family and CF – Success and CF

• Sexuality and CF – Patient Advocacy

• Education and CF – Choosing Careers

• Balancing School, Work and CF – Employment and CF

• Health Care and CF – Relationships

• Transplant and Organ Donation – Exercise and CF

• Relationships with Doctors and Care Facilities

CF Roundtable Director

Mark Tremblay

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• Living with CF

• Mental Health

• Balancing School, Work and CF

• Traveling with CF

• Family & CF

• Success & CF

• Sexuality & CF

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• Healthcare & CF

• Research

• Relationships with Doctors & CF Faciilites

• Exercise

• Clinical Trials

• Choosing Careers

• Patient Advocacy