CFRI
21st Annual Educational Conference
Living a Medical Miracle: CF Today and Tomorrow
Successful Strategies for Living Well with CF

In collaboration with USACFA
United States Adult Cystic Fibrosis Association

August 1-3, 2008
Sofitel San Francisco Bay
A Four Star Hotel
Redwood City, California

Call CFRI for our unbelievable room rates
Cystic Fibrosis Research, Inc.
650-404-9975 • cfri@cfri.orgwww.cfri.org

 


Among the Guest Speakers:
Richard H. Simon, MD, University of Michigan, Ann Arbor, MI “Improving Lung Function By Controlling Infection”
Dana S. Hardin, MD, Nationwide Children’s Hospital, Columbus, OH “Cystic Fibrosis Related Diabetes”
Mark R. Elkins, PhD, Royal Prince Alfred Hospital, Sydney, Australia “Strategies to Reduce Time For Airway Clearance”
John D. Mark, MD, Lucile Packard Children’s Hospital, Stanford, CA “Complementary and Alternative Medicine”
Marybeth Howard, PhD, University of California San Francisco, CA “Cystic Fibrosis Research”
Jonathan Widdicombe, PhD, University of California Davis, CA “CFRI Research Dollars At Work”
Anna O. Tsang, RN, NP, MSN, St. Michael’s Hospital, Toronto, Canada “Sexuality and Reproduction in Cystic Fibrosis”
Joseph Solowiejczyk, RN, MSW, CDE, Animas Corporation, Los Altos, CA “Compliance”
Tiffany Christensen, Author and Patient Advocate with CF, North Carolina “SickGirl Speaks!”

Early Registration fee before July 1, 2008—$150 (includes meals)
Registration fee July 1 to August 9, 2007—$175 (includes meals)
Scholarships are available but limited for eligible applicants.

 

CFRI TEEN & ADULT DAY RETREAT
August 3 – August 8, 2008
Located at Vallombrosa Center in Menlo Park, California

CF Club Med: Retreat of a Lifetime
Meet Some Great Friends!
Feel Like You’re Not Alone!
Learn more about taking care of your CF! 
This is a place for hope and healing!

Who Can Come: Teens and adults 15 years and older with cystic fibrosis, their family members, friends and health care providers

Purpose of the Day Retreat: The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.

What We Do: Activities that promote health include daily exercise, arts and crafts, rap sessions, and educational workshops with guest speakers.  Fun group-bonding activities include a talent show, games, and just hanging out getting to know others.

Cost: $65 per person for the entire week.  Daily fees are $15 per day for visitors or $10 per meal for those who drop in for a meal only.  Overnight accommodations and transportation are the responsibility of participants. Scholarships are available for those unable to pay fees.

Safety:  All people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments.  Participants with CF must obtain a sputum culture before the start of the retreat.

People who have ever cultured Burkholderia cepacia, cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past 2 years, or are currently resistant to all antibiotics will not be allowed to attend the retreat.

We’d Love To See You There!
For An Application, Please Contact: 
Cystic Fibrosis Research, Inc.
2672 Bayshore Parkway, Suite 520, Mountain View, CA 94043
Phone: (650) 404-9975/ Fax: (650) 404-9981

cfri@cfri.org              www.cfri.org