Hi! My name is Rachel Steinman, I’m 31 years old, and I’m super excited to be a member of the USACFA board.
I was diagnosed with CF at the age of 16 and have been very fortunate to have had fairly stable health throughout my life thus far.
No matter one’s level of health, USACFA is an important outlet for our community. CF is a complicated disease and it effects every patient in a unique way. For me, having an online community has helped me both learn more about my disease and feel less isolated in the process.
I graduated from the University of Miami with degrees in Journalism and Sociology in 2009 and I spent a year volunteering with Americorps shortly after. A few years into my career I decided to quit my job and move to Tel Aviv, Israel, for a change of lifestyle and a marketing position with a tech company. I moved back home to NY after a year to be close to my family.
I grew up on Long Island and currently reside in NYC with my boyfriend where I continue to work in digital marketing. I enjoy cooking, traveling with my boyfriend and spending time with friends and family.
I believe I’ve been able to maintain good health with the help of amazing doctors, a positive attitude, lots of acupuncture and cupping therapy and a very loving, supportive family.