CF Podcast 126: Why do YOU run?

http://esiason.org/thriving-with-cf/podcasts/cf-podcast-126-why-do-you-run.php
In July 2013, runners gathered for the third consecutive year for a race Central Park in New York City. Many of those runners were there to support the cystic fibrosis community, and they shared with us their many reasons for running. From lung health to stress relief, emotional well-being to Continue reading CF Podcast 126: Why do YOU run?

Guest Blog by Lisa Zaccaria–Being Strong Is Not Always Easy

A lot of people ask me how I keep remaining so positive and strong. My answer is simple: I am not always positive and strong. Although I would love to be, I wouldn’t be human if I was. Yes, I fight CF everyday and I try to beat the odds. Continue reading Guest Blog by Lisa Zaccaria–Being Strong Is Not Always Easy

Guest Blog by Mark Levine–Making the Move: Moving My Daughter into College

Last month we moved our daughter Brooke into college. It was quite emotional and very exciting. It was the last stage of a roller-coaster ride of a process, from campus tours to standardized testing to essays and applications. Then there was waiting to Continue reading Guest Blog by Mark Levine–Making the Move: Moving My Daughter into College

Watch Living Xtreme: Beyond Cystic Fibrosis

Co-produced by CysticLife, Cystic Fibrosis Lifestyle Foundation and
Essential Image Source Foundation,  Living Xtreme: Beyond Cystic Fibrosis is a
27-minute documentary that highlights the stories of people with cystic fibrosis (CF) who Continue reading Watch Living Xtreme: Beyond Cystic Fibrosis

Fighting CF Progression – Guest Blog by Lisa Zaccaria

I was one of the lucky ones. When I was a child through my teenage years, my FEV1 was way over 100 percent. My doctors said that they would have never been able to tell that I had CF by looking at my PFTs and chest x-ray. Continue reading Fighting CF Progression – Guest Blog by Lisa Zaccaria

Jerry Cahill’s Podcast #125: I Believe… Compliance

The “I Believe” video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.

In this podcast, four people who are at different stages in their fight against CF share what the word Continue reading Jerry Cahill’s Podcast #125: I Believe… Compliance

I Believe: Jerry Cahill’s CF Podcast #124

The “I Believe” video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.

In this podcast, four people with CF discuss the need to have a supportive community surrounding Continue reading I Believe: Jerry Cahill’s CF Podcast #124

Movie Crew Documents Ada Woman’s Fight To Live

ADA, Oklahoma – Doctors said she would only live to be 10. She’s now 22. An Ada woman’s fight against cystic fibrosis is so inspiring, it’s now the focus of a documentary. http://www.newson6.com/story/22786634/movie-crew-documents-ada-womans-fight-to-live Continue reading Movie Crew Documents Ada Woman’s Fight To Live

The Winner of the Jacoby Angel Award is Jerry Cahill

Jerry Cahill has been awarded the prestigious Jacoby Angel Award from the United States Adult CF Association (USACFA) for being a person with CF who is making a difference in the lives of one or more people with or without CF. The award is named after Dr. Jack Jacoby who was a CF Continue reading The Winner of the Jacoby Angel Award is Jerry Cahill

USACFA Founder’s Award Winner is Dr. Jerry Nick

Dr. Jerry Nick has been awarded the prestigious USACFA Founder’s Award which recognizes a person who has made an outstanding contribution to the adult Cystic Fibrosis community. Dr. Nick is the CF Adult Care Center Director at National Jewish Health in Denver, Colorado. The award Continue reading USACFA Founder’s Award Winner is Dr. Jerry Nick