jeannine ricci

director

Hello. My name is Jeannine Ricci. I’m 45 years old and was diagnosed with CF at the age of 7. My exposure to the medical field during my childhood inspired me to pursue a career in nursing. I landed my dream job and worked on the pediatric oncology unit at The Children’s Hospital of Philadelphia for seven years. The lessons I learned while helping these courageous children and their families battle cancer were invaluable and I carry them with me throughout my life. With the birth of my first daughter, I decided to stop working and focus all of my energy on motherhood and staying as healthy as possible. I’m savoring every moment with my two girls, ages 13 and 15.


I did eventually return to the field of nursing, but on a part-time basis and currently work per diem as a school nurse. I’ve been involved with the Cystic Fibrosis Foundation (CFF) for about 20 years as a Great Strides team leader. Our team has raised over $100,000 through the years. I’m currently working with the CFF by sharing my experiences and ideas in an effort to raise awareness of clinical trials. I’m a strong supporter of the concept of participatory medicine and believe that patients should be viewed as equal partners in their healthcare.


Education, connection and communication are key components to helping patients feel empowered to advocate for themselves and CF Roundtable is the perfect tool toward this goal. I remember receiving my first CF Roundtable newsletter about 15 years ago. I read it cover to cover and then over again, not realizing until that moment just how much I craved connection with others with CF. I’ve learned so much from CF Roundtable over the years and am excited to now be able to give back and share some of my knowledge and experiences.


On a more personal note, I live in New Jersey with my husband and two daughters. I love being outdoors enjoying nature, whether it be hiking in a national park or walking my dog, Buddy, at our neighborhood park. I enjoy traveling, photography and spending time with friends and family. I look forward being a part of this wonderful organization.

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*The CF Roundtable does not give medical advice. Any medical opinions represented in these articles are those of the writer and do not represent the views of USACFA, any of our community partners, or any other group or individual. We strongly suggest you consult your doctors regarding any medical references and before altering your medical regimen in any way. USACFA does not endorse any products or procedures. 

Registered Charity Number : EIN # 93-1036770

© United States Adult Cystic Fibrosis Association 2019

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