Cystic Fibrosis Podcast 176: Importance of Nutrition for CF Patients

In this podcast, we meet Molly Bigford, a Registered Dietitian for the Adult Cystic Fibrosis Care Team in Grand Rapids, Michigan. Born and raised in Michigan, Molly began working with hospitalized adult patients with cystic Continue reading Cystic Fibrosis Podcast 176: Importance of Nutrition for CF Patients

Green Smoothie Recipe – Healthy and Caloric!

By Ella Balasa

Rise and shine to start another day! Like most of us, I have limited time in my morning routine, AND I tend to slack on getting my greens for the day. Occasionally, I will eat a salad with my lunch or dinner, but that isn’t enough. The saying also goes… an apple a day keeps the doctor away…That’s definitely something we as CF patients want! Continue reading Green Smoothie Recipe – Healthy and Caloric!

My Wish List for the New Year By Gunnar Esiason

I’m not naïve enough to think that I’m going to wake up tomorrow and find that my life is moving forward with cystic fibrosis in the rearview mirror.

We’re still a little bit away from that moment, but that doesn’t mean I don’t have high expectations for treatment development. Continue reading My Wish List for the New Year By Gunnar Esiason

Making it Matter Ep. 14

Making it Matter Ep. 14 – Advocacy and Other Things

After our week off, Julia and I come back with lots to talk about. Right after her NYC marathon effort, Julia shipped off to Europe to tour a children’s CF center in the Netherlands. She talks about how much different care is than Continue reading Making it Matter Ep. 14

Making it Matter Podcast – CF Nutrition

Making it Matter Podcast Ep. 10 – CF Nutrition

Nutrition is something I love to talk about (well…. ever since I got my feeding tube placed in 2011). It is a vital part of CF care, something that Julia and I approach differently. While my pancreas doesn’t seem to work, Julia knows she is Continue reading Making it Matter Podcast – CF Nutrition

Modern Love Column in NY Times–Worth Reading

My husband and I usually read the Social Qs column on Sundays in the New York Times. Then we glance at the rest of the Styles Section. He saw that the Modern Love column was about a double lung transplant that almost destroyed a Continue reading Modern Love Column in NY Times–Worth Reading

Body Image Issues

Like many women, I have body image issues.  My legs aren’t shapely enough, my stomach isn’t flat enough, my hips aren’t large enough, etc.  And because of CF I add in the bloated belly, skinny arms and legs, and the barrel chest and I am a hodge-podge of awkwardness.  Like many women I struggle with my weight Continue reading Body Image Issues

OWN IT: Living with CF GoPro Part II

This GoPro video definitely shows a behind the scenes look at my life with cystic fibrosis. I tried to capture the maintenance that my body requires for it to fully function. Beyond that I really wanted to give a first person point of view of my Continue reading OWN IT: Living with CF GoPro Part II

OWN IT: Five Years with the G-Tube

This May marks five years since I had my feeding tube placed, or to put it another way, my G-tube has been with my for 1/5 of my life.

It’s a strange thought. For years I rejected the idea of having a feeding tube – Continue reading OWN IT: Five Years with the G-Tube

A Unique Approach to the Treatment of EPI in Cystic Fibrosis

Of all the pancreatic enzyme medicines doctors can prescribe, PERTZYE®(pancrelipase) is the only choice that contains pancreatic enzymes buffered with bicarbonate.* Bicarbonate is a substance normally secreted along with pancreatic enzymes that helps them work efficiently to digest food. Continue reading A Unique Approach to the Treatment of EPI in Cystic Fibrosis