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USACFA blog
We feature blog posts about a variety of topics related to life with CF. If you would like to write a blog, send us an email at blogs@usacfa.org and we will get back with you as soon as possible. If you are looking for our blogs from our previous site, click here and you will be directed to the page. As always, click here to subscribe so you don't miss a publication or a blog post.
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The Family that ER's Together
I’m a frequent flyer at the ER. I joke that the family who ER’s together stays together. I’ve been there for allergic hives and rashes, infe
Dec 2, 20193 min read
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Why you Should Join the CF Transplant MiniCon
Let’s face it, if you have CF, love someone with CF, or have a family member with CF, transplant is looming somewhere out there in the futur
Nov 4, 20193 min read
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Why Won't God Heal Me?
This was a question I found myself asking during my junior year of college at UC San Diego. Me and a group of my friends from the college Ch
Oct 28, 20196 min read
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Life on a Tightrope
And while I dance on that tightrope between being sick enough to get listed for a lung transplant and still well enough to hopefully try the
Oct 13, 20193 min read
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Commitment to A Fitness Lifestyle Changed My CF Prognosis
Regardless of your “why?”, get out there and workout. Start with resistance bands if you have to, but don’t quit, and I promise you, you’ll
Oct 1, 20194 min read
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We must all learn to tell our story
Everybody should tell their story. We can learn by writing and reflecting and reading.
Sep 20, 20194 min read
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Chance or Destiny: A CF Story
I don’t think there is a word strong enough to describe what we became to each other. Our stories before we met each other were heartbreakin
Sep 17, 20196 min read
1,377 views
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Learning to Manage CF Responsibilities When Going Away to College
Balancing work and school is never easy, but adding a chronic illness like cystic fibrosis and you have a whole new set of challenges. Trans
Sep 12, 20193 min read
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My IV Antibiotic Life Hack Story
Before I started my trip back home, I set up the IV pole in the car, next to me, I could not get the pole high enough to enact the gravity n
Sep 8, 20193 min read
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My Journey as a Diabetes Educator in the CF Community
I spent the first few months in a constant state of worry over everything, I knew enough to be scared, but not enough to be in control. I ha
Sep 4, 20195 min read
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How CF Has Shaped My Motherhood Experience
“Mom, I think you’ll have to go into the hospital after your trip this fall.” I glanced over at my 10-year-old who was casually eating Frenc
Aug 29, 20194 min read
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Join BreatheCon - The CF Virtual Event
“The best part of all of these virtual events for me though is the face to face that I get to have. CF usually feels so isolating to me and
Aug 22, 20193 min read
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Choosing Positivity
When I was younger I vividly remember my mom always telling me I had a choice. No matter what it was in life, ultimately the choice was mine
Aug 19, 20193 min read
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