Calling all Runners!

Team Boomer – Fighting Cystic Fibrosis has 15 spots still available in the ING NYC Marathon on November 3rd.  The deadline to register for this amazing opportunity is September 15th.  If you or anyone you know or someone at your CF Center are interested, please contact me directly or Michaela Seccareccia at mseccareccia@esiason.org Continue reading Calling all Runners!

Traveling with Medications: Using the Spirologics Back Pack

n this CF Wind Sprint, Jerry Cahill addresses a topic brought to him by Facebook friend, Jason, about traveling with medication. Recently, Jerry began using a special backpack that provides ample space for meds, separate compartments in various sizes, space for an ice pack, and even room for a Continue reading Traveling with Medications: Using the Spirologics Back Pack

Jerry Cahill’s Podcast #125: I Believe… Compliance

The “I Believe” video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.

In this podcast, four people who are at different stages in their fight against CF share what the word Continue reading Jerry Cahill’s Podcast #125: I Believe… Compliance

Cornerstone Therapeutics Initiates PERTZYE® (pancrelipase) Sales and Marketing Efforts for the Treatment of Exocrine Pancreatic Insufficiency in Patients with Cystic Fibrosis

CARY, N.C., July 29, 2013 – Cornerstone Therapeutics Inc. (NASDAQ: CRTX) announced today it is now actively marketing PERTZYE® (pancrelipase) in the U.S. for the treatment of Exocrine Pancreatic Insufficiency (EPI) due to cystic fibrosis. PERTZYE is the only U.S. Food and Drug Administration (FDA) approved pancreatic enzyme replacement therapy (PERT) containing Continue reading Cornerstone Therapeutics Initiates PERTZYE® (pancrelipase) Sales and Marketing Efforts for the Treatment of Exocrine Pancreatic Insufficiency in Patients with Cystic Fibrosis

Vertex Updates Recent Progress and Upcoming Milestones in Clinical Development Programs

Vertex’s strategy in cystic fibrosis (CF) is to provide benefit to as many CF  patients as possible, and to maximize the benefit for these patients, with our  approved and investigational medicines. Continue reading Vertex Updates Recent Progress and Upcoming Milestones in Clinical Development Programs

To Port or not to port? Guest Blog By Jen Eisenmann

Jen2012Just last week I finished what many of us in the CF world call a “Clean out” or a “Tune up.”  It was unpleasant, as it usually is, but it wasn’t the drugged feeling I get the first few days or the diarrhea or doing 3 airway clearance treatments and 3 IV treatments a day that got to me – it was the Continue reading To Port or not to port? Guest Blog By Jen Eisenmann

I Believe: Jerry Cahill’s CF Podcast #124

The “I Believe” video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.

In this podcast, four people with CF discuss the need to have a supportive community surrounding Continue reading I Believe: Jerry Cahill’s CF Podcast #124

Extended-Infusion Cefepime Reduces Mortality in Patients with Pseudomonas aeruginosa Infections; Bauer KA, West JE, O’Brien JM, Goff DA; Antimicrobial Agents & Chemotherapy (Apr 2013)

In an era of escalating resistance and lack of new antimicrobial discovery, stewardship programs must utilize knowledge of pharmacodynamics to achieve maximal exposure in the treatment of Pseudomonas aeruginosa infections. We evaluated the clinical and Continue reading Extended-Infusion Cefepime Reduces Mortality in Patients with Pseudomonas aeruginosa Infections; Bauer KA, West JE, O’Brien JM, Goff DA; Antimicrobial Agents & Chemotherapy (Apr 2013)

Manchester Researchers Discover Half Of All Adults With Cystic Fibrosis Affected By Airborne Fungus

Experts believe a pioneering breakthrough by a Manchester hospital research team could pave the way for doctors to better understand and treat adults with Cystic Fibrosis (CF), helping them live longer and healthier lives. http://www.medicalnewstoday.com/releases/262897.php Continue reading Manchester Researchers Discover Half Of All Adults With Cystic Fibrosis Affected By Airborne Fungus

Remembering self-care while caring for others

This title sounds much too obvious to blog about. But when a loved one is in need, it doesn’t usually matter, we make sacrifices to help them. And sometimes, can forget about our own needs in the process. Continue reading Remembering self-care while caring for others