“We’ve kind of realized that if we wait it might not happen,” she said.
Caleigh Haber has been dreaming of her wedding day for as long as she can remember, but she never realized it would come like this.
The 27-year-old, who has cystic fibrosis and is currently in need of her second double lung transplant, is about to marry the love of her life, Bryan Takayama. It’s an exciting celebration with a somber undertone.
Continue reading Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding
Synspira Announces First Patient Dosed in Phase 1a Study of SNSP113 in Cystic Fibrosis
— First-in-class drug candidate for treatment of cystic fibrosis regardless of genetic mutation — Continue reading Phase 1a study for drug to treat CF regardless of CF Mutation
Molly Troxel, who has an inherited degenerative eye disease, regained some vision after being treated with Spark’s experimental gene therapy, Luxturna. (Photo courtesy of PBS.)
This month, PBS is airing a documentary called The Gene Doctors that spotlights several emerging gene therapies, Continue reading PBS’s Documentary ‘The Gene Doctors’ Arrives Amid A Gene Therapy Boom
April 7, 2018
Registration for our 4 mile run in Central Park is now OPEN!
SIGN UP HERE
Raise $250 & receive an official Under Armour Team Boomer uniform
• In honor of the program’s 25th anniversary, AbbVie is awarding three $25,000 scholarships, including a new award category – the Blogger’s Choice Award
• Cast a vote online or via text message, through October 13, 2017, to help determine this year’s Thriving Undergraduate and Continue reading AbbVie Announces 25th Annual Cystic Fibrosis Scholarship Program Including 2017 Thriving Student Scholarship Contest and Blogger’s Choice Award
By: Jacob Greene
Cystic Fibrosis is an awkward disease. Whether it’s coughing attacks in the middle of tests, the infamous CF digestive issues (for professionalism’s sake I will leave it at that, but you know what I mean), or loud treatments in the morning and at night, there are many awkward aspects to cystic fibrosis. CF’s median life expectancy is no different. Continue reading We Can, Right? – Guest blog from USACFA Fall 2017 Scholarship Winner
NOVEMBER 5, 2017
STEP 1: REGISTER
To run for Team Boomer
STEP 2: INTERVIEW
with Team Boomer staffer Katie
STEP 3: RUN NEW YORK CITY! Continue reading Boomer Esiason Wants You… to Run the TCS NYC Marathon!
By Jeanie Hanley MD, President of USACFA and
John Mercer, BreatheCon 2017 Co-Chair
Sign up today for this FREE virtual event for adults with cystic fibrosis.
Our USACFA director, Mark Levine, is a featured Keynote Speaker on Friday and our CF Roundtable columnists, Aimee Continue reading Sign up for BreatheCON Sept 8th and 9th!
Canadian scientists have discovered a possible way to break through the defences of some antibiotic-resistant respiratory infections.
It’s hoped that the findings could someday benefit people with cystic fibrosis and other chronic lung diseases who are at greater risk of infections. Continue reading Scientists find new way to attack antibiotic-resistant lung infections