Xbox viable exercise for cystic fibrosis

INTERACTIVE gaming consoles, such as the Xbox Kinect could prove to be viable alternatives to traditional forms of exercise for adults with Cystic Fibrosis (CF), a recent WA study has found.

Collaborative research by Curtin University’s School of Physiotherapy, the Curtin Health Continue reading Xbox viable exercise for cystic fibrosis

Run for Team Boomer in the 2013 NEW YORK CITY MARATHON

and  Join the Fight to Cure Cystic Fibrosis! Registration Deadline: August 15 http://www.teamboomer.org/2013-ing-nyc-marathon/

Join Team Boomer as we RUN to CURE CF. http://www.teamboomer.org/ Continue reading Run for Team Boomer in the 2013 NEW YORK CITY MARATHON

CF Podcast #123: Exercising with CF

“If it’s not important, breathe it out. What’s important, breathe it in.”

In this video, Emily Schaller, a 31-year old living, breathing, and succeeding with cystic fibrosis shares her life-changing relationship with exercise and her determination to spread awareness about Continue reading CF Podcast #123: Exercising with CF

Proteostasis Therapeutics Presents Preclinical Data on Parkinson’s Disease and Cystic Fibrosis Targets at EMBO Conference

Proteostasis Therapeutics, Inc., a company developing novel therapeutics that regulate protein homeostasis to improve outcomes for patients with neurodegenerative and orphan diseases, today presented data on the Company’s preclinical targets for Parkinson’s disease and cystic fibrosis at a Continue reading Proteostasis Therapeutics Presents Preclinical Data on Parkinson’s Disease and Cystic Fibrosis Targets at EMBO Conference

Help us by Reviewing CF Roundtable for Great NonProfits 2013

The GreatNonProfits 2013 Top-Rated Awards are ready for nominations. Please help us earn a spot this year by entering your positive reviews. We could get the chance to meet with leaders in philanthropy and technology at the annual Technology for Social Good event in Silicon Valley, or Continue reading Help us by Reviewing CF Roundtable for Great NonProfits 2013

CF Podcast #121: Katie O’Grady – Playing High School Sports with CF

In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but Continue reading CF Podcast #121: Katie O’Grady – Playing High School Sports with CF

The Power Of Two” Is Coming To TV May 22!

Everyone in the cystic fibrosis community knows that it takes power to fight CF.  Twin sisters with CF Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Two.”  Called “compelling” and “poetic” by Continue reading The Power Of Two” Is Coming To TV May 22!

The Power Of Two” Is Coming To TV May 22!

Everyone in the cystic fibrosis community knows that it takes power to fight CF. Twin sisters with CF (and frequent CF Roundtable contributors) Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Continue reading The Power Of Two” Is Coming To TV May 22!

AbbVie CF Scholarship Application Now Available for Exceptional Undergraduate and Graduate Students with Cystic Fibrosis

Forty students will receive $2,500 scholarships for the 2013-2014 school year, – Apply through Friday, June 14 at www.AbbVieCFScholarship.com,

NORTH CHICAGO, Ill., May 1, 2013 — /PRNewswire/ — AbbVie today announced that undergraduate and graduate students living with cystic fibrosis (CF) can now apply for the AbbVie CF Scholarship for the 2013-2014 academic school year.

Previously known as the CFCareForward Scholarship, the AbbVie CF Scholarship was established 21 years ago to honor young adults with CF as they pursue goals of higher education. In 2013, forty students will be awarded $2,500 each based on outstanding academic record, extracurricular activities and creativity. Applications will be accepted through Friday, June 14.

“AbbVie is proud to be able to provide this scholarship to exceptional students living with CF,” said Jim Hynd, divisional vice president, Cardiovascular Care, Metabolics and GI Care, AbbVie. “For more than 20 years, we have been inspired by the CF scholars who continually demonstrate that it is possible to achieve personal and academic success while living with a chronic disease.”

Later this year, in honor of the 21st year of the scholarship program, the forty AbbVie CF Scholarship recipients will have the opportunity to compete for one of two Thriving Student Scholarships (based on level of study) resulting in a total scholarship award of $21,000 each.

It is not necessary for scholarship applicants to have taken, currently take, or intend to take in the future, any medicine or product marketed by AbbVie and this is not a consideration in the selection criteria. More information about the AbbVie CF Scholarship criteria and application can be found at www.AbbVieCFScholarship.com.

About Cystic Fibrosis Approximately 30,000 children and adults in the United States are living with CF, an inherited chronic disease that affects the lungs and digestive systems. More than 70 percent of people with CF are diagnosed by age two. Today, more than 45 percent of people living with CF are aged 18 or older.  In patients with CF, a thick, sticky mucus is produced in certain organs throughout the body, most commonly the lungs and digestive system. The mucus build-up in the lungs can cause difficulty breathing and may lead to life-threatening lung infections. In the digestive system, the thick mucus may prevent proper food digestion.

About AbbVie AbbVie is a global, research-based biopharmaceutical company formed in 2013 following separation from Abbott. The company’s mission is to use its expertise, dedicated people and unique approach to innovation to develop and market advanced therapies that address some of the world’s most complex and serious diseases. In 2013, AbbVie employs approximately 21,000 people worldwide and markets medicines in more than 170 countries. For further information on the company and its people, portfolio and commitments, please visit www.abbvie.com. Follow @abbvie on Twitter or view careers on our Facebook or LinkedIn page.

Guest Blog by Mark A. Levine: CF: Teaching What Text Books Don’t

I always wanted to be a teacher. In some respects, I already am. As an engineering manager for Chrysler, I teach all the time. Outside my full-time job, I have my own ACT math and science tutoring business. I also used to help my kids with their homework before they became smarter than Continue reading Guest Blog by Mark A. Levine: CF: Teaching What Text Books Don’t