Home Spirometers: A Useful Tool in Tracking CF Symptoms and Progress

Guest Blog By: Meranda Honaker

Over the last several months my health has continued to decline despite being compliant and diligent with my healthcare routine. In July I developed a fever during a trip to Boston to speak to a biotech company about my journey with cystic fibrosis. I developed a fever and by the end of my visit, I was unable to walk up steps without severe dyspnea. I was so exhausted from feeling sick I would return to my hotel room to lay in the bed for hours to rest. My chest pain and shortness of breath became so severe in the coming days that I could no longer take a deep breath. I checked my SpiroPd home spirometer which displayed a definite decline in my lung function. I immediately contacted my CF clinic to see my CF doctor. Initially, despite feeling bad, I assumed I was feeling poorly and decided not to rush to CF clinic. Sometimes I have a bad day or few bad days health wise and begin to improve on my own. Once I saw my lung function had declined I knew I needed to be seen in CF clinic rather than waiting it out.
Continue reading Home Spirometers: A Useful Tool in Tracking CF Symptoms and Progress

New Drug Application Submitted for Treatment of P. aeruginosa

https://bronchiectasisnewstoday.com/2017/07/28/non-cystic-fibrosis-bronchiectasis-candidate-therpay-nda-submitted-for-linhaliq-for-p-aeruginosa-infection/

New Drug Application Submitted for Linhaliq as Treatment of Pseudomonas Aeruginosa Infection in NCFBE Patients

The pharmaceutical company Aradigm has submitted a new drug application (NDA) to the U.S. Food and Drug Administration (FDA) for Linhaliq Continue reading New Drug Application Submitted for Treatment of P. aeruginosa

Animal model with CF shows promise against infection

http://finance.yahoo.com/news/aeol-20415-protects-lungs-against-130000156.html

AEOL 20415 Protects Lungs Against Infection in Animal Model of Cystic Fibrosis

• TREATMENT WITH AEOL 20415 REDUCED INFECTION, IMPROVED BODY WEIGHT AND REDUCED PRESENCE OF WHITE Continue reading Animal model with CF shows promise against infection

Pitt study links cystic fibrosis lung inflammation to opportunistic bacteria

http://www.bizjournals.com/

An investigation led by the University of Pittsburgh School of Medicine has found a link between a new class of bacterial enzymes and the chronic lung inflammation that plagues patients with cystic fibrosis, a terminal lung Continue reading Pitt study links cystic fibrosis lung inflammation to opportunistic bacteria

Cystic fibrosis: a treatment could nest in the starfish

The oceans are full of molecules capable of treating many diseases. One of them, roscovitine, could be effective against cystic fibrosis, a rare genetic disease that affects nearly 6,500 French. It is currently being evaluated. Continue reading Cystic fibrosis: a treatment could nest in the starfish

Researchers Develop Effective Strategy for Disrupting Bacterial Biofilms, Cause of Many Chronic and Recurrent Diseases

http://www.nationwidechildrens.org/news-room-articles/researchers-develop-effective-strategy-for-disrupting-bacterial-biofilms-cause-of-many-chronic-and-recurrent-diseases?contentid=155111

Biofilms are communities of bacteria that adhere to a surface and are nearly impossible to eradicate when they are pathogenic, or disease-causing. Continue reading Researchers Develop Effective Strategy for Disrupting Bacterial Biofilms, Cause of Many Chronic and Recurrent Diseases

Viruses turbo-charge bacterial evolution in cystic fibrosis infections

http://www.medicalnewstoday.com/releases/311450.php

Scientists in the UK have found new evidence that tiny viruses called bacteriophages turbo-charge the evolution of bacteria that cause lung infections in Cystic Fibrosis patients. Continue reading Viruses turbo-charge bacterial evolution in cystic fibrosis infections