Newest podcast with Bobby Bebber

In his latest podcast, Jerry Cahill talks with Bobby Bebber about how to deal with ALL the obstacles cystic fibrosis can present.

Bobby, 28, was diagnosed with cystic fibrosis at age two. Bobby has had three liver transplants and a kidney transplant, and he also has CF-related diabetes, Continue reading Newest podcast with Bobby Bebber

Chance to win CFChef by submitting your recipes

Submit your favorite cystic fibrosis – friendly recipes for a chance to claim the title of CFChef! As a part of the 2012 program expansion, Abbott launched two new CFChef recipe contests and is calling for “Cookout” and “Back-to-School” themed recipes by June 21, 2012 for a chance to win. Anyone touched by cystic fibrosis (CF) is encouraged to enter. Continue reading Chance to win CFChef by submitting your recipes

CF Wind Sprint 25: Club Cystic Fibrosis on its website

The Boomer Esiason Foundation has posted CF Wind Sprint 25: Club Cystic Fibrosis on its website.

Club CF is a valuable online resource featuring stories about adults around the country who are living, breathing and succeeding with cystic fibrosis.

Despite the popularity of social media, there are few online venues where people with CF actually Continue reading CF Wind Sprint 25: Club Cystic Fibrosis on its website

Check out Jerry Chaill’s Podcast with Rick Lerz

In his latest podcast, Jerry Cahill interviews Rick Lerz about what life has been like after his double-lung transplant.

Forty-five-year-old Rick grew up Queens, N.Y., and was diagnosed with cystic fibrosis at six months. He now is married to his caring wife, Leigh, and is the proud father of their 15-year-old daughter, Marty.

Continue reading Check out Jerry Chaill’s Podcast with Rick Lerz

New CF Profile: “Be Outspoken, Knowledgeable and Involved”

CLUB CF–http://www.clubcysticfibrosis.com/

Marsha Sible, 46, works hard to stay healthy and be her own advocate when it comes to medical care. Marsha and her husband have two sons, and she is writing a book about their experience with international adoption.

Marsha’s Childhood. “When I was diagnosed with cystic fibrosis at one year old, the doctors told my parents that I would live to be 14. Continue reading New CF Profile: “Be Outspoken, Knowledgeable and Involved”

Transitioning from College to the Career World with CF

The Boomer Esiason Foundation has posted CF Wind Sprint 24: Transitioning from College to the Career World with CF on its website. http://esiason.org/thriving-with-cf/wind-sprint-24-transitioning-from-college-to-the-career-world-with-cf.php

This short video is the third in a three-part series examining the major transitioning stages for people with cystic fibrosis. Continue reading Transitioning from College to the Career World with CF

Losing a good friend to the good fight.

Usually, when a friend of mine dies from CF and its complications, I am sad but am not shocked. Nor does it take me long to accept this. Same goes for losing a friend to complications post-lung transplant. But there are exceptions. And they are never easy. Continue reading Losing a good friend to the good fight.

Using Reiki with CF and Lung Transplant

I have always complemented my doctors’ prescribed therapies with alternative or complementary care therapies like acupuncture, cranio-sacral therapy, and now reiki. I had received reiki from Michael, at my acupuncturist’s office. Continue reading Using Reiki with CF and Lung Transplant

Boomer Esiason Academic Scholarship

December 15 Deadline Approaching for BEF Academic Scholarship
The Boomer Esiason Foundation encourages college students with cystic fibrosis to get started on their application for the BEF General Academic Scholarship. The next application deadline for this program is December 15, 2011.

The Boomer Esiason Foundation’s General Academic Scholarships assist CF patients pursuing undergraduate and graduate degrees. Grants are awarded quarterly on the basis of demonstrated need and academic accomplishment. They are made directly to the academic institution to assist in covering the cost of tuition and fees. This scholarship is for one year only.
For more information and application materials, please visit the BEF General Academic Scholarship page on our website.

The Boomer Esiason Foundation awards more than $250,000 in scholarships each year to outstanding students with CF who strive both for therapy compliance and for academic success.
For more information about our scholarship program, including applications and 2012 deadlines, please visit the scholarships page on the BEF website. http://esiason.org

Cold season is here.

I have been home for 4 days with a nasty head cold. Aside from feeling sorry for myself, here is what I have been up to make sure I get over this quickly and without lung involvement—hopefully.

Rest: getting as much sleep at night as possible. Then a nap in the afternoon is helpful, for me. And trying not to get stressed out that I am sick and sitting home on my butt watching TV all day!

Fluids: constantly drinking trying to flush my system out and keeping my nasal passages moist, I think. I have been drinking tea, mostly non-caffeinated rooisbus tea, good for the stomach. Specifically it is called African Rooibus Red tea. Twinnings brand is my favorite with some sweetener. It is also sold loose and many companies sell it. I also brew a ginger tea that I find helpful when I get a cold. I find if taken just when I feel like I might be getting sick, it chases it out of me. Who knows if this is true, but I like the taste and I make it strong. The recipe is below, basically water and ginger root. I drink about 3-4 cups of this a day with honey or splenda and at times lemon. I also made home-made chicken soup but when too ill, canned or store made is just as good. I eat comfort foods but steer clear of dairy during a cold. I don’t want to added mucus it produces in me. When I am not drinking tea, I drink plenty of water. Juice is good by personally, it brings my glucose levels too high. So, I stick with H2O.

Steaming and nasal lavage: I steam for about 10-20 minutes 3-4 times a day with my personal Vicks steamer. This helps loosen mucus, reduce inflammation and helps clear the gunk when I do a nasal lavage. I rinse my nose with luke-warm saline after the steamings 3-4 times a day. When healthy, only twice a day for maintenance. The steamer can be bought at most pharmacies, made by the same company that makes Vicks Vapor Rub.

Ginger tea: You will need an 8-10 quart pot and about 1 lb or more of ginger root. Most supermarkets sell this. To start, fill pot w/cold water, put on medium-high heat. Wash ginger thoroughly. Start to cut it up by cutting big pieces in half and then in half again. The pieces do not need to be small, you just want to open up the root to expose the interior. Plop ginger in pot carefully. Boil this for about 1 1/2-2 hours (or more). I cook my tea until the color of the water is caramel-colored. I do like it to be spicy. You may cook it 2 hours and then have to water it down to your own taste. You can add honey, splenda, agave or no sweetener. Lemon is also nice at times. Important: drain mixture with a sieve. Sip and enjoy hot or warm.

What do you do for a cold? Care to share?