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USACFA blog
We feature blog posts about a variety of topics related to life with CF. If you would like to write a blog, send us an email at blogs@usacfa.org and we will get back with you as soon as possible. If you are looking for our blogs from our previous site, click here and you will be directed to the page. As always, click here to subscribe so you don't miss a publication or a blog post.
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CMTX-101: A Novel Approach To Treating Infections By Breaking Down Biofilms
Despite the overall health improvements modulator therapies have brought to the cystic fibrosis population, many with CF still rely on...
Jan 163 min read
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get compensated for being part of research on bronchiectasis
M3 Global Research is looking to hear from patient advocacy group members, based in the USA, to provide their insight on the treatment...
Feb 6, 20241 min read
48 views
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AbbVie Celebrates 30th Anniversary of CF Scholarship with Opening of Application Period for Students
Student with a text book with other students on their desktop computers in the background
Apr 14, 20223 min read
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ABBVIE Scholarship Awards Voting
AbbVie Kicks Off Two-Week Public Voting Open for the 2021 AbbVie CF Scholarship Thriving Student Awards
Aug 23, 20213 min read
35 views
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Research corner:Cystic Fibrosis Phage Therapy Study at Yale
Phages are specialized viruses that kill specific bacterial strains. They are found abundantly in the environment and are the natural predat
Jun 1, 20213 min read
310 views
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Research Corner: Alcresta’s RELiZORB is the only FDA approved enteral feeding EnZyme
How does RELiZORB work?
Inside the cartridge is a digestive enzyme called lipase, which is attached to the small white beads that you can s
Apr 7, 20213 min read
1,057 views
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Research Corner: Encalaâ„¢ - A new medical food for treating malabsorption
There is a new product called Encala, created by Envara Health, which is the first medical food formulated specifically to help people with
Mar 11, 20214 min read
1,241 views
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A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)
By Ella Balasa Many in the CF community have experienced weight gain to some degree since starting modulator therapies in the last few...
Jan 25, 20215 min read
1,881 views
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New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection
Lung transplantation brings much hope to individuals battling severe lung disease with cystic fibrosis. However, long term prognosis is vari
Nov 18, 20203 min read
323 views
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Getting a second opinion for your CF care
One of the great benefits of working in biotech was seeing firsthand how differently physicians can treat the same disease. Most Americans a
Nov 1, 20204 min read
131 views
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Research Corner: Zero Percent Left Behind – Eloxx Pharmaceuticals Nonsense Target Therapy
The treatment advances for our community in just these short few years have been phenomenal. But sadly, as we know, not all of us have been
Oct 20, 20204 min read
162 views
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A Glimpse Inside Our World: Striking Parallels between Life with CF and COVID-19
By: Emily Kramer-Golinkoff In March, as COVID-19 was ravaging our world, I could not help but be struck by some of the parallels between...
Jul 13, 20204 min read
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Q&A: COVID-19 and a quarantined CF patient in Italy
Despite the news speaking of quarantine, it’s not exactly that. It’s more akin to an economic and social lockdown. People can still leave th
Mar 13, 20209 min read
9,109 views
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No One Should Be Left Behind
Back in 2011, the collision of hope and desperation led my family, friends and I to start Emily’s Entourage (EE). We saw life-changing advan
Feb 27, 20204 min read
424 views
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Research Corner: Translate Bio Recruiting Class 1 and Nonsense Mutation Patients
for those who have two nonsense or class I mutations, and no current modulator options, the feeling of being left behind is unmistakable
Feb 18, 20203 min read
299 views
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The Future of CF
No one knows what the future may hold. However, based on the progress that has been
made in the diagnosis and management of CF in the past s
Dec 27, 20194 min read
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CF rare mutations and the fear of being left behind
Not being included in the breakthrough therapies for the CF community makes me experience a lot of bittersweet emotions that are hard to exp
Dec 17, 20193 min read
711 views
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Research Corner: You Can Help Shape Airways Clearance Technique Education
Airway clearance is a vital daily aspect of maintaining lung function and stability in those of us with cystic fibrosis. Here in the United
Nov 12, 20192 min read
71 views
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Why you Should Join the CF Transplant MiniCon
Let’s face it, if you have CF, love someone with CF, or have a family member with CF, transplant is looming somewhere out there in the futur
Nov 4, 20193 min read
59 views
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FDA approves new breakthrough therapy for cystic fibrosis
FDA News Release Treatment approved for approximately 90% of patients with cystic fibrosis, many of whom had no approved therapeutic...
Oct 21, 20194 min read
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