When is it time to say HELP?

By Amy Braid

About two months ago I experienced what I thought were just allergies bothering me.  I was stuffy, coughing more, itchy nose, sneezing etc.  Then my sugars went wonky on me.  In the span of an hour I hit 44, had some sugar to get me up and Continue reading When is it time to say HELP?

OWN IT: Bulking Up – A Few Recipes That I Use

I received a bunch of awesome responses to my Vitamix blog, with most asking about what I actually put into the Vitamix.

So, I’d like to share a few recipes with everyone.

Now remember, I am a cystic fibrosis patient with a feeding tube, so here are Continue reading OWN IT: Bulking Up – A Few Recipes That I Use

Making it Matter Episode 1: Graduating College

Former Miss Philadelphia winner Julia Rae and I decided to join forces and start the Making It Matter Podcast and discuss all things cystic fibrosis (and I guess a few other things too). Want to talk about our experiences in dealing with the Continue reading Making it Matter Episode 1: Graduating College

Running Towards a Dream—Guest Blog By Matt Barrett

Originally posted on the CFLF Blog on 6/6/16 – http://www.cflf.org/blog

By Matt Barrett

Chicago Marathon 2015Ever since I was little, I’ve been competitive and driven in whatever I’ve done. It’s in my DNA. I don’t even like to lose when playing cards or board games. Growing up with CF, all I ever heard was the limitations that CF had on me, and what I could or could not do. As I’m now about to turn 30 later this year, I’m refusing to let those limitations stop me – now more than ever.

Growing up, I knew what CF was and how it was Continue reading Running Towards a Dream—Guest Blog By Matt Barrett

Deciding if Transplant is Right for Me

In 2011 I was referred to the transplant team at my hospital to be evaluated for a bilateral lung transplant. I was told I was too healthy (yay) after a year of tests and to come back every six months until my status changed.  Since I was not an urgent case, I took my time getting the testing done.  I was able to relax and get Continue reading Deciding if Transplant is Right for Me

Apply for the Exercise for Life Scholarship Today!

Exercise for Life Scholarship
Application Deadline: June 10, 2016
You must start logging your exercise routine on March 13th to be eligible.

Download the log here.
Doctors and CF centers have made it clear: when it comes to CF, exercise Continue reading Apply for the Exercise for Life Scholarship Today!

CF Wind Sprint 55: Using a Medical Mask

Sheila reached out to Jerry asking what type of mask he wears while traveling or visiting the doctor.

He uses the 3M Particulate Respirator N95 Mask – style number 9210/37021 for protection from germs. These masks can be purchased online and come Continue reading CF Wind Sprint 55: Using a Medical Mask

Switching CF Care Centers

For the first 29 years of my life (or rather the first 23 years of my known-CF life) I saw the same CF doctor.  And I loved him.  Loved is probably an understatement.  I wanted to keep him as my doctor when I moved away from Philadelphia.  He kindly told me no, that I needed to be realistic about my care and how Continue reading Switching CF Care Centers

Gunnar Esiason: Genetic Discrimination

I typically don’t post twice in the same week, but I felt a burning desire to say something about this.

This story comes from the blog “IFL Science” or Continue reading Gunnar Esiason: Genetic Discrimination

Gunnar Esiason: How Failure Can Show Us How to be Successful

I don’t care who you are or where you are in your life, but at some point, I know you have come across failure. There is no way around it, and there is certainly no way to avoid it forever. Continue reading Gunnar Esiason: How Failure Can Show Us How to be Successful