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USACFA blog
We feature blog posts about a variety of topics related to life with CF. If you would like to write a blog, send us an email at blogs@usacfa.org and we will get back with you as soon as possible. If you are looking for our blogs from our previous site, click here and you will be directed to the page. As always, click here to subscribe so you don't miss a publication or a blog post.
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Mental Health Concerns in Adults with CF: Development of a Brief Mental Health Screener
The Mental Health Advisory Committee of the Cystic Fibrosis Foundation (CFF) is seeking participation from individuals with cystic...
Jan 8, 20241 min read
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CF Doesn't Take Time Off
By Sonya Ostensen Like CF, life can be messy. While my squirrel mind was going in a million directions of commitments and items to tackle...
Jun 15, 20224 min read
130 views
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Fighting CF In Sub-Saharan Africa
By: Mark Tremblay As someone diagnosed with CF 50 years ago when patients slept in mist tents and weren’t expected to live to the age of...
Mar 24, 20215 min read
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Respecting Self and CF with Time Management and Healthy Boundaries
When I was asked to join the Board of USACFA earlier this year, I ardently wanted to say “yes”. But I paused first and asked questions. Sinc
Oct 26, 20204 min read
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Finding Comfort & Opportunity in Social Distancing
Although this period of COVID-19 has been both challenging and awkward, I have found it to be an opportunity to take a breath and enjoy what
May 18, 20204 min read
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Fighting CF with Family and Friends
During this pandemic, many of us are experiencing a shrinking of our social support
networks so that only a handful of family, friends, and
Mar 26, 20204 min read
222 views
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Cf: My Current Fear
Being diagnosed with a terminal illness at 18 years old is terrifying. Two weeks ago, I turned 31 and I am having a very difficult time acce
Jan 29, 20203 min read
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CF Infertility: A Masculine Perspective
Society has placed on men the false idea that to be “perfectly masculine,” you must never show emotion under any circumstances, always be in
Jan 22, 20205 min read
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Why you Should Join the CF Transplant MiniCon
Let’s face it, if you have CF, love someone with CF, or have a family member with CF, transplant is looming somewhere out there in the futur
Nov 4, 20193 min read
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We must all learn to tell our story
Everybody should tell their story. We can learn by writing and reflecting and reading.
Sep 20, 20194 min read
145 views
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Out of the CF Closet
So I began to be more open and honest about my illness as I met and interacted with new people. I was amazed that these people did not shrin
Sep 2, 20194 min read
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Losing Control: A CF Patient’s Journey Through Mental Health
Normally we, as CF patients, are used to feeling like we’ve lost control because our bodies aren’t physically doing what we want them to do.
Aug 13, 20196 min read
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