Research

cf roundtable blog

Thanks for stopping by the new CF Roundtable blog! We are excited to feature blog posts about research and science, food + nutrition, mental health, businesses run by people with CF, fitness + exercise, personal stories from the community, travel tips and tricks, and much, much more. If you have a great idea for a blog, click the link below and fill out the form and our blog manager will get back with you as soon as possible. If you are looking for our blogs from our previous site, click the link below and you will be directed to the page. As always, CLICK HERE to subscribe so you don't miss a newsletter or a blog post!

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Apr 14, 2022
3 min

AbbVie Celebrates 30th Anniversary of CF Scholarship with Opening of Application Period for Students

Student with a text book with other students on their desktop computers in the background

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Aug 23, 2021
3 min

ABBVIE Scholarship Awards Voting

AbbVie Kicks Off Two-Week Public Voting Open for the 2021 AbbVie CF Scholarship Thriving Student Awards

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Jun 1, 2021
3 min

Research corner:Cystic Fibrosis Phage Therapy Study at Yale

Phages are specialized viruses that kill specific bacterial strains. They are found abundantly in the environment and are the natural predat

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Apr 7, 2021
3 min

Research Corner: Alcresta’s RELiZORB is the only FDA approved enteral feeding EnZyme

How does RELiZORB work? Inside the cartridge is a digestive enzyme called lipase, which is attached to the small white beads that you can s

623 views0 comments

Mar 11, 2021
4 min

Research Corner: Encala™ - A new medical food for treating malabsorption

There is a new product called Encala, created by Envara Health, which is the first medical food formulated specifically to help people with

755 views0 comments

Jan 25, 2021
5 min

A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)

By Ella Balasa Many in the CF community have experienced weight gain to some degree since starting modulator therapies in the last few...

1,359 views0 comments

Nov 18, 2020
3 min

New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection

Lung transplantation brings much hope to individuals battling severe lung disease with cystic fibrosis. However, long term prognosis is vari

309 views0 comments

Nov 1, 2020
4 min

Getting a second opinion for your CF care

One of the great benefits of working in biotech was seeing firsthand how differently physicians can treat the same disease. Most Americans a

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Oct 20, 2020
4 min

Research Corner: Zero Percent Left Behind – Eloxx Pharmaceuticals Nonsense Target Therapy

The treatment advances for our community in just these short few years have been phenomenal. But sadly, as we know, not all of us have been

159 views0 comments

Jul 13, 2020
4 min

A Glimpse Inside Our World: Striking Parallels between Life with CF and COVID-19

By: Emily Kramer-Golinkoff In March, as COVID-19 was ravaging our world, I could not help but be struck by some of the parallels between...

441 views0 comments

Mar 13, 2020
9 min

Q&A: COVID-19 and a quarantined CF patient in Italy

Despite the news speaking of quarantine, it’s not exactly that. It’s more akin to an economic and social lockdown. People can still leave th

9,099 views0 comments

Feb 27, 2020
4 min

No One Should Be Left Behind

Back in 2011, the collision of hope and desperation led my family, friends and I to start Emily’s Entourage (EE). We saw life-changing advan

415 views0 comments

Feb 18, 2020
3 min

Research Corner: Translate Bio Recruiting Class 1 and Nonsense Mutation Patients

for those who have two nonsense or class I mutations, and no current modulator options, the feeling of being left behind is unmistakable

282 views0 comments

Dec 27, 2019
4 min

The Future of CF

No one knows what the future may hold. However, based on the progress that has been made in the diagnosis and management of CF in the past s

73 views0 comments

Dec 17, 2019
3 min

CF rare mutations and the fear of being left behind

Not being included in the breakthrough therapies for the CF community makes me experience a lot of bittersweet emotions that are hard to exp

700 views0 comments

Nov 12, 2019
2 min

Research Corner: You Can Help Shape Airways Clearance Technique Education

Airway clearance is a vital daily aspect of maintaining lung function and stability in those of us with cystic fibrosis. Here in the United

69 views0 comments

Nov 4, 2019
3 min

Why you Should Join the CF Transplant MiniCon

Let’s face it, if you have CF, love someone with CF, or have a family member with CF, transplant is looming somewhere out there in the futur

59 views0 comments

Oct 21, 2019
4 min

FDA approves new breakthrough therapy for cystic fibrosis

FDA News Release Treatment approved for approximately 90% of patients with cystic fibrosis, many of whom had no approved therapeutic...

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Sep 23, 2019
5 min

Research Corner: Clinical Trial Participation Opportunities for Inhaled Nitric Oxide

To face the unmet medical need of clearing lung infections in CF, the proposed gaseous nitric oxide, Thiolanox® inhalation therapy has been

475 views0 comments

Aug 26, 2019
5 min

Research Corner: MRT5005 – A Novel Therapy for Treating CF

“By addressing the central step in the production of proteins, our MRT product candidates are designed to give the body the instructions to

630 views0 comments

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