In this blog we provide information related to medical records and their importance to a person with CF.
Nothing in this blog post is meant to be legal advice about your specific situation and is only meant as information.
Medical Records Are Crucial
Detailed and accurate medical records can help with a variety of issues. Medical records are important for those applying for Social Security benefits or undergoing an SSA Continuing Disability Review. Continue reading Medical Records Are Crucial — By Beth Sufian, JD
By Andrea Eisenman
I am not into fads, especially when it comes to food. I feel my life is complicated enough having cystic fibrosis and a bilateral lung transplant. There is a lot of time spent on taking medications, checking my blood sugars for diabetes and Continue reading Trying to Reduce Inflammation
Scientists from the North are hoping to develop new ways of helping cystic fibrosis patients live longer. Continue reading Bid to extend cystic fibrosis patients’ lifespan
• Majority of cystic fibrosis (“CF”) patients develop diabetes and liver steatosis
• PBI-4050 shown to reduce fibrosis in the lungs, pancreas and liver in preclinical models
• PBI-4050 confirmed to reduce glycated hemoglobin in type 2 diabetes Continue reading Prometic’s PBI-4050 To Target Cystic Fibrosis As Its Next Orphan Indication
An analysis of organ transplant records between 1987 and 2014 suggests that cystic fibrosis patients who lose pancreatic function are failing to avail themselves of operations that could replace their damaged organs and restore their ability to digest food and manage blood sugar. Continue reading Pancreas Transplant for Cystic Fibrosis Patients with Exocrine Insufficiency
A new clinical trial for Cystic Fibrosis is now recruiting participants aged between 18 to 60 years old with end-stage cystic fibrosis (CF) and severe CF-related diabetes (CFRD). The study is entitled “Metabolic Efficiency of Combined Pancreatic Islet and Lung Transplant for the Treatment of Continue reading New Combined Pancreatic Islet and Lung Transplantation Procedure for Cystic Fibrosis Could Improve CF-related Diabetes
Currently Enrolling (According to clinicaltrials.gov)
Locations: Georgia, Tennessee, Ohio and Quebec Canada
Acute systemic hyperglycemia causes oxidative stress and a pro-inflammatory response. The pro-inflammatory cytokines induced by hyperglycemia are toxic to islet insulin producing cells, and Continue reading Clinical Trial Alert: Prevention of CF Related Diabetes Using Sitagliptin
Recent research led by Professor CHAN Hsiao Chang, Li Ka Shing Professor of Physiology and Director of the Epithelial Cell Biology Research Centre at The Chinese University of Hong Kong (CUHK), explains why patients with cystic fibrosis often develop diabetes. The study also suggests a potential treatment strategy for cystic fibrosis associated diabetes. The finding has been published in an international leading scientific journal, Nature Communications. Continue reading CUHK Research Explains Why Patients with Cystic Fibrosis Often Develop Diabetes
What do I do post-transplant to stay compliant?
To stay compliant, Jerry keeps a daily log of things like his temperature, blood pressure, heart rate, and a number of other things. He also takes his medications daily – on average about 40 pills a day. Continue reading Wind Sprint 40: Post Transplant Compliancy