Guest Blog By: Brennen Reeves
If I were to count all of the scars on my body, the ones visible to a bystander at the beach, I’d need your fingers and toes, plus mine. And someone to mark the tallies. Thirty-eight. I’ve counted. From my chest, to my stomach, up to my neck, and down to my ankles the grooves are endless it seems. I don’t think I have any on my back but then again I cannot see my back and I still have trouble with sensation from the bilateral lung transplant I received in 2011, so I wouldn’t be able to feel them either. Continue reading Only I Can Look Into My Mirror
Making it Matter Ep. 16 – Football and Cystic Fibrosis
Making it Matter this week is Matt Mitchell, a freshman in college with cystic fibrosis, who joins the podcast today to talk about his career as a football player. Matt was a stand out player in high school at Joy Christian Continue reading Making it Matter Ep. 16
By Meranda Sue Honaker
Gastroparesis (delayed gastric emptying) is a common complication for many with CF; however, the condition is exceptionally hard to treat due to lack of promotility agents in the United States. In my early 20’s I began to experience Continue reading Gastroparesis and Cystic Fibrosis – By Meranda Sue Honaker
Making it Matter Podcast Ep. 10 – CF Nutrition
Nutrition is something I love to talk about (well…. ever since I got my feeding tube placed in 2011). It is a vital part of CF care, something that Julia and I approach differently. While my pancreas doesn’t seem to work, Julia knows she is Continue reading Making it Matter Podcast – CF Nutrition
I received a bunch of awesome responses to my Vitamix blog, with most asking about what I actually put into the Vitamix.
So, I’d like to share a few recipes with everyone.
Now remember, I am a cystic fibrosis patient with a feeding tube, so here are Continue reading OWN IT: Bulking Up – A Few Recipes That I Use
Results from a trial involving 23 cystic fibrosis patients with pancreatic insufficiency and mild liver involvement indicate that supplementation with ursodeoxycholic acid can increase the digestion and absorption of fat. Continue reading UDCA Supplementation Enhances Lipid Digestion and Absorption in Pancreatic Insufficient Patients with Cystic Fibrosis
By Maureen Newman
Reprinted from Cystic Fibrosis News Today
In both adolescents and adults, nutritional status can play a major role in the rate of disease progression. Individuals with poor nutritional status and low weight retention are at a higher risk for worsening lung function and increased Continue reading Nutritional Status Shown To Predict Changes in Key Lung Test For Cystic Fibrosis Patients
Comfort with Your Feeding Tube
The fourth episode of the Own Your Feeding Tube video podcast series discusses some of the social questions that tube feeders, or potential tube feeders, may have when it comes to a new feeding tube. Obviously, it’s a Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 4
Normalcy with a Feeding Tube
In the third episode of the Own Your Feeding Tube video podcast series, you will see how I have been able to maintain my physically active lifestyle. Prior to getting my feeding tube placed, I had a fear that my life would change drastically. It did, but for the better. My Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 3
What Can I expect From My New Feeding Tube?
The second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed. Continue reading Own Your Feeding Tube with Gunnar Esiason: Episode 2