With the school year having just begun, the CFChef program is excited to share the three winning lunchbox creations from the nationwide 2012 CFChef Back-to-School recipe contest. The Fun Taco Boats, Meat Roll-Ups and Spike Milkshake are sure to banish any brown bag boredom at school this year! Continue reading CFChef Winning Back-to-School Recipes
We are pleased to announce that “The Power Of Two” documentary film about life, hope and the miracle of organ donation will be available on DVD starting Sept 25! The DVD not only includes the touching film about living with cystic fibrosis and lung transplantation, but also many special Continue reading “The Power of Two” Documentary is Available on DVD September 25th
Presented by Laura Steuer, M.A. Education, Stanford
Stanford Adult Cystic Fibrosis Advisory Council, Chairperson
When: Tuesday, September 11, 2012 from 6pm-8pm
For: CF patients, family members and caregivers Continue reading CF Discovery Series ™ – 2012–Parenting When You have Cystic Fibrosis!
My wife is a mental health therapist. She talks to people all day long about their problems. She has countless hours of experience dealing with people and their behaviors. One day, after apparently meeting with a client who was having trouble because they were not taking their prescribed Continue reading Compliance–Guest Blog By Mark Levine
We wanted to remind you that there are only two weeks left to submit CF-friendly recipes to the CFChef Winter Holiday recipe contest:
From now until September 14, 2012, we invite you to visit www.Chef4CF.com and enter festive CF-friendly recipes prepared for Thanksgiving, Christmas, Chanukah, and more, for the chance to Continue reading Reminder from CFChef for Winter Holiday Recipe Contest
See Jerry on “The Other Side”… Jerry tells of his experience getting his life-saving bilateral lung transplant.
We are VERY excited to announce the arrival of the Breathing Room book.
The book is a collection of the images and writings from “Through the Looking Glass: Images of Adults with Cystic Fibrosis” and “Caregiver Stories”, as well as biographies of the participants and photographers. You will also find messages from our executive director, Michelle Compton Continue reading The Breathing Room Book is Now Available!
I feel good. That may not seem like such a big deal to most people, but it is to me. For the past two-and-a-half years I have not been feeling very well. First I had pneumonia in both lungs. Then I had a twist in my small intestines. The pneumonia never quite went away and my Continue reading Feeling Good!–Guest Blog by Kathy Russell
Now online How do you talk to people about CF? Go to http://bit.ly/OJSXD5 to watch CF patients, caregivers and experts share their personal stories on accepting CF and how they describe CF to others. Being open about CF may help strengthen your support systems and help you deal with CF’s day-to-day issues. The video features:
· LaCrecia Britton, CF Coordinator, RN and CPNP
· America’s Got Talent finalists, Ali and Christina Christensen, and their parents
· Ronnie Sharpe, CF patient, author of RunSickBoyRun.com and co-founder of CysticLife.org
Cue the cheesy song “Eye of the Tiger” by Survivor from Rocky III:
“Risin’ up, back on the street
Did my time, took my chances
Went the distance, now I’m back on my feet
Just a man and his will to survive Continue reading Eye of the Tiger–Guest Blog by Stephanie Rath