Special Webinar on CF Care

Date: Wednesday, December 12th
Time: 2:00 pm – 3:00pm Eastern time
Title: Providing Best Care for Individuals with Cystic Fibrosis: A Partnership with Patients and Families
Speaker: Dr. Michael Boyle, Director of the Adult CF Center at Johns Hopkins Medicine.

Don’t miss this chance to learn about ways to obtain the best care from your healthcare team.  Dr. Boyle is one of the leading CF adult physicians in the United States and is sure to share some helpful information. Continue reading Special Webinar on CF Care

Compliance–Guest Blog By Mark Levine

My wife is a mental health therapist. She talks to people all day long about their problems. She has countless hours of experience dealing with people and their behaviors. One day, after apparently meeting with a client who was having trouble because they were not taking their prescribed Continue reading Compliance–Guest Blog By Mark Levine

Feeling Good!–Guest Blog by Kathy Russell

I feel good. That may not seem like such a big deal to most people, but it is to me. For the past two-and-a-half years I have not been feeling very well. First I had pneumonia in both lungs. Then I had a twist in my small intestines. The pneumonia never quite went away and my Continue reading Feeling Good!–Guest Blog by Kathy Russell

OrPro Therapeutics Receives NIH Grant Award to Advance Development of Recombinant Thioredoxin for Treatment of Cystic Fibrosis

OrPro Therapeutics, Inc. today announced that the company has been awarded a National Heart, Lung and Blood Institute Small Business Innovation Research (SBIR) grant from the National Institutes of Health (NIH). The grant enables OrPro to advance development of its lead product, Continue reading OrPro Therapeutics Receives NIH Grant Award to Advance Development of Recombinant Thioredoxin for Treatment of Cystic Fibrosis

Saving Money with Patient Assistance Programs

Many manufacturers of medications used by CF patients offer patient assistance programs to assist individuals with insufficient or no insurance coverage to obtain medications. Programs vary in their offerings from sampling products, providing nutritional supplements, and co-pay assistance. Continue reading Saving Money with Patient Assistance Programs

FDA Safety and Innovation Act Signed: A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases

Approval Culminates Years of Advocacy, Education and Relationship-Building Led by NORD

July 9, 2012, Washington DC—-The FDA Safety and Innovation Act, signed by President Obama today, contains the most groundbreaking measures for rare disease patients and their families since the Orphan Drug Act of 1983, the National Organization for Rare Disorders (NORD) said. Continue reading FDA Safety and Innovation Act Signed: A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases

Savara Pharmaceuticals raises $8.6 million for new CF clinical trial

Savara Pharmaceuticals raises $8.6 million for new CF clinical trial of AeroVanc, the first inhaled antibiotic (vancomycin) for the treatment of staph infections in CF. AeroVanc is a dry powder and has the potential to be more effective than intravenous with less side effects. Read the link for more information…

http://www.statesman.com/blogs/content/shared-gen/blogs/austin/startups/entries/2012/06/13/austinbased_savara_pharmaceuti.html

PMD Healthcare will give away 5 Spiro PD’s

World Asthma Day 2012 is on May 1st.  World Asthma Day is an annual event organized by the Global Initiative for Asthma (GINA) in collaboration with health care groups and asthma educators to raise awareness about asthma and improve respiratory care throughout the world.

In recognition of World Asthma Day, PMD Healthcare will give away 5 Spiro PD’s (a $219 value each)   http://www.facebook.com/spiropd?v=app_28134323652Continue reading PMD Healthcare will give away 5 Spiro PD’s