Team Boomer is accepting registrations for the 2012 ING New York City Marathon on Sunday, November 4, 2012.
To be considered for a marathon entry, each runner must commit to make a donation or raise funds totaling $3,000 or more to the Boomer Esiason Foundation. The donations support research Continue reading Team Boomer Opens Registration for 2012 ING New York City Marathon
Here is a guest blog from one of our directors, Cynthia.
On February 26th, my husband and I participated in “Hustle up the Hancock” – a stair-climbing fundraiser for the Respiratory Health Association of Metropolitan Chicago. We took the stairs from the ground level to the observation deck on the 94th floor. This popular event attracts about 4000 climbers each year along with a number of enthusiastic supporters.
Last year, when I did the half-climb, I noticed how crowded the event was and realized that I should be practicing better infection control. This year, I wore my mask. (It’s taken me a long time to get more comfortable wearing masks in public spaces where people are crowded together. Now, I treat it as a social experiment and watch how people react. Perhaps a few grey hairs help give me that Continue reading Taking the Stairs
The Boomer Esiason Foundation has posted CF Wind Sprint 24: Transitioning from College to the Career World with CF on its website. http://esiason.org/thriving-with-cf/wind-sprint-24-transitioning-from-college-to-the-career-world-with-cf.php
This short video is the third in a three-part series examining the major transitioning stages for people with cystic fibrosis. Continue reading Transitioning from College to the Career World with CF
The Boomer Esiason Foundation has established the Rimington Trophy Scholarship to recognize outstanding students who are living, breathing and succeeding with cystic fibrosis.
The new scholarship was established in association with the Rimington Trophy, the college football award named in honor of BEF President and former University of Nebraska center Dave Rimington. http://www.esiason.org/cf-news/rimington-trophy-scholarship-established-to-support-students-with-cf.php Continue reading New Rimington Trophy Scholarship to Support Students with CF
Here is a guest post from one of our Directors, Colleen.
Today is my dog Penny’s birthday! She turned five years old today. Penny is a miniature schnauzer, and she brings me a lot of joy. She is always happy to see me when I get home, and she jumps like a rabbit when I’m getting her dinner for her, because she is just SO excited she can barely contain Continue reading Appreciating My Pooch
(United States) U.S.A.C.F.A. will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29. The purpose is to focus attention on the needs of patients and families affected by rare diseases.
“This is a global observance,” said Peter L. Saltonstall, president and CEO of NORD. “Individuals and organizations around the world will all be sharing stories of how rare diseases affect their lives.” Continue reading U.S.A.C.F.A. to Observe Rare Disease Day
Usually, when a friend of mine dies from CF and its complications, I am sad but am not shocked. Nor does it take me long to accept this. Same goes for losing a friend to complications post-lung transplant. But there are exceptions. And they are never easy. Continue reading Losing a good friend to the good fight.
A book of original poems, quotes, anecdotes and stories penned by those living with Cystic Fibrosis, those who have succumbed to the disease, and those who share and have shared their lives with those who have Cystic Fibrosis. We are accepting original written work to be included in this book. Continue reading An Open Invitation For Submissions Of Original Written Works
I have always complemented my doctors’ prescribed therapies with alternative or complementary care therapies like acupuncture, cranio-sacral therapy, and now reiki. I had received reiki from Michael, at my acupuncturist’s office. Continue reading Using Reiki with CF and Lung Transplant
December 15 Deadline Approaching for BEF Academic Scholarship
The Boomer Esiason Foundation encourages college students with cystic fibrosis to get started on their application for the BEF General Academic Scholarship. The next application deadline for this program is December 15, 2011.
The Boomer Esiason Foundation’s General Academic Scholarships assist CF patients pursuing undergraduate and graduate degrees. Grants are awarded quarterly on the basis of demonstrated need and academic accomplishment. They are made directly to the academic institution to assist in covering the cost of tuition and fees. This scholarship is for one year only.
For more information and application materials, please visit the BEF General Academic Scholarship page on our website.
The Boomer Esiason Foundation awards more than $250,000 in scholarships each year to outstanding students with CF who strive both for therapy compliance and for academic success.
For more information about our scholarship program, including applications and 2012 deadlines, please visit the scholarships page on the BEF website. http://esiason.org