CF Roundtable Organ Transplantation Issue is Almost Here!

The special winter CF Roundtable® issue on Organ Transplantation in CF will be out soon.

Subscribe by January 26th to ensure that you receive it. It’s free! 

Please go to: www.cfroundtable.com or http://www.cfroundtable.com/newsletter-signup.html to sign up!

This issue is close to 60 pages (a record for us!) and it’s almost here! If you or anyone you know wants to receive their own issue in print or PDF, there’s still time!

If you subscribe before tomorrow, January 26, you will be added to the mailing list in time to receive it.

As always, you can subscribe at no cost. 

We Thank You!!

We sincerely thank each and every one of you who donated to CF Roundtable yesterday on Giving Tuesday.

Your contributions are immeasurable! Your support of our organization means the support of many many individuals with CF to help join us as a community and to help spread awareness and resources.

Thank you!

Happy Holidays!

Giving Tuesday is tomorrow!

Dear CF Roundtable Subscriber,

Please consider donating to CF Roundtable tomorrow on Giving Tuesday, November 27th, a national day of giving.

For double the impact, The McComb Foundation will match your donation!!

Your generous past contributions have been essential in helping those with cystic fibrosis find support, medical information and resources through CF Roundtable.

As one reader shared, “I believe my mental and physical health is in a better place than it would be without CF Roundtable. From the importance of exercise, to tips on traveling, to summaries of medical journal articles (some of which not even my doctor was aware of!) – all have had a positive influence on my life. But perhaps the most impactful aspect has been lessening feelings of isolation of living with such a cruel, isolating disease. Thank you!”

Because of you:

  • All of our readers receive the CF Roundtable newsletter at no cost.
  • Our publication & website have the latest research, legal and critical knowledge that has helped to maximize medical care.
  • CF Roundtable gives scholarships to students with CF who are striving for higher education.
  • Our Speakers Bureau presenters (who are all adults with CF) speak at your CF events and spread education and support about CF.
  • We can continue all of this and more!

CF Roundtable is run by a board of adults with CF from our editors to our directors. Our time is 100% voluntary. Together, we create the CF Roundtable publication, website, and numerous programs. We do this for you and our vital CF community.

We hope to count on your support this year. Ultimately, your gift would keep CF Roundtable and the miracles coming! Please go to our website at www.cfroundtable.com or click here and donate!

Happy Thanksgiving!

Dear CF Roundtable Readers,

We wish you all a wonderful Thanksgiving holiday!

At CF Roundtable, we are thankful for our readers and subscribers. Thank you for making Cf Roundtable a part of your life and may you have a holiday filled with happiness and the joys of life!

Tis the season of giving and with the holidays upon us, please consider donating to CF Roundtable on Giving Tuesday, November 27th, a national day of giving.

Your generous past contributions have been essential in helping those with cystic fibrosis find support, medical information, and resources through CF Roundtable.

Ultimately, your gift would keep CF Roundtable and the miracles coming! Please go to our website at www.cfroundtable.com and donate!

Third Annual CF Roundtable Gratitude Dinner

On October 17th, during the NACFC conference in Denver, CO, CF Roundtable (USACFA) hosted a dinner event honoring 68 social workers and other CF Care team members.

It was hosted by our very own Beth Sufian, JD and an informative presentation was given by Isabel Stenzel Byrnes.

The evening ended with a Gratitude Ceremony recognizing the importance of the CF team members to the health and well being of people with CF. Many attendees said the evening was the highlight of their attendance at NACFC.

Halloween themed goodie bags were handed out to each attendee, which contained a tote bag, with a lung design created by our talented director, Ella Balasa.

A big thanks to everyone who attended!

We have a limited number of totes remaining. This #givingtuesday be one of our first donors and you can recieve one of our very limited edition totes when you donate $100 or more to CF Roundtable! First come, first served basis!

 

Please support us through AmazonSmile

This is the season of giving! The holidays are approaching and we know our supporters are busy shopping for gifts, decorations, and more for family and friends.

Did you know that your purchases can make a difference?

When you purchase on Amazon Smile, specifically smile.amazon.com/ch/93-1036770, they donate to United States Adult Cystic Fibrosis Association (CF Roundtable) when you do your holiday shopping!

AmazonSmile is a website operated by Amazon that lets you enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when you shop on AmazonSmile (smile.amazon.com), the AmazonSmile Foundation will donate 0.5% of the purchase price to the eligible charitable organization of your choice.

Please support us through this simple and automatic way every time you shop, at no cost to you. United States Adult Cystic Fibrosis Association (CF Roundtable) sincerely thanks you!

Happy Holidays!

USACFA NAMED “2018 TOP-RATED NONPROFIT” by GreatNonprofits

The 2018 GreatNonprofits Top-Rated Award Winners list is published!

Award based on Outstanding Online Reviews

USACFA, publishers of CF Roundtable, has been named a “2018 Top-Rated Nonprofit” by GreatNonprofits, the leading provider of user reviews of charities and nonprofits.

The Top-Rated Nonprofit Award is based on the rating and number of reviews that USACFA received from volunteers, donors and aid recipients.

Making the GreatNonprofits Top-Rated List helps USACFA get visibility, trust, and recognition. It is promoted to donors on the GreatNonprofits website.

As donors look for nonprofits to give to in this season of giving, you can also share the good news about USACFA, publishers of CF Roundtable being a 2018 Top-Rated Nonprofit!

To see USACFA, publishers of CF Roundtable’s new Top-Rated Nonprofit badge Click here.

We thank you all!

Giving Tuesday 2018

Hello CF Roundtable Subscriber,

With the holidays upon us, please consider donating to CF Roundtable on Giving Tuesday, November 27th, a national day of giving.

Your generous past contributions have been essential in helping those with cystic fibrosis find support, medical information, and resources through CF Roundtable.

Because of you:

  • All of our readers receive CF Roundtable free and have access to the latest research, legal and critical knowledge that has maximized their medical care.
  • CF Roundtable can support scholarships for students with CF striving for higher education.
  • Our Speakers Bureau presenters (who are all adults with CF) can speak at your next CF event and spread education and support about CF to other adults with CF, health care personnel, family and/or friends.
  • We can continue all of this and more!

CF Roundtable is run by an amazing board of directors who are all adults with CF. Our time is 100% voluntary. Together, we create the CF Roundtable publication, website and numerous programs for you and our vital CF community.

We hope to count on your support this year. Ultimately, your gift would keep CF Roundtable and the miracles coming! Please go to our website at www.cfroundtable.com and donate!

Contact us at cfroundtable@usacfa.org anytime.

Thank you for being a subscriber and Happy Holidays!

Hooray! I Celebrated My Fifth Anniversary – Guest Blog by Kathy Russell

October 3rd, 2018, I celebrated five years since having bilateral mastectomies because of cancer. I have had no recurrence of those cancers and no chemo or radiation therapy. Since I am 74 years old and have CF, I feel very fortunate.

My surgeon would have done just a lumpectomy on the left side, where the initial tumor was found, but I opted for removal of both breasts. I didn’t want to have any more surgeries. If I could have had reconstruction surgery at the time of my mastectomy, I might have opted for that. However, since my surgeon and the plastic surgeon both said that was not an option, I chose to get rid of the whole possibility of future trouble by removing both breasts. Continue reading Hooray! I Celebrated My Fifth Anniversary – Guest Blog by Kathy Russell

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