Tips For Never Missing Your Meds

In this Cystic Fibrosis Wind Sprint, Jerry Cahill talks about the importance of never missing your medication, especially post-transplant. To help him keep track of his meds, Jerry keeps color coordinated pill cases in his car with extra doses of medications in case he ever forgets to take them. He also keeps extra dosages in his backpack, which he carries with him everywhere, for the same reason.

The video wind sprint was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.

Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding

“We’ve kind of realized that if we wait it might not happen,” she said.

Caleigh Haber has been dreaming of her wedding day for as long as she can remember, but she never realized it would come like this.

The 27-year-old, who has cystic fibrosis and is currently in need of her second double lung transplant, is about to marry the love of her life, Bryan Takayama. It’s an exciting celebration with a somber undertone.

Continue reading Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding

Podcast 172: Exercising While in the Hospital

In this podcast, Jerry Cahill reviews several ways that he stays active in the hospital in order to keep his lungs clear and discusses the importance of holding on to your routine.
https://www.youtube.com/watch?v=QEY7y3-rF40&feature=youtu.be

This video podcast was made possible through an unrestricted education grant from Gilead to the Boomer Esiason Foundation.

Please Join Us for a Free Private Screening of Up for Air at CUMC

Please join us for a FREE private film screening of
UP FOR AIR

Tuesday, May 9, 2017
6:00 – 8:00 PM

Reception followed by screening and Q & A with Jerry Cahill and the film’s Continue reading Please Join Us for a Free Private Screening of Up for Air at CUMC

Stream My Documentary, Up For Air, FREE this week!

We’re still celebrating Jerry Cahill’s 5 year post transplant anniversary by giving away his documentary, Up For Air, for FREE through April 30th!

Use discount code “BigAir” to stream!

CF Podcast 170: Jerry’s Five Year Transplant Anniversary

Jerry Cahill, 5 years post transplant, shares the ups and downs of his journey as an organ donor recipient.
https://www.youtube.com/watch?v=AcanwNW5A4k&t=8s

This podcast was made possible through an unrestricted educational grant from GENENTECH to the Boomer Esiason Foundation.

From Sustaining and Surviving – to Living!

By Andrea Eisenman

Seventeen years ago I was just going through the motions of trying to keep pushing towards each day with a schedule of treatments, eating, napping, lung bleeds and more treatments. Then starting all over again the following day with Continue reading From Sustaining and Surviving – to Living!

What it Means to Donate Life

By Jen Weber

Almost seven years ago I took the bold step to a new life and underwent my first lung transplant. My first transplant and freedom to breathe easier offered opportunities for me to run Continue reading What it Means to Donate Life

New Techniques Drastically Prolongs Life of Donor Lungs

New Cross-Circulation Technique Drastically Prolongs Life of Donor Lungs

By Mohammad Saleh
Originally published in medGadget 3/10/17

Lung transplants remain the only hope for patients suffering from end-stage lung disease. Transplants are often preceded by an extensive period on a waiting list because of a donor shortage, a reality Continue reading New Techniques Drastically Prolongs Life of Donor Lungs

OWN IT: Cystic Fibrosis Survival Rates in the United States vs. Canada

A study published in the Annals of Internal Medicine concluded that “the median age of survival [is] 10 years higher [for CF patients] in Canada than the United States.”

If you’re wrapped up in the world of cystic fibrosis news like I am then you’ve probably seen this study floating around the Internet for the Continue reading OWN IT: Cystic Fibrosis Survival Rates in the United States vs. Canada