Reminder: You Cannot Fail Scholarship

Scholarship Application Deadline:
April 18, 2013
BEF CF Ambassador, Jerry Cahill, created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, make a difference by sharing that journey with others, and celebrate the stories that make them unique.

As a component of that program, BEF established the Jerry Cahill You Cannot Fail scholarship in 2012 to honor exceptional student-athletes with cystic fibrosis who, like Jerry, don’t let the disease get in their way of living lives filled with purpose, passion, optimism and courage. These energetic young adults also understand that exercise is the key to living, breathing and succeeding with CF, so they have embraced physical activity as part of their everyday routine.

Amount:  $5,000
Deadline: April 18, 2013
Requirements and other information can be found at the Boomer Esiason Foundation website.

www.esiason.org
www.youcannotfail.com
www.facebook.com/youcannotfail

The Boomer Esiason Foundation is excited to announce the release of Jerry Cahill’s Children’s Book

BEF CF Ambassador, Jerry Cahill, created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, make a difference by sharing that journey with others, and celebrate the stories that make them unique. Continue reading The Boomer Esiason Foundation is excited to announce the release of Jerry Cahill’s Children’s Book

Vertex Readies Late-Stage Cystic Fibrosis Drug Studies

Vertex Pharmaceuticals (VRTX) announced Tuesday night the design of two phase III studies for its combination therapy to treat the most common form of cystic fibrosis. The studies will each run for six months, so results could be ready as early as the end of 2013 or during first half of 2014.

If the studies are positive, Vertex intends to file for U.S. approval in 2014. Continue reading Vertex Readies Late-Stage Cystic Fibrosis Drug Studies

Spots Are Almost Sold Out! Save Your Seat Now SoulCycle to Cure CF!

What: Cycle for CF
Where: SoulCycle Tribeca
When: Saturday, March 9, 3:00pm
Join Team Boomer as we participate in a fun and exciting SoulCycle Class to raise funds for cystic fibrosis. Special guest and Foundation founder, Boomer Esiason, will be in attendance. Continue reading Spots Are Almost Sold Out! Save Your Seat Now SoulCycle to Cure CF!

Promising pre-clinical data in Cystic Fibrosis for ProtAffin AG’s PA401 to be presented at ATS, Philadelphia, 17-22 May 2013

Graz, Austria and London, UK- 20th February 2013: ProtAffin AG, a biotechnology company developing a novel class of next-generation biopharmaceuticals for inflammation, respiratory disease and oncology, today announced that a collaboration with a leading European centre for the Continue reading Promising pre-clinical data in Cystic Fibrosis for ProtAffin AG’s PA401 to be presented at ATS, Philadelphia, 17-22 May 2013

Watch Ana and Isa on Katie on February 6th!

February 6th is a big day for the Power of Two!

Ana and Isa will appear on the “Multiple Madness” episode of Katie Couirc’s hit ABC afternoon talk show. Click link below to check local listings for channel and time.

http://www.katiecouric.com/station-finder/?utm_source=Katie+Couric+%282%2F6%2F2013%29&utm_campaign=Katie+Couric&utm_medium=email

CF Wind Sprints Episode 32: Using a Feeding Tube

In the following episode of CF Wind Sprints, Jerry Cahill introduces the question of how to use a feeding tube. Although Jerry has never used a feeding tube, his friend Gunnar Esiason has, and is able to give a short overview of its use.

http://www.youtube.com/watch?feature=player_embedded&v=8ZjAIXIAdSU

New website to unite cystic fibrosis patients and researchers

People with cystic fibrosis (CF) will be able to access the latest research findings about their condition, volunteer for clinical trials and influence the direction of future scientific studies through a new website being launched later this week.

CFUnite.org is the brainchild of academics at The University of Nottingham who wanted to find a way of bringing patients together to discuss scientific and medical breakthroughs without risking Continue reading New website to unite cystic fibrosis patients and researchers

You Cannot Fail Website is Live

What would you do if you knew you could not fail? Find out at: www.youcannotfail.com

Your struggle does not define you. Your reaction to that struggle will.

Whether faced with a life-altering disease, decision, or situation, how you react exposes hidden Continue reading You Cannot Fail Website is Live

Feel it in my bones

Gearing up for getting a lung transplant, my bone density had to be evaluated. Since it was a non-invasive test, I was more than happy to comply. It was similar to an x-ray and I got to pretty much lay on a table. My bone density was a shock to the endocrinologist Continue reading Feel it in my bones