When Cystic Fibrosis is Out of Our Control

There are those people that go with the flow and don’t stress as much about life events, but I would say a majority of people want to have control over how life pans out. I’m certainly the kind of person that needs to know how things will happen, I need to have a plan, and I worry about how my life will fall into place. Basically, I have a need to be in control. I have, for the most part, always maintained control over my disease, which is the most uncontrollable factor in my life. Continue reading When Cystic Fibrosis is Out of Our Control

Music, Cystic Fibrosis, and Mental Health

There’s a myth in the world of cystic fibrosis that one of our airway clearance devices was developed after a CF patient went to a concert and stood near a speaker blaring some really deep beats only to find himself coughing uncontrollably. The next day he felt great and quickly put together some quick Continue reading Music, Cystic Fibrosis, and Mental Health