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USACFA blog
We feature blog posts about a variety of topics related to life with CF. If you would like to write a blog, send us an email at blogs@usacfa.org and we will get back with you as soon as possible. If you are looking for our blogs from our previous site, click here and you will be directed to the page. As always, click here to subscribe so you don't miss a publication or a blog post.
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CF Infertility: A Masculine Perspective
Society has placed on men the false idea that to be “perfectly masculine,” you must never show emotion under any circumstances, always be in
Jan 22, 20205 min read
625 views
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Patient Privacy – Zip It
When I was in medical school in the 1980s, it became clear that there was a lack of patient privacy. There was no industry-wide standard for
Jan 11, 20203 min read
48 views
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The Future of CF
No one knows what the future may hold. However, based on the progress that has been
made in the diagnosis and management of CF in the past s
Dec 27, 20194 min read
75 views
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CF rare mutations and the fear of being left behind
Not being included in the breakthrough therapies for the CF community makes me experience a lot of bittersweet emotions that are hard to exp
Dec 17, 20193 min read
711 views
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If Canada refuses to cover CFTR Modulators, Their Standard of Care will Suffer
Canadian cystic fibrosis (CF) care has long been a worldwide standard in the fight against the fatal illness. The effects of the disease...
Dec 10, 20195 min read
382 views
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The Family that ER's Together
I’m a frequent flyer at the ER. I joke that the family who ER’s together stays together. I’ve been there for allergic hives and rashes, infe
Dec 2, 20193 min read
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Recognizing the Ego that Comes with Having CF
The number of times I’ve been referred to as “strong," “a warrior," “an inspiration,” and “wise beyond my years” left me with a CF-related b
Nov 15, 20193 min read
111 views
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Research Corner: You Can Help Shape Airways Clearance Technique Education
Airway clearance is a vital daily aspect of maintaining lung function and stability in those of us with cystic fibrosis. Here in the United
Nov 12, 20192 min read
71 views
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Why you Should Join the CF Transplant MiniCon
Let’s face it, if you have CF, love someone with CF, or have a family member with CF, transplant is looming somewhere out there in the futur
Nov 4, 20193 min read
59 views
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Why Won't God Heal Me?
This was a question I found myself asking during my junior year of college at UC San Diego. Me and a group of my friends from the college Ch
Oct 28, 20196 min read
286 views
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High School Cross-Country Taught Me How To Handle Adversity
I was a nervous wreck for my first cross country meet. I was wondering what the heck I got myself into. I loved running. I loved running mos
Oct 24, 20193 min read
172 views
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FDA approves new breakthrough therapy for cystic fibrosis
FDA News Release Treatment approved for approximately 90% of patients with cystic fibrosis, many of whom had no approved therapeutic...
Oct 21, 20194 min read
115 views
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I have CF and Maybe Want kids, but is my husband a carrier?
When my husband and I got married 2 years ago, we both weren’t sure if we wanted kids. We were both 36 at the time, never married before, an
Oct 18, 20194 min read
925 views
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Life on a Tightrope
And while I dance on that tightrope between being sick enough to get listed for a lung transplant and still well enough to hopefully try the
Oct 13, 20193 min read
204 views
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The Challenges and Successes of Getting Through College with a Chronic Illness
By: Sarah Salas “Have you started your college applications yet?” asked my high school counselor as I stared back with wide eyes. To be...
Oct 11, 20196 min read
380 views
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Both Sides of the Fence
I am in somewhat of a unique position, having been on both sides of that fence, first as a patient, and later as a physician. Perhaps that p
Oct 7, 20194 min read
105 views
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Sometimes I Feel Like A Cyborg
By Andrea Eisenman Better living through chemistry and technology. But if you had asked me about six years ago, I told my endocrinologist...
Oct 4, 20194 min read
81 views
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Commitment to A Fitness Lifestyle Changed My CF Prognosis
Regardless of your “why?”, get out there and workout. Start with resistance bands if you have to, but don’t quit, and I promise you, you’ll
Oct 1, 20194 min read
273 views
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Research Corner: Clinical Trial Participation Opportunities for Inhaled Nitric Oxide
To face the unmet medical need of clearing lung infections in CF, the proposed gaseous nitric oxide, Thiolanox® inhalation therapy has been
Sep 23, 20195 min read
481 views
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We must all learn to tell our story
Everybody should tell their story. We can learn by writing and reflecting and reading.
Sep 20, 20194 min read
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