Former Miss Philadelphia winner Julia Rae and I decided to join forces and start the Making It Matter Podcast and discuss all things cystic fibrosis (and I guess a few other things too). Want to talk about our experiences in dealing with the Continue reading Making it Matter Episode 1: Graduating College
Originally posted on the CFLF Blog on 6/6/16 – http://www.cflf.org/blog
By Matt Barrett
Ever since I was little, I’ve been competitive and driven in whatever I’ve done. It’s in my DNA. I don’t even like to lose when playing cards or board games. Growing up with CF, all I ever heard was the limitations that CF had on me, and what I could or could not do. As I’m now about to turn 30 later this year, I’m refusing to let those limitations stop me – now more than ever.
Growing up, I knew what CF was and how it was Continue reading Running Towards a Dream—Guest Blog By Matt Barrett
In 2011 I was referred to the transplant team at my hospital to be evaluated for a bilateral lung transplant. I was told I was too healthy (yay) after a year of tests and to come back every six months until my status changed. Since I was not an urgent case, I took my time getting the testing done. I was able to relax and get Continue reading Deciding if Transplant is Right for Me
Exercise for Life Scholarship
Application Deadline: June 10, 2016
You must start logging your exercise routine on March 13th to be eligible.
Download the log here.
Doctors and CF centers have made it clear: when it comes to CF, exercise Continue reading Apply for the Exercise for Life Scholarship Today!
Sheila reached out to Jerry asking what type of mask he wears while traveling or visiting the doctor.
He uses the 3M Particulate Respirator N95 Mask – style number 9210/37021 for protection from germs. These masks can be purchased online and come Continue reading CF Wind Sprint 55: Using a Medical Mask
For the first 29 years of my life (or rather the first 23 years of my known-CF life) I saw the same CF doctor. And I loved him. Loved is probably an understatement. I wanted to keep him as my doctor when I moved away from Philadelphia. He kindly told me no, that I needed to be realistic about my care and how Continue reading Switching CF Care Centers
I typically don’t post twice in the same week, but I felt a burning desire to say something about this.
This story comes from the blog “IFL Science” or Continue reading Gunnar Esiason: Genetic Discrimination
I don’t care who you are or where you are in your life, but at some point, I know you have come across failure. There is no way around it, and there is certainly no way to avoid it forever. Continue reading Gunnar Esiason: How Failure Can Show Us How to be Successful
At the beginning of a new year it is customary for people to make New Year’s resolutions. There are many commercials for weight loss programs for those who have resolved to lose weight. Most people with CF need to gain or maintain weight so Continue reading The Path Forward in 2016—Guest Blog by Beth Sufian