Taking the Stairs

Here is a guest blog from one of our directors, Cynthia.

On February 26th, my husband and I participated in “Hustle up the Hancock” – a stair-climbing fundraiser for the Respiratory Health Association of Metropolitan Chicago.  We took the stairs from the ground level to the observation deck on the 94th floor.  This popular event attracts about 4000 climbers each year along with a number of enthusiastic  supporters.

Last year, when I did the half-climb, I noticed how crowded the event was and realized that I should be practicing better infection control.  This year, I wore my mask.  (It’s taken me a long time to get more comfortable wearing masks in public spaces where people are crowded together.  Now, I treat it as a social experiment and watch how people react.  Perhaps a few grey hairs help give me that Continue reading Taking the Stairs

Transitioning from College to the Career World with CF

The Boomer Esiason Foundation has posted CF Wind Sprint 24: Transitioning from College to the Career World with CF on its website. http://esiason.org/thriving-with-cf/wind-sprint-24-transitioning-from-college-to-the-career-world-with-cf.php

This short video is the third in a three-part series examining the major transitioning stages for people with cystic fibrosis. Continue reading Transitioning from College to the Career World with CF

New Rimington Trophy Scholarship to Support Students with CF

The Boomer Esiason Foundation has established the Rimington Trophy Scholarship to recognize outstanding students who are living, breathing and succeeding with cystic fibrosis.

The new scholarship was established in association with the Rimington Trophy, the college football award named in honor of BEF President and former University of Nebraska center Dave Rimington. http://www.esiason.org/cf-news/rimington-trophy-scholarship-established-to-support-students-with-cf.php Continue reading New Rimington Trophy Scholarship to Support Students with CF

Appreciating My Pooch

Here is a guest post from one of our Directors, Colleen.

Today is my dog Penny’s birthday! She turned five years old today. Penny is a miniature schnauzer, and she brings me a lot of joy. She is always happy to see me when I get home, and she jumps like a rabbit when I’m getting her dinner for her, because she is just SO excited she can barely contain Continue reading Appreciating My Pooch

U.S.A.C.F.A. to Observe Rare Disease Day

(United States) U.S.A.C.F.A. will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29.  The purpose is to focus attention on the needs of patients and families affected by rare diseases.

“This is a global observance,” said Peter L. Saltonstall, president and CEO of NORD.  “Individuals and organizations around the world will all be sharing stories of how rare diseases affect their lives.” Continue reading U.S.A.C.F.A. to Observe Rare Disease Day

Losing a good friend to the good fight.

Usually, when a friend of mine dies from CF and its complications, I am sad but am not shocked. Nor does it take me long to accept this. Same goes for losing a friend to complications post-lung transplant. But there are exceptions. And they are never easy. Continue reading Losing a good friend to the good fight.

An Open Invitation For Submissions Of Original Written Works

A book of original poems, quotes, anecdotes and stories penned by those living with Cystic Fibrosis, those who have succumbed to the disease, and those who share and have shared their lives with those who have Cystic Fibrosis. We are accepting original written work to be included in this book. Continue reading An Open Invitation For Submissions Of Original Written Works

Using Reiki with CF and Lung Transplant

I have always complemented my doctors’ prescribed therapies with alternative or complementary care therapies like acupuncture, cranio-sacral therapy, and now reiki. I had received reiki from Michael, at my acupuncturist’s office. Continue reading Using Reiki with CF and Lung Transplant

Boomer Esiason Academic Scholarship

December 15 Deadline Approaching for BEF Academic Scholarship
The Boomer Esiason Foundation encourages college students with cystic fibrosis to get started on their application for the BEF General Academic Scholarship. The next application deadline for this program is December 15, 2011.

The Boomer Esiason Foundation’s General Academic Scholarships assist CF patients pursuing undergraduate and graduate degrees. Grants are awarded quarterly on the basis of demonstrated need and academic accomplishment. They are made directly to the academic institution to assist in covering the cost of tuition and fees. This scholarship is for one year only.
For more information and application materials, please visit the BEF General Academic Scholarship page on our website.

The Boomer Esiason Foundation awards more than $250,000 in scholarships each year to outstanding students with CF who strive both for therapy compliance and for academic success.
For more information about our scholarship program, including applications and 2012 deadlines, please visit the scholarships page on the BEF website. http://esiason.org

Cold season is here.

I have been home for 4 days with a nasty head cold. Aside from feeling sorry for myself, here is what I have been up to make sure I get over this quickly and without lung involvement—hopefully.

Rest: getting as much sleep at night as possible. Then a nap in the afternoon is helpful, for me. And trying not to get stressed out that I am sick and sitting home on my butt watching TV all day!

Fluids: constantly drinking trying to flush my system out and keeping my nasal passages moist, I think. I have been drinking tea, mostly non-caffeinated rooisbus tea, good for the stomach. Specifically it is called African Rooibus Red tea. Twinnings brand is my favorite with some sweetener. It is also sold loose and many companies sell it. I also brew a ginger tea that I find helpful when I get a cold. I find if taken just when I feel like I might be getting sick, it chases it out of me. Who knows if this is true, but I like the taste and I make it strong. The recipe is below, basically water and ginger root. I drink about 3-4 cups of this a day with honey or splenda and at times lemon. I also made home-made chicken soup but when too ill, canned or store made is just as good. I eat comfort foods but steer clear of dairy during a cold. I don’t want to added mucus it produces in me. When I am not drinking tea, I drink plenty of water. Juice is good by personally, it brings my glucose levels too high. So, I stick with H2O.

Steaming and nasal lavage: I steam for about 10-20 minutes 3-4 times a day with my personal Vicks steamer. This helps loosen mucus, reduce inflammation and helps clear the gunk when I do a nasal lavage. I rinse my nose with luke-warm saline after the steamings 3-4 times a day. When healthy, only twice a day for maintenance. The steamer can be bought at most pharmacies, made by the same company that makes Vicks Vapor Rub.

Ginger tea: You will need an 8-10 quart pot and about 1 lb or more of ginger root. Most supermarkets sell this. To start, fill pot w/cold water, put on medium-high heat. Wash ginger thoroughly. Start to cut it up by cutting big pieces in half and then in half again. The pieces do not need to be small, you just want to open up the root to expose the interior. Plop ginger in pot carefully. Boil this for about 1 1/2-2 hours (or more). I cook my tea until the color of the water is caramel-colored. I do like it to be spicy. You may cook it 2 hours and then have to water it down to your own taste. You can add honey, splenda, agave or no sweetener. Lemon is also nice at times. Important: drain mixture with a sieve. Sip and enjoy hot or warm.

What do you do for a cold? Care to share?