Making it Matter Episode 7 – How to Stay Busy When You’re Sick

I’ve been dealing with a bit of bug for the past week, so Julia and I decided to podcast about being sick, and what we do to keep ourselves occupied when things get tough. Unfortunately the sick days do add up, so I definitely feel like a pro when it comes to killing time, and I’m sure Julia does too. Continue reading Making it Matter Episode 7 – How to Stay Busy When You’re Sick

Deadline for article submissions for CF Roundtable is September 15th, 2016

The CF Roundtable thrives on articles written by our columnists, directors and you! If you would like to share your story or an experience of dealing with life and CF, we would welcome it. Articles can be any length, generally 750 to 1500 words and can be on any topic that appeals to you. Continue reading Deadline for article submissions for CF Roundtable is September 15th, 2016

Making it Matter Episode 6 – Back to School

Summer is coming to a close (sad face, sad face). It’s time to start thinking ahead! Listen to Julia and I share our experiences from all levels of our schooling and give a few tips about we were able to succeed! I think it’s important to make sure that a little boy or girl with CF is heading into an environment ripe with Continue reading Making it Matter Episode 6 – Back to School

Trying to Reduce Inflammation

By Andrea Eisenman

I am not into fads, especially when it comes to food. I feel my life is complicated enough having cystic fibrosis and a bilateral lung transplant. There is a lot of time spent on taking medications, checking my blood sugars for diabetes and Continue reading Trying to Reduce Inflammation

Raising Optimism, Strength, Expectations, & Success (ROSES) Project

We know the current treatment regimen for individuals with CF can be time-consuming and complex. We want to learn how busy individuals are able to fit their treatments into daily routines. What works for you may help us develop effective interventions for others. We are conducting two studies about this: Continue reading Raising Optimism, Strength, Expectations, & Success (ROSES) Project

Making it Matter Episode 5 – How We Stay Motivated

In episode 5 of the Making it Matter podcast series, Julia and I discuss our strategies for staying motivated through the good days and bad. I think it’s important to stress for as much as CF may be similar across the entire patient Continue reading Making it Matter Episode 5 – How We Stay Motivated

Making it Matter Episode 4 – When Should I Transition to Adult CF Care?

In Episode 4 of the Making it Matter podcast series, Julia and I try to answer the age old question, “when should I transfer from pediatric to adult care?” I will say this… it is a good problem to have. Julia and I fall on opposite sides of the debate Continue reading Making it Matter Episode 4 – When Should I Transition to Adult CF Care?

Starting College with CF

By Tabitha Caldwell

My name is Tabitha Caldwell, I am eighteen years old and live in Austin, Texas. This fall, I’ll be moving to Utah to start college at Brigham Young University. I’ll be making many changes and experiencing many things for the first time, just like most ingoing college students. Not living with my parents, buying and making all Continue reading Starting College with CF

When is it time to say HELP?

By Amy Braid

About two months ago I experienced what I thought were just allergies bothering me.  I was stuffy, coughing more, itchy nose, sneezing etc.  Then my sugars went wonky on me.  In the span of an hour I hit 44, had some sugar to get me up and Continue reading When is it time to say HELP?

OWN IT: Bulking Up – A Few Recipes That I Use

I received a bunch of awesome responses to my Vitamix blog, with most asking about what I actually put into the Vitamix.

So, I’d like to share a few recipes with everyone.

Now remember, I am a cystic fibrosis patient with a feeding tube, so here are Continue reading OWN IT: Bulking Up – A Few Recipes That I Use