Grace Knight

director

I am so excited to join the USACFA board this year! For the past few years I have enjoyed reading CF Roundtable and am a recipient of the Lauren Melissa Kelley (LMK) scholarship. I am 22 years old and have recently earned a B.A. with distinction in English from the University of Pennsylvania. In the fall, I will be attending University of Texas School of Law in Austin, TX. I spent many months in college fighting non‑tuberculosis mycobacteria (NTM) and am grateful to have made it to the other side. I am currently on Trikafta and am constantly amazed at the improvement I have seen in my health while on the drug. It has opened the door to a brighter future for CF patients.

I was diagnosed with CF when I was one and a half years old. At that time there was very little knowledge about CF in my hometown of Tyler, TX and we did not even have a local CFF chapter. My family and I have worked hard to create awareness of the disease in Tyler and are proud to now have multiple local fundraising events throughout the year associated with the CFF. I have two younger twin brothers, both of whom are CF carriers only. After my diagnosis my mom did invitro with genetic testing to get pregnant with them.

While at Penn I took many classes on creative writing and am really excited to be able to use that knowledge to help keep the CF community informed. In my final year of college, I completed an honors thesis which focused on telling the stories of CF patients. It was through that project that I learned of the wisdom and strength present within our community. I am constantly inspired by this community and am honored to fight this disease with you.

Connect with us
Connect with us
subscribe!

Please CLICK HERE to 

subscribe to our newsletter! 

*The CF Roundtable does not give medical advice. Any medical opinions represented in these articles are those of the writer and do not represent the views of USACFA, any of our community partners, or any other group or individual. We strongly suggest you consult your doctors regarding any medical references and before altering your medical regimen in any way. USACFA does not endorse any products or procedures. 

Registered Charity Number : EIN # 93-1036770

© United States Adult Cystic Fibrosis Association 2019

  • Black Facebook Icon
  • Black Twitter Icon
  • Black Instagram Icon
  • LinkedIn - Black Circle
  • Black Facebook Icon