The “I Believe” video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with CF. Continue reading CF Podcast #122: I Believe… In Exercise
In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but Continue reading CF Podcast #121: Katie O’Grady – Playing High School Sports with CF
Everyone in the cystic fibrosis community knows that it takes power to fight CF. Twin sisters with CF Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Two.” Called “compelling” and “poetic” by Continue reading The Power Of Two” Is Coming To TV May 22!
A new drug “helps clear mucus in cystic fibrosis patients”, BBC News has reported. The website says that a study in children and young adults found that the drug, denufosol, helped keep airways moist and clear of mucus. Continue reading New cystic fibrosis drug tested
REGISTRATION IS NOW OPEN!
Join Team Boomer and the NYRR in the third annual Boomer’s CF Run to Breathe 10K in Central Park.
July 20, 2013
Run for Team Boomer
Register for the Race Continue reading Boomer’s Cystic Fibrosis Run to Breathe
Jerry Cahill has been awarded the prestigious Jacoby Angel Award from the United States Adult CF Association (USACFA) for being a person with CF who is making a difference in the lives of one or more people with or without CF. The award is named after Dr. Jack Jacoby who was a CF Continue reading The Winner of the Jacoby Angel Award is Jerry Cahill
Friday, May 10, 2013 (1:00 – 2:30 p.m. ET)
The Social Security Administration (SSA) will host a special teleconference for the cystic fibrosis community on Friday, May 10 about proposed changes to disability benefits. https://www.federalregister.gov/articles/2013/05/07/2013-10702/medical-criteria-for-evaluating-cystic-fibrosis Continue reading Social Security Administration (SSA) to Host Special Teleconference for Cystic Fibrosis Community about Proposed Changes to Disability Benefits
Dr. Jerry Nick has been awarded the prestigious USACFA Founder’s Award which recognizes a person who has made an outstanding contribution to the adult Cystic Fibrosis community. Dr. Nick is the CF Adult Care Center Director at National Jewish Health in Denver, Colorado. The award Continue reading USACFA Founder’s Award Winner is Dr. Jerry Nick
Everyone in the cystic fibrosis community knows that it takes power to fight CF. Twin sisters with CF (and frequent CF Roundtable contributors) Ana Stenzel and Isa Stenzel Byrnes, and other members of the CF community, show what power can do in the documentary film “The Power Of Continue reading The Power Of Two” Is Coming To TV May 22!
presented by Boomer Esiason Foundation Young Professionals
Join us on May 30, 2013
The BEF Young Professionals Committee is hosting the Refi Rock Spring Fling at the Central Park Continue reading Refi Rock Spring Fling Concrete Jungle