Looking for practical, up to date information about sexual and reproductive health for women and girls with CF?
Guides from puberty to incontinence to urinary tract infections to contraception and pregnancy address in detail many areas of sexual health and CF. To help you start the conversation, share them with your CF team, pediatrician or gynecologist. Continue reading Sexual and Reproductive Health Resources
By Georgia Brown
As a woman with Cystic Fibrosis, at 47, I am considered old—but it is a title I relish. It means I have weathered the CF storm and I look at each birthday as an accomplishment. But as I enter the next phase of my life, I find I have more questions than answers.
While I don’t fear menopause necessarily, I do fear embarking on this life changing phase without understanding how CF puts its unique twist on it. And that is why I am glad that I have found the Cystic Fibrosis Reproductive and Sexual Health Collaborative (CFReSHC). Each month the group meets to discuss issues specific to women with CF. Then CFReSHC uses the feedback from meeting participants to help shape future CF research. This is one way, we, as patients, pave the way for improved sexual and reproductive healthcare.
The next virtual meeting “Hormones Across the Lifespan” will be Thursday, February 22, 2018 from 11 am to 1:00 pm EST. Dr. Raksha Jain of the University of Texas Southwestern will discuss how hormones affect women with CF from puberty to menopause. Then, the CF women in attendance, will break into smaller groups to discuss personal stories and identify the top three hormone-related topics that need further research. The meeting is open to all women with CF in the United States. For more information on CFReSHC and for login information from your laptop, or mobile device, email CFReSHC at firstname.lastname@example.org. Women who attend receive a $25 gift card from Amazon.
The overall rate at which women with cystic fibrosis are becoming pregnant dropped slightly in recent years — coinciding with the introduction of CFTR modulators and the clinical trials that led to their approval as CF therapies — but appears to be rising again to pre-trial levels, a study reports. Continue reading Introduction of New Therapies Affects Pregnancy Rates in Women With CF
Women with CF, we need your expertise and opinions!
Become a member of the CF-Patient Task Force to discuss sexual and reproductive health issues that affect women with CF. As patients with CF live longer, CFReSHC is committed to patient-engaged research through partnerships with people with CF, researchers, and advocates. Continue reading The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC)
For female cystic fibrosis (CF) patients and providers, individual CF health care specialists have a significant role in helping patients gain access to educational resources that can help them improve sexual and reproductive Continue reading Women with cystic fibrosis may benefit from specialized sexual and reproductive health care and education, UPMC study shows