TEDx talk: The Case for Realistic Optimism

The Case for Realistic Optimism

Have you ever struggled to stay positive when dealing with a sick loved one? When Ray’s wife Rebecca went into respiratory failure from end stage cystic fibrosis he was faced with this challenge. What he learned was that choosing to be realistically optimistic helped him to remain strong for Rebecca during Continue reading TEDx talk: The Case for Realistic Optimism

PMD Healthcare Announces Two New Patient Advisory Boards

PMD Healthcare, a medical device, digital health and chronic care management services company, has announced it is forming two new patient advisory boards: one for Cystic Fibrosis (CF) patients and caregivers of CF Children, and one for Pulmonary Fibrosis (PF) patients and PF caregivers.

Continue reading PMD Healthcare Announces Two New Patient Advisory Boards

CF Relief Fund Launched for Those with CF Impacted by Hurricanes.

Isabella Passamano, daughter of Beth Sufian and James Passamano, has launched the CF Relief Fund to provide direct relief to children and adults with CF affected by Hurricanes Harvey and Irma. Continue reading CF Relief Fund Launched for Those with CF Impacted by Hurricanes.

Boomer Esiason Wants You… to Run the TCS NYC Marathon!

NOVEMBER 5, 2017
STEP 1: REGISTER
To run for Team Boomer

STEP 2: INTERVIEW
with Team Boomer staffer Katie

STEP 3: RUN NEW YORK CITY! Continue reading Boomer Esiason Wants You… to Run the TCS NYC Marathon!

Sign up for BreatheCON Sept 8th and 9th!

By Jeanie Hanley MD, President of USACFA and
John Mercer, BreatheCon 2017 Co-Chair

Sign up today for this FREE virtual event for adults with cystic fibrosis.

Our USACFA director, Mark Levine, is a featured Keynote Speaker on Friday and our CF Roundtable columnists, Aimee Continue reading Sign up for BreatheCON Sept 8th and 9th!

The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

By Kelly Gilmore

On Monday September 18th from 12:30pm PST- 2:30pm PST we are having a virtual discussion with CF women, and you’re invited! We need your help in understanding what aspects related sexual and Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) Patient Task Force Meeting is on September 18th!

USACFA’s Fall 2017 Lauren Melissa Kelly Scholarship Winners

The US Adult CF Association (USACFA) is excited to announce our recipients of the Lauren Melissa Kelly Scholarship: Congratulations to Jacob Greene and Elizabeth Shea! They will be awarded $2500 each. Continue reading USACFA’s Fall 2017 Lauren Melissa Kelly Scholarship Winners