The care of patients with Cystic Fibrosis (CF) has seen amazing advances in the past few years, made in part through the development of CFTR modulators. However, the recognition of the frequency of gastrointestinal (GI) symptoms in our patients is just beginning to emerge. Only recently have publications noted the excessively high frequency of GI issues. Continue reading Advancing the GI frontier for patients with CF
In this podcast, we meet Molly Bigford, a Registered Dietitian for the Adult Cystic Fibrosis Care Team in Grand Rapids, Michigan. Born and raised in Michigan, Molly began working with hospitalized adult patients with cystic Continue reading Cystic Fibrosis Podcast 176: Importance of Nutrition for CF Patients
By Ella Balasa
Rise and shine to start another day! Like most of us, I have limited time in my morning routine, AND I tend to slack on getting my greens for the day. Occasionally, I will eat a salad with my lunch or dinner, but that isn’t enough. The saying also goes… an apple a day keeps the doctor away…That’s definitely something we as CF patients want! Continue reading Green Smoothie Recipe – Healthy and Caloric!
In this video, Gunnar stresses the importance of building a routine in order to stay compliant with his treatments and remain healthy. He also reminds listeners to keep an open dialogue with their doctors and support teams at CF Clinics. Continue reading Cystic Fibrosis Step by Step: Building a Treatment Routine
A study published in the Annals of Internal Medicine concluded that “the median age of survival [is] 10 years higher [for CF patients] in Canada than the United States.”
If you’re wrapped up in the world of cystic fibrosis news like I am then you’ve probably seen this study floating around the Internet for the Continue reading OWN IT: Cystic Fibrosis Survival Rates in the United States vs. Canada
This morning I came across a story on MMQB about unbelievable year Erin Andrews is having.
As many may know, Erin Andrews, NFL on Fox’s lead sideline reporter, had been dealing with a crazed stalker in court. I cannot even imagine the stress that must Continue reading Perseverance, Resiliency and Erin Andrews
Making it Matter Podcast Ep. 10 – CF Nutrition
Nutrition is something I love to talk about (well…. ever since I got my feeding tube placed in 2011). It is a vital part of CF care, something that Julia and I approach differently. While my pancreas doesn’t seem to work, Julia knows she is Continue reading Making it Matter Podcast – CF Nutrition
By Amy Braid
As I mentioned last month, I read Wheat Belly by William Davis MD and decided to go gluten free for 30 days. Well my 30 days is up…
I felt no significant difference eating gluten vs not eating gluten. I did eat a lot more fruits and vegetables and yogurt which I loved. And I was hungry a lot more too. But I was eating lots more quantity. The first week or two I did feel less bloated after eating, and my wrist problems seemed to be diminishing. But I can’t say that for certain since I was not using it as much as I normally do either. By the time I hit the two week mark I felt exactly how I did before I started.
One thing that did change significantly…my fasting blood sugars. They were all in the normal range for those 30 days. But my post exercise blood sugars were awful. I crashed every single day I exercised, and that was 4-5 days a week. Not good.
I only cheated once. Hand to God I swear. It was the last week. We were going to my mother in laws for dinner, and since I make fresh bread a lot this time of year and , I made some the night before. I had to try a bite when it was finished! Just a small bite, and I didn’t have any at dinner the next day. And to be honest I didn’t feel anything negative side effects from sneaking a piece.
So for me I don’t think gluten has any noticeable impact on me. I was a little disappointed, I won’t lie. I did hope my lungs would feel better and my wrist would feel amazing and I would not bloat like a balloon with meals. The first 10 days or so I was excited that I might get there. But in the end, nothing. So it is back to gluten for me. But modified, I will eat less, avoid all the snacks and processed foods (for the most part) and try to maintain the healthy fruits and veggies I was eating for that month.
All in all I don’t think this experiment was a total bust. It was a learning experience and I tried some new foods I didn’t think I would like, and ended up loving them. So win win for me!
By Amy Braid
A couple of weeks ago Andrea posted this blog about her experience with going gluten free. She read a book called Wheat Belly by William Davis MD. She talked about how much better her joints feel having tried this. It sounded great!