The Cystic Fibrosis Foundation describes CF as a genetically-acquired chronic disease that impacts the lungs and gastrointestinal tract, causing these body systems to produce abnormally thick, and viscid mucus that has the tendency to consolidate in the lungs, and block the secretion of pancreatic enzymes, resulting in malabsorption. Today, about 30,000 American children and adults, and over 70,000 people are affected all over the globe. Stanford researchers have recently come up with a breakthrough sweat test for those living with Cystic Fibrosis that promises to reveal more about the disease. Continue reading New Cystic Fibrosis Sweat Test Offers More Accurate Results
Aggressive multi-resistant infections constitute an increasing health problem all over the world. Bacteria are developing resistance at an alarming pace, so new pharmaceuticals that can combat this threat are in great demand. Continue reading Garlic counteracts virulent bacteria
Have any of you users of The Vest out there ever failed screening at the airport security check point? Usually one of my various machines causes concern, either the nebulizer compressor, oxygen concentrator, or The Vest. Sometimes I’ve been the “concern”, Continue reading Airports security–Guest Post by Jeanie Hanley
The vast majority of Cystic Fibrosis treatments currently approved by the Food and Drug Administration focus on managing and curtailing symptoms of the disease rather than treating its underlying causes. However, a new pharma report from GBI Research Continue reading New Analysis Indicates Cystic Fibrosis Transmembrane Conductance Regulator Modulators Will Lead To Significant Treatment Improvements
I couldn’t do it. I kept feeling that I needed to physically be at the hospital to meet with the social services, rehab specialists (PT/OT) and doctor for my mother who has advanced dementia that declined after an arthritic knee caused her to fall and to lose the Continue reading Helping Sick Parents – Part II: Guest Blog by Jeanie Hanley
Taking care of ourselves requires routines and adaptability. When the day doesn’t go as planned, we need to readjust and carry on. Getting our treatments, meds, meals, exercise and rest is paramount. Recently though, I’ve been tested on all these arenas. Continue reading Helping Sick Parents – Part I: Guest Blog by Jeanie Hanley
My friends say I am a little excessive regarding exercise. And maybe I am. But aside from clearing my head, it helps to keep my sinuses clear. It also helps me cough out any stuff percolating in my lungs. But since I am a bilateral lung transplant recipient, my lungs (thankfully) are more clear than clogged with the usual CF gunk.
The way it works, I think, is, if I bike for about 30 minutes on my stationery bike, my sinuses seem less inflamed. But what I was told by my ENT is, exercise releases many things like endorphins and epinephrine, which reduces inflammation and makes it easier to for the our think mucus to drain or dislodge from our sinus tissue. Hence it can be removed more easily. I notice this is true after I exercise and do a nasal lavage, even if the lavage is 10 hours later. The days I bike or play tennis, the crud just comes out easier. Sometimes even in chucks–gross! And if I go in there with a Q-tip, even better. You didn’t hear that last bit from me though.
There are many times I am not motivated to exercise, believe me, but I do it because I prefer having clearer sinuses to taking antibiotics several times a year for chronic infections. To take my mind off of the task at hand I watch whatever can keep me pedaling. And really, a half an hour is not so long but decent enough to get some aerobic benefits. While they are not always immediate, it helps me feel like I am doing something to prevent future illness.
What are your tips about exercise?
Completion of Phase 3 Clinical testing by Vertex for their investigational drug, Ivacaftor, in cystic fibrosis (CF) patients who have the R117H mutation, has revealed mixed results. Although Ivacaftor is approved to treat patients with cystic fibrosis and Continue reading Phase 3 Trial from Vertex Studying Ivacaftor in R117H Mutated Cystic Fibrosis Shows Promise in Patients 18+
Jerry Cahill, a man in his late 50s, living, breathing, and succeeding with cystic fibrosis shares his journey through a double lung transplant. The drive behind his success is his ability to make the fight Continue reading New CF Podcast #129: Living Breathing Proof
We have the latest content from HBO for REAL SPORTS WITH BRYANT GUMBEL to share with you. This month’s edition features a few really interesting segments, see the few clips available.