Announcing BreatheCon, a space by and for CF adults

For the first time, over 50 percent of those of us living with CF are over the age of 18. Our community has a wealth of knowledge and a great desire to connect, but little ability to interact face-to-face.
Continue reading Announcing BreatheCon, a space by and for CF adults

The Path Forward in 2016—Guest Blog by Beth Sufian

At the beginning of a new year it is customary for people to make New Year’s resolutions.  There are many commercials for weight loss programs for those who have resolved to lose weight.  Most people with CF need to gain or maintain weight so Continue reading The Path Forward in 2016—Guest Blog by Beth Sufian

Engagement, Moving, Survival

My daughter just became engaged and I couldn’t be happier. She’s a bit young by most standards nowadays, but she’ll really only be one year younger than when I married at 24 years. She and her fiancé live in Louisiana. I live in San Francisco and am moving across country with my husband in Continue reading Engagement, Moving, Survival

Mindfulness Based Stress Reduction Class for the CF Community

CFRI’s Partners in Living Initiative – A Holistic Approach to Life with Cystic Fibrosis

A 9-week online class led by Dr. Julie Desch, which combines body awareness, mindfulness meditation and hatha yoga to help those touched by cystic fibrosis to address anxiety, depression, Continue reading Mindfulness Based Stress Reduction Class for the CF Community