A Newsletter for Adults with Cystic Fibrosis
The Hospital Comfort Kit Is Now Available!
When Rebecca Poole was admitted to the hospital in December 2014, she had no idea that she would not be discharged for 219 days. Her husband Ray focused daily on what he could do to make her more comfortable. Friends and family would ask what they could do to help and at the time he didn’t have an Continue reading The Hospital Comfort Kit Is Now Available!
A study published in the Annals of Internal Medicine concluded that “the median age of survival [is] 10 years higher [for CF patients] in Canada than the United States.”
If you’re wrapped up in the world of cystic fibrosis news like I am then you’ve probably seen this study floating around the Internet for the Continue reading OWN IT: Cystic Fibrosis Survival Rates in the United States vs. Canada
In this blog we provide information related to medical records and their importance to a person with CF.
Nothing in this blog post is meant to be legal advice about your specific situation and is only meant as information.
Medical Records Are Crucial
Detailed and accurate medical records can help with a variety of issues. Medical records are important for those applying for Social Security benefits or undergoing an SSA Continuing Disability Review. Continue reading Medical Records Are Crucial — By Beth Sufian, JD
Lea Faraone, from the Salty Cysters, joins the podcast today to talk about her life with cystic fibrosis. At 26, she works as an oncology nurse, and is an advocate for people with cystic fibrosis. She uses the @SaltyCysters social media platform to spread educational awareness Continue reading Making it Matter Ep. 25 – Salty Cysters
In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Continue reading CF Podcast 159: Cystic Fibrosis Medical Support Team
CareForCF.com is a FREE limited-time support tool that can help patients navigate common CF challenges. This text-message program is designed for “on-the-go” individuals and is personalized to fit their needs. The tool delivers quick, helpful tips on improving communication with CF care teams, following Continue reading FREE, Limited-Time Support Tool for People With CF
