Feeling Good!–Guest Blog by Kathy Russell

I feel good. That may not seem like such a big deal to most people, but it is to me. For the past two-and-a-half years I have not been feeling very well. First I had pneumonia in both lungs. Then I had a twist in my small intestines. The pneumonia never quite went away and my Continue reading Feeling Good!–Guest Blog by Kathy Russell

CFCareForward Scholarship

Recognizing the financial burdens that exist for many cystic fibrosis (CF) families, the
CFCareForward Scholarship was developed to honor young adults with CF as they pursue
goals of higher education and beyond. Through this program, Abbott continues its nearly Continue reading CFCareForward Scholarship

To the Games and Back

As a 12-year veteran of bilateral lung transplantation, I triumphantly just returned from the 2012 Transplant Games of America with two gold medals in tow. The Games were July 28 – Aug 1 and took place in Grand Rapids, Michigan. I was skeptical that the games would be as well organized or Continue reading To the Games and Back

Video Short #5 – CF: Accepting and Living Your Life with CF

Now online How do you talk to people about CF? Go to http://bit.ly/OJSXD5 to watch CF patients, caregivers and experts share their personal stories on accepting CF and how they describe CF to others. Being open about CF may help strengthen your support systems and help you deal with CF’s day-to-day issues. The video features:
·         LaCrecia Britton, CF Coordinator, RN and CPNP
·         America’s Got Talent finalists, Ali and Christina Christensen, and their parents
·         Ronnie Sharpe, CF patient, author of RunSickBoyRun.com and co-founder of CysticLife.org

Eye of the Tiger–Guest Blog by Stephanie Rath

Cue the cheesy song “Eye of the Tiger” by Survivor from Rocky III:

“Risin’ up, back on the street
Did my time, took my chances
Went the distance, now I’m back on my feet
Just a man and his will to survive Continue reading Eye of the Tiger–Guest Blog by Stephanie Rath

OrPro Therapeutics Receives NIH Grant Award to Advance Development of Recombinant Thioredoxin for Treatment of Cystic Fibrosis

OrPro Therapeutics, Inc. today announced that the company has been awarded a National Heart, Lung and Blood Institute Small Business Innovation Research (SBIR) grant from the National Institutes of Health (NIH). The grant enables OrPro to advance development of its lead product, Continue reading OrPro Therapeutics Receives NIH Grant Award to Advance Development of Recombinant Thioredoxin for Treatment of Cystic Fibrosis

The CFChef Winter Holiday Recipe Contest

Are the hot and humid days of summer getting to you? To cool off, think Christmas in July, as the CFChef program kicks off its Winter Holiday recipe contest.

The CFChef Winter Holiday recipe contest – which starts today, July 20, 2012 – is looking for festive and flavorful cystic fibrosis-friendly recipes for Thanksgiving, Christmas, Chanukah, and more by September 14, 2012.  Continue reading The CFChef Winter Holiday Recipe Contest

Saving Money with Patient Assistance Programs

Many manufacturers of medications used by CF patients offer patient assistance programs to assist individuals with insufficient or no insurance coverage to obtain medications. Programs vary in their offerings from sampling products, providing nutritional supplements, and co-pay assistance. Continue reading Saving Money with Patient Assistance Programs

Congratulations to Tyler Smith, Our Newest Hero of Hope!

This month’s Hero of Hope Living with CF, Tyler Smith, 17, is a junior in high school and excited to go to college to pursue his dreams. Tyler has an extremely positive attitude and does not let his CF define him or get in the way of what he wants to get out of life. Continue reading Congratulations to Tyler Smith, Our Newest Hero of Hope!