CF Roundtable Article submissions are due December 15th.
The Focus Topic for the Winter 2018 issue is “Becoming A Parent With CF”. If you – our adult readers with CF – have thought about becoming a parent, what decisions and considerations did you make? Are you a parent or do you help raise a nephew, niece or another child relative? Whether you already have children or want to start a family, tell us about your journey to parenthood.
Continue reading We want to hear from you! CF Roundtable article submission deadline soon
In March I spent a whole day in the hospital. I dealt with long wait times, many nurses and doctors, crappy hospital food and uncomfortable chairs. Seems about right you may be saying.
The difference was I was not the patient.
Continue reading The Non-patient Perspective
Elizabeth Scarboro’s memoir, My Foreign Cities, about her marriage to her first husband who had CF, has just been released in paperback.
Ana Stenzel reviewed the book for CF Roundtable last Spring. She wrote:
“My Foreign Cities is a much-needed book for the CF community. Sharing her Continue reading Now out in paperback, My Foreign Cities
Please check out the link to The Huffington Post to read published writer Elizabeth Scarboro’s experience with a a great CF Doctor. Some of us might take it for granted that this is everyone’s experience with doctors but it is just not so.
I met Dr. Stulbarg when I was 22, and had just moved to San Francisco to be with my boyfriend Stephen. Stephen had cystic fibrosis, but he’d been unusually healthy as long as I’d known him. Then, three weeks after my arrival, on a Saturday night, his lung Continue reading Anatomy of an Excellent Doctor, By Elizabeth Scarboro
I couldn’t do it. I kept feeling that I needed to physically be at the hospital to meet with the social services, rehab specialists (PT/OT) and doctor for my mother who has advanced dementia that declined after an arthritic knee caused her to fall and to lose the Continue reading Helping Sick Parents – Part II: Guest Blog by Jeanie Hanley