The Power Of Two” Is Coming To TV May 22!

Everyone in the cystic fibrosis community knows that it takes power to fight CF.  Twin sisters with CF Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Two.”  Called “compelling” and “poetic” by Continue reading The Power Of Two” Is Coming To TV May 22!

The Winner of the Jacoby Angel Award is Jerry Cahill

Jerry Cahill has been awarded the prestigious Jacoby Angel Award from the United States Adult CF Association (USACFA) for being a person with CF who is making a difference in the lives of one or more people with or without CF. The award is named after Dr. Jack Jacoby who was a CF Continue reading The Winner of the Jacoby Angel Award is Jerry Cahill

Social Security Administration (SSA) to Host Special Teleconference for Cystic Fibrosis Community about Proposed Changes to Disability Benefits

Friday, May 10, 2013 (1:00 – 2:30 p.m. ET)
The Social Security Administration (SSA) will host a special teleconference for the cystic fibrosis community on Friday, May 10 about proposed changes to disability benefits. https://www.federalregister.gov/articles/2013/05/07/2013-10702/medical-criteria-for-evaluating-cystic-fibrosis Continue reading Social Security Administration (SSA) to Host Special Teleconference for Cystic Fibrosis Community about Proposed Changes to Disability Benefits

USACFA Founder’s Award Winner is Dr. Jerry Nick

Dr. Jerry Nick has been awarded the prestigious USACFA Founder’s Award which recognizes a person who has made an outstanding contribution to the adult Cystic Fibrosis community. Dr. Nick is the CF Adult Care Center Director at National Jewish Health in Denver, Colorado. The award Continue reading USACFA Founder’s Award Winner is Dr. Jerry Nick

The Power Of Two” Is Coming To TV May 22!

Everyone in the cystic fibrosis community knows that it takes power to fight CF. Twin sisters with CF (and frequent CF Roundtable contributors) Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Continue reading The Power Of Two” Is Coming To TV May 22!

AbbVie CF Scholarship Application Now Available for Exceptional Undergraduate and Graduate Students with Cystic Fibrosis

Forty students will receive $2,500 scholarships for the 2013-2014 school year, – Apply through Friday, June 14 at www.AbbVieCFScholarship.com,

NORTH CHICAGO, Ill., May 1, 2013 — /PRNewswire/ — AbbVie today announced that undergraduate and graduate students living with cystic fibrosis (CF) can now apply for the AbbVie CF Scholarship for the 2013-2014 academic school year.

Previously known as the CFCareForward Scholarship, the AbbVie CF Scholarship was established 21 years ago to honor young adults with CF as they pursue goals of higher education. In 2013, forty students will be awarded $2,500 each based on outstanding academic record, extracurricular activities and creativity. Applications will be accepted through Friday, June 14.

“AbbVie is proud to be able to provide this scholarship to exceptional students living with CF,” said Jim Hynd, divisional vice president, Cardiovascular Care, Metabolics and GI Care, AbbVie. “For more than 20 years, we have been inspired by the CF scholars who continually demonstrate that it is possible to achieve personal and academic success while living with a chronic disease.”

Later this year, in honor of the 21st year of the scholarship program, the forty AbbVie CF Scholarship recipients will have the opportunity to compete for one of two Thriving Student Scholarships (based on level of study) resulting in a total scholarship award of $21,000 each.

It is not necessary for scholarship applicants to have taken, currently take, or intend to take in the future, any medicine or product marketed by AbbVie and this is not a consideration in the selection criteria. More information about the AbbVie CF Scholarship criteria and application can be found at www.AbbVieCFScholarship.com.

About Cystic Fibrosis Approximately 30,000 children and adults in the United States are living with CF, an inherited chronic disease that affects the lungs and digestive systems. More than 70 percent of people with CF are diagnosed by age two. Today, more than 45 percent of people living with CF are aged 18 or older.  In patients with CF, a thick, sticky mucus is produced in certain organs throughout the body, most commonly the lungs and digestive system. The mucus build-up in the lungs can cause difficulty breathing and may lead to life-threatening lung infections. In the digestive system, the thick mucus may prevent proper food digestion.

About AbbVie AbbVie is a global, research-based biopharmaceutical company formed in 2013 following separation from Abbott. The company’s mission is to use its expertise, dedicated people and unique approach to innovation to develop and market advanced therapies that address some of the world’s most complex and serious diseases. In 2013, AbbVie employs approximately 21,000 people worldwide and markets medicines in more than 170 countries. For further information on the company and its people, portfolio and commitments, please visit www.abbvie.com. Follow @abbvie on Twitter or view careers on our Facebook or LinkedIn page.

Guest Blog by Mark A. Levine: CF: Teaching What Text Books Don’t

I always wanted to be a teacher. In some respects, I already am. As an engineering manager for Chrysler, I teach all the time. Outside my full-time job, I have my own ACT math and science tutoring business. I also used to help my kids with their homework before they became smarter than Continue reading Guest Blog by Mark A. Levine: CF: Teaching What Text Books Don’t