In this Cystic Fibrosis Wind Sprint, Jerry Cahill talks about the importance of never missing your medication, especially post-transplant. To help him keep track of his meds, Jerry keeps color coordinated pill cases in his car with extra doses of medications in case he ever forgets to take them. He also keeps extra dosages in his backpack, which he carries with him everywhere, for the same reason.
The video wind sprint was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.
In the last weeks of 2016 and the first week of 2017 we were having issues with our server. A lot of subscribers did not receive their blog emails because they were going to spam. We decided to list the blogs that were posted those weeks here for you to peruse and see if there is any you want to read. The issue has Continue reading Blog Posts
Ah here it is only a day away from 2017. Like most people I am ready for the year to be over. There has been a lot of death this year. Both close knit and celebrity. Many people lost family members or friends or both. The celebrity deaths have sparked many memes and hashtags on both facebook and twitter. Continue reading Happy New Year
Several years ago, in 2009, I was lucky enough to meet and connect with another woman near to my age in New York who was also going through the transplant evaluation process. She Continue reading To My CF Friends:
After a seemingly endless winter here in New York, a few of my friends and I decided it was time to get away. Check out my buddy Dave in the picture above! We buried him (when I say we, I mean my other friend Joe did while I sat there reading a killer book because I have more
Cayston (aztreonam for inhalation solution) Availability 2015
On December 22nd, Gilead sent out a “Dear Healthcare Provider” announcement that they and Cystic Fibrosis Services, Inc. (CFS) Walgreens have mutually agreed that CFS will transition out of the network of pharmacies providing Cayston.
Foundation Care Pharmacy is currently a provider of Cayston (aztreonam for inhalation solution) /Altera nebulizer to CF patients nationwide. They would like the opportunity to assist you in using Cayston.
Foundation Care provides pharmacy services to over 6,000 cystic fibrosis patients nationwide. They have been providing Cayston and support for the Altera device since the product was launched in 2010. They offer full retail pharmacy services and will meet all of your pharmacy needs. Foundation Care will:
Contact CF patients pharmacy, transfer their Cayston prescriptions, perform reimbursement, prior authorization, fulfillment and dispensing services, offer free home delivery of Cayston via Fed Ex next day service, and provide compliance and adherence services to patients, including refill reminders.
In addition, patients receiving Cayston from Foundation Care will also receive at no cost:
• A Nebulizer Cleaning Kit
• Their choice of either: Vitamin D3 (Replesta), Hypertonic Saline or ChoiceFul Vitamins
Just a little over a year ago I returned home from a seven month stay in Pittsburgh. We were there for a double lung transplant at UPMC Presbyterian Hospital. At the time my mind was so focused on recovery I had little else to think about. Each day I learned new things about life post transplant like what I could eat and couldn’t due to medication interactions, when to take my meds, how to interpret my lab work, etc. Everything was fresh and new and exciting. Continue reading Feeling Disconnected