Cystic Fibrosis Foundation’s new rules are wrong

http://www.sfgate.com/opinion/openforum/article/Cystic-Fibrosis-Foundation-s-new-rules-are-wrong-4882983.php

Earlier this year, the Cystic Fibrosis Foundation made a new rule that “only one person with CF may be present at a CF Foundation-sponsored indoor event or meeting.” While intended as a safety measure, it bans from its own functions the Continue reading Cystic Fibrosis Foundation’s new rules are wrong

Why AbbVie’s Global Alliance With Galapagos Is Good News for Investors

Since becoming an independent company late last year, AbbVie has been making significant progress. AbbVie shares have been among the best performers in the health care sector this year, gaining nearly 31% year-to-date. The gains have come Continue reading Why AbbVie’s Global Alliance With Galapagos Is Good News for Investors

Guest Blog by Mark Levine–Making the Move: Moving My Daughter into College

Last month we moved our daughter Brooke into college. It was quite emotional and very exciting. It was the last stage of a roller-coaster ride of a process, from campus tours to standardized testing to essays and applications. Then there was waiting to Continue reading Guest Blog by Mark Levine–Making the Move: Moving My Daughter into College

Getting high on life…Guest Blog By Kathy Russell

As I lose lung capacity, I find that fewer things are fun to do. So many things take too much energy. I like to save my energy for things that make me happy. Recently, I had an opportunity to do something that, although it took a lot of energy, made me really happy. Continue reading Getting high on life…Guest Blog By Kathy Russell

New Compounds Display Strong Therapeutic Potential for Cystic Fibrosis

Sep. 30, 2013 — Cystic fibrosis is a lethal genetic disorder that in France affects one child per 4,500 births. An international team led by scientists at the Institut Fédératif de Recherche Necker-Enfants Malades (CNRS/Inserm/Université Paris Descartes)[1], led by Aleksander Edelman, has recently discovered two new compounds that could be used to treat patients carrying the most common mutation. Continue reading New Compounds Display Strong Therapeutic Potential for Cystic Fibrosis

Watch Living Xtreme: Beyond Cystic Fibrosis

Co-produced by CysticLife, Cystic Fibrosis Lifestyle Foundation and
Essential Image Source Foundation,  Living Xtreme: Beyond Cystic Fibrosis is a
27-minute documentary that highlights the stories of people with cystic fibrosis (CF) who Continue reading Watch Living Xtreme: Beyond Cystic Fibrosis

If Chosen Wisely, Existing Drugs Fight Resistant Bugs

Science/AAAS | News
Fatal weakness. Pathogens such as methicillin-resistant Staphylococcus aureus (above) develop vulnerabilities as they evolve resistance to antibiotics. Choosing antibiotics that exploit these weaknesses can thwart resistant bacteria. Continue reading If Chosen Wisely, Existing Drugs Fight Resistant Bugs

Celtaxsys completes Phase I trial of cystic fibrosis drug

US-based clinical stage drug discovery and development firm Celtaxsys has completed Phase I clinical trial of its drug CTX-4430 to treat patients with cystic fibrosis (CF) lung disease.

Celtaxsys Aus, the company’s Australian subsidiary, has carried out the first of two clinical trials in Continue reading Celtaxsys completes Phase I trial of cystic fibrosis drug

Fighting CF Progression – Guest Blog by Lisa Zaccaria

I was one of the lucky ones. When I was a child through my teenage years, my FEV1 was way over 100 percent. My doctors said that they would have never been able to tell that I had CF by looking at my PFTs and chest x-ray. Continue reading Fighting CF Progression – Guest Blog by Lisa Zaccaria