If Chosen Wisely, Existing Drugs Fight Resistant Bugs

Science/AAAS | News
Fatal weakness. Pathogens such as methicillin-resistant Staphylococcus aureus (above) develop vulnerabilities as they evolve resistance to antibiotics. Choosing antibiotics that exploit these weaknesses can thwart resistant bacteria. Continue reading If Chosen Wisely, Existing Drugs Fight Resistant Bugs

Fighting CF Progression – Guest Blog by Lisa Zaccaria

I was one of the lucky ones. When I was a child through my teenage years, my FEV1 was way over 100 percent. My doctors said that they would have never been able to tell that I had CF by looking at my PFTs and chest x-ray. Continue reading Fighting CF Progression – Guest Blog by Lisa Zaccaria

Life is good–Guest blog by Kathy Russell

This is something that I think of every day. No matter what is going on, I am happy to be alive.

Today my husband and I took a drive up the Columbia River Gorge. It doesn’t make any difference to us what the season is, we always love that drive. Today was especially beautiful. Continue reading Life is good–Guest blog by Kathy Russell

Calling all Runners!

Team Boomer – Fighting Cystic Fibrosis has 15 spots still available in the ING NYC Marathon on November 3rd.  The deadline to register for this amazing opportunity is September 15th.  If you or anyone you know or someone at your CF Center are interested, please contact me directly or Michaela Seccareccia at mseccareccia@esiason.org Continue reading Calling all Runners!

Jerry Cahill’s Podcast #125: I Believe… Compliance

The “I Believe” video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.

In this podcast, four people who are at different stages in their fight against CF share what the word Continue reading Jerry Cahill’s Podcast #125: I Believe… Compliance

Cornerstone Therapeutics Initiates PERTZYE® (pancrelipase) Sales and Marketing Efforts for the Treatment of Exocrine Pancreatic Insufficiency in Patients with Cystic Fibrosis

CARY, N.C., July 29, 2013 – Cornerstone Therapeutics Inc. (NASDAQ: CRTX) announced today it is now actively marketing PERTZYE® (pancrelipase) in the U.S. for the treatment of Exocrine Pancreatic Insufficiency (EPI) due to cystic fibrosis. PERTZYE is the only U.S. Food and Drug Administration (FDA) approved pancreatic enzyme replacement therapy (PERT) containing Continue reading Cornerstone Therapeutics Initiates PERTZYE® (pancrelipase) Sales and Marketing Efforts for the Treatment of Exocrine Pancreatic Insufficiency in Patients with Cystic Fibrosis

To Port or not to port? Guest Blog By Jen Eisenmann

Jen2012Just last week I finished what many of us in the CF world call a “Clean out” or a “Tune up.”  It was unpleasant, as it usually is, but it wasn’t the drugged feeling I get the first few days or the diarrhea or doing 3 airway clearance treatments and 3 IV treatments a day that got to me – it was the Continue reading To Port or not to port? Guest Blog By Jen Eisenmann

Manchester Researchers Discover Half Of All Adults With Cystic Fibrosis Affected By Airborne Fungus

Experts believe a pioneering breakthrough by a Manchester hospital research team could pave the way for doctors to better understand and treat adults with Cystic Fibrosis (CF), helping them live longer and healthier lives. http://www.medicalnewstoday.com/releases/262897.php Continue reading Manchester Researchers Discover Half Of All Adults With Cystic Fibrosis Affected By Airborne Fungus

CFurther: Planning for College and Beyond

We hope this note finds you in good health and thriving in all you do. We are pleased to announce that the Boomer Esiason Foundation (BEF) will be partnering with Novartis Pharmaceuticals Corporation to host our first ever live webcast, CFurther: Planning for College and Beyond, on Tuesday, July 30, at 2:00 PM ET/1:00 PM Continue reading CFurther: Planning for College and Beyond