CF and Menopause—I have questions…

By Georgia Brown

As a woman with Cystic Fibrosis, at 47, I am considered old—but it is a title I relish.  It means I have weathered the CF storm and I look at each birthday as an accomplishment.  But as I enter the next phase of my life, I find I have more questions than answers.

While I don’t fear menopause necessarily, I do fear embarking on this life changing phase without understanding how CF puts its unique twist on it.  And that is why I am glad that I have found the Cystic Fibrosis Reproductive and Sexual Health Collaborative (CFReSHC).  Each month the group meets to discuss issues specific to women with CF.  Then CFReSHC uses the feedback from meeting participants to help shape future CF research.  This is one way, we, as patients, pave the way for improved sexual and reproductive healthcare.  

The next virtual meeting “Hormones Across the Lifespan” will be Thursday, February 22, 2018 from 11 am to 1:00 pm EST.  Dr. Raksha Jain of the University of Texas Southwestern will discuss how hormones affect women with CF from puberty to menopause.  Then, the CF women in attendance, will break into smaller groups to discuss personal stories and identify the top three hormone-related topics that need further research.  The meeting is open to all women with CF in the United States.  For more information on CFReSHC and for login information from your laptop, or mobile device, email CFReSHC at Women who attend receive a $25 gift card from Amazon.  

2 thoughts on “CF and Menopause—I have questions…”

  1. Thanks for sharing this! I am also part of this group and have found it helpful. I also feel good knowing I am contributing to research discussions so that women with CF will hopefully have more of their specific health issues addressed in CF clinic.

  2. Hello.
    49 with cf form Norway here.
    I am interested in what came out of the focus on the topic cf-women and hormones. Any conclutions?
    Scientific research from Norway find lung volume drop significant after menopause in all women.
    But treated with artificial hormones the lungvolume does not drop.
    So, should I take hormones?
    What do other female cf-patients do?
    Please answer me on facebook-PM;
    Linn Kristiane Lavik

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