Introducing Jerry Unplugged!

We are thrilled to announce that Jerry Cahill has launched, Jerry Unplugged, a new blog segment on his site.  Jerry is a Delta F508 and R117H #CF patient who is post double-lung transplant by 6 years this April! Not only is Jerry an advocate for #CFAwareness, but he is a coach, athlete, and friend! Join him on his journey as he shares his insights, experiences, and explains why he cannot fail❗
Stay tuned for much more of #JerryUnplugged!

Read the first blog here: http://www.jerrycahill.com/who-am-i/

Continue reading Introducing Jerry Unplugged!

Only I Can Look Into My Mirror

Guest Blog By: Brennen Reeves

If I were to count all of the scars on my body, the ones visible to a bystander at the beach, I’d need your fingers and toes, plus mine. And someone to mark the tallies. Thirty-eight. I’ve counted. From my chest, to my stomach, up to my neck, and down to my ankles the grooves are endless it seems. I don’t think I have any on my back but then again I cannot see my back and I still have trouble with sensation from the bilateral lung transplant I received in 2011, so I wouldn’t be able to feel them either. Continue reading Only I Can Look Into My Mirror

Cystic Fibrosis Wind Sprint 65: Exercising Outdoors Post-Transplant

As all post-transplant patients know, exercising outdoors can be a daunting task because of the danger of too much sun exposure. To solve this issue, Jerry wears lots of sunscreen, a sun-blocking hat, and often works out using a medicine ball somewhere in the shade. Working with a weighted medicine ball gives him the flexibility (literally!) to move his workouts out of direct sunlight and into the shade when necessary, allowing him to enjoy a beautiful day outside while protecting his skin from any harm. As Jerry likes to say… no excuses! Get outside and exercise to live, breathe, and succeed with cystic fibrosis!

Continue reading Cystic Fibrosis Wind Sprint 65: Exercising Outdoors Post-Transplant

Tips For Never Missing Your Meds

In this Cystic Fibrosis Wind Sprint, Jerry Cahill talks about the importance of never missing your medication, especially post-transplant. To help him keep track of his meds, Jerry keeps color coordinated pill cases in his car with extra doses of medications in case he ever forgets to take them. He also keeps extra dosages in his backpack, which he carries with him everywhere, for the same reason.

The video wind sprint was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.

Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding

“We’ve kind of realized that if we wait it might not happen,” she said.

Caleigh Haber has been dreaming of her wedding day for as long as she can remember, but she never realized it would come like this.

The 27-year-old, who has cystic fibrosis and is currently in need of her second double lung transplant, is about to marry the love of her life, Bryan Takayama. It’s an exciting celebration with a somber undertone.

Continue reading Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding

Podcast 172: Exercising While in the Hospital

In this podcast, Jerry Cahill reviews several ways that he stays active in the hospital in order to keep his lungs clear and discusses the importance of holding on to your routine.
https://www.youtube.com/watch?v=QEY7y3-rF40&feature=youtu.be

This video podcast was made possible through an unrestricted education grant from Gilead to the Boomer Esiason Foundation.

Please Join Us for a Free Private Screening of Up for Air at CUMC

Please join us for a FREE private film screening of
UP FOR AIR

Tuesday, May 9, 2017
6:00 – 8:00 PM

Reception followed by screening and Q & A with Jerry Cahill and the film’s Continue reading Please Join Us for a Free Private Screening of Up for Air at CUMC

Stream My Documentary, Up For Air, FREE this week!

We’re still celebrating Jerry Cahill’s 5 year post transplant anniversary by giving away his documentary, Up For Air, for FREE through April 30th!

Use discount code “BigAir” to stream!

CF Podcast 170: Jerry’s Five Year Transplant Anniversary

Jerry Cahill, 5 years post transplant, shares the ups and downs of his journey as an organ donor recipient.
https://www.youtube.com/watch?v=AcanwNW5A4k&t=8s

This podcast was made possible through an unrestricted educational grant from GENENTECH to the Boomer Esiason Foundation.

From Sustaining and Surviving – to Living!

By Andrea Eisenman

Seventeen years ago I was just going through the motions of trying to keep pushing towards each day with a schedule of treatments, eating, napping, lung bleeds and more treatments. Then starting all over again the following day with Continue reading From Sustaining and Surviving – to Living!