Spots Are Almost Sold Out! Save Your Seat Now SoulCycle to Cure CF!

What: Cycle for CF
Where: SoulCycle Tribeca
When: Saturday, March 9, 3:00pm
Join Team Boomer as we participate in a fun and exciting SoulCycle Class to raise funds for cystic fibrosis. Special guest and Foundation founder, Boomer Esiason, will be in attendance. Continue reading Spots Are Almost Sold Out! Save Your Seat Now SoulCycle to Cure CF!

A solution to sinusitis from the sea

A team of scientists and surgeons from Newcastle are developing a new nasal spray from a marine microbe to help clear chronic sinusitis.

They are using an enzyme isolated from a marine bacterium Bacillus licheniformis found on the surface of seaweed which the scientists at Newcastle University were originally researching for the purpose of cleaning the hulls of ships.

 Continue reading A solution to sinusitis from the sea

Check out new Irish recording artist Michael Cunningham, Jr.

New Album Available from March 6

Finally, the new album, ‘The Boy at the Window’ has a release date of March 6th 2013.

Samples can be listened to on the Music page. See his website for more info: http://www.michaelcunninghamjnr.com/
and like him on facebook: www.facebook.com/michaelcunninghamjnr Continue reading Check out new Irish recording artist Michael Cunningham, Jr.

Promising pre-clinical data in Cystic Fibrosis for ProtAffin AG’s PA401 to be presented at ATS, Philadelphia, 17-22 May 2013

Graz, Austria and London, UK- 20th February 2013: ProtAffin AG, a biotechnology company developing a novel class of next-generation biopharmaceuticals for inflammation, respiratory disease and oncology, today announced that a collaboration with a leading European centre for the Continue reading Promising pre-clinical data in Cystic Fibrosis for ProtAffin AG’s PA401 to be presented at ATS, Philadelphia, 17-22 May 2013

You Cannot Fail Scholarship Application Deadline: April 18, 2013

BEF CF Ambassador, Jerry Cahill, created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, make a difference by sharing that journey with others, and celebrate the stories that make them unique.

As a component of that program, BEF established the Jerry Cahill You Cannot Fail scholarship in 2012 to honor exceptional student-athletes with cystic fibrosis who, like Jerry, don’t let the disease get in their way of living lives filled with purpose, passion, optimism and courage. These Continue reading You Cannot Fail Scholarship Application Deadline: April 18, 2013

Watch Ana and Isa on Katie on February 6th!

February 6th is a big day for the Power of Two!

Ana and Isa will appear on the “Multiple Madness” episode of Katie Couirc’s hit ABC afternoon talk show. Click link below to check local listings for channel and time.

http://www.katiecouric.com/station-finder/?utm_source=Katie+Couric+%282%2F6%2F2013%29&utm_campaign=Katie+Couric&utm_medium=email

Discovery Of ‘Switch’ That Turns On Aggressive Infection In Superbug Offers Potential New Target For Treatment

University of Cambridge researchers have discovered how an antibiotic-resistant superbug exploits oxygen-limited conditions in the lungs of patients with severe respiratory disease to thrive.

It is hoped the discovery could lead to new ways to target the Pseudomonas aeruginosabacterium, Continue reading Discovery Of ‘Switch’ That Turns On Aggressive Infection In Superbug Offers Potential New Target For Treatment

Saving Money with Patient Assistance Programs

Many manufacturers of medications used by CF patients offer patient assistance programs to assist individuals with insufficient or no insurance coverage to obtain medications. Programs vary in their offerings from sampling products, providing nutritional supplements, and co-pay assistance.

Digestive Enzymes Continue reading Saving Money with Patient Assistance Programs

KaloBios Initiates Phase 2 Study with KB001-A Humaneered® Monoclonal Antibody in Cystic Fibrosis Patients

KaloBios Pharmaceuticals, Inc. today announced that dosing has begun in a randomized, double-blind, placebo-controlled Phase 2 clinical trial of KB001-A, the company’s anti-PcrV Humaneered®, PEGylated monoclonal antibody fragment. The study will investigate the safety and efficacy of intravenously administered KB001-A as a treatment for chronic Pseudomonas aeruginosa (Pa) infection in cystic fibrosis patients. Continue reading KaloBios Initiates Phase 2 Study with KB001-A Humaneered® Monoclonal Antibody in Cystic Fibrosis Patients

CF Wind Sprints Episode 32: Using a Feeding Tube

In the following episode of CF Wind Sprints, Jerry Cahill introduces the question of how to use a feeding tube. Although Jerry has never used a feeding tube, his friend Gunnar Esiason has, and is able to give a short overview of its use.

http://www.youtube.com/watch?feature=player_embedded&v=8ZjAIXIAdSU