Another virtual event for our adult CF community!
About CF MiniCon: Transplant
This virtual event will explore all stages of the transplant process and allow those who are considering a transplant, preparing for transplant, or post-transplant to connect with others, learn more about the process, and share their experiences.
The CF MiniCon will feature a keynote presentation followed by storytelling panel discussions and small group video breakouts.
This event is open to adults with CF, their family members, and caregivers age 18 or older.
WEDNESDAY, AUGUST 15
6:30 – 10 p.m. ET | 5:30 – 9 p.m. CT | 4:30 – 8 p.m. MT | 3:30 – 7 p.m. PT
- Create a strict exercise program with the hospital rehab center and integrate it into the patient’s schedule.
- Meet with a nutritionist in order to maintain proper weight.
- Educate! Meet with the care team in order to understand the entire process – both pre and post transplant.
Jerry Unplugged: A blog by Jerry Cahill
Six years ago, on April 18, 2012 I received the ultimate gift – a healthy set of lungs.
This is my transplant story and finally, an open letter to my donor Chris who gave me a second chance at life.
On April 17th I was called to Columbia University Medical Center (CUMC) in New York City. They had a perfect set of lungs on paper for me and simultaneously while I was on my way in, a team went to harvest and evaluate these lungs, which were located out of state. It’s a bit of coordination for the doctors to determine the health of the lungs. Were they damaged? Were there contusions or other imperfections? Were these lungs meant for me? The team at CUMC would make the final decision on whether they were a match or not. It was the sixth time that I’d been called in for the transplant, so I wasn’t getting too excited, but I also didn’t let myself get too down. This time the news was good – the transplant was a go! Before I could blink, my team began to prep me. My worn out, diseased lungs were about to be replaced with clear, healthy lungs. My life was about to be forever changed.
Before I went into surgery, my lung function was at a dismal 19% and I spent eighteen hours a day pumping myself with medications and intravenous antibiotics to stay alive. This wasn’t me. I was a coach, an athlete and an advocate for living a healthy life with cystic fibrosis. This wasn’t healthy! My quality of life was non-existent, and quite frankly, I was embarrassed each time I struggled to walk up a flight of stairs.
As I was wheeled into the operating room, I remember saying to my family, “Go into the waiting room and wait. I’ll see you later.” What was I thinking?
When I woke up I truly was a changed man. It was a foreign feeling for me to have clear lungs and when I took my first breaths I told my surgeon, “these lungs are too big – I think you stuffed them in.” This wasn’t a joke, I was being serious. I was grateful and knew this wouldn’t just be a second chance at life for me, but for my donor Chris. We were in this together now.
The last six years have been quite a journey – and that’s very much how I view life – as a journey. I’ve written letters to my donor’s family each year, but they haven’t responded yet. I wholeheartedly respect their decision, but I felt strongly compelled to write an open letter to this amazing man Chris, who saved my life.
To read Jerry’s letter to Chris, please click here.