Cystic Fibrosis Wind Sprint 58: Extended Hospital Stays and Leg Workouts

Jerry reviews the various leg stretches and workouts he uses during an extended hospital stay. By working out regularly and keeping his legs nimble and strong, he knows that, as soon as he leaves the hospital, he can get back on his bike and back to training for his next adventure. Always remember – Continue reading Cystic Fibrosis Wind Sprint 58: Extended Hospital Stays and Leg Workouts

Cystic Fibrosis Wind Sprint 56: Extended Hospital Stays and Core Workouts

In response to a Facebook message from Alexandra, Jerry reviews the core exercises he uses to stay in shape during an extended hospital stay. Always remember – no matter what workout you do, use gloves and sanitizer for a clean and safe environment!
https://www.youtube.com/watch?v=e0JtzcUXvbY
Continue reading Cystic Fibrosis Wind Sprint 56: Extended Hospital Stays and Core Workouts

Podcast 172: Exercising While in the Hospital

In this podcast, Jerry Cahill reviews several ways that he stays active in the hospital in order to keep his lungs clear and discusses the importance of holding on to your routine.
https://www.youtube.com/watch?v=QEY7y3-rF40&feature=youtu.be

This video podcast was made possible through an unrestricted education grant from Gilead to the Boomer Esiason Foundation.

The things we do for the hospital

Ironically I had this post planned for the end of January but as I mentioned in my last post I caught the flu and needed to be hospitalized.  So this post got pushed back and I got to try out the things I posted in it.

Though most of us don’t let CF define us, there are times when it does dictate our lives.  Sometimes it can be as big as not advancing in our career because we Continue reading The things we do for the hospital

That is NOT pity worthy IMO

By Amy Braid

I’m currently inpatient getting IV antibiotics. I caught the flu a few weeks ago and as per the course it wreaked havoc on my lungs. But after a week I’m feeling better already and counting down to discharge day.

Continue reading That is NOT pity worthy IMO

Making it Matter Ep. 19

Making it Matter Ep. 19: Psychological Impact of Hospital Stays

Julia and I take a question from a listener on Twitter for this episode of Making it Matter:

@Ruth_Hochberg: I’d be interested to learn about coping & psychosocial effects of long term hospital stays on Making It Matter! Continue reading Making it Matter Ep. 19

Hospital Must-Haves to Pack

By: Amy Braid

As I sit here doing my nightly treatments, coughing my face off, sounding like a freight train coming through a tunnel (I dunno it was all I could think of!), I decided to write up a quick blog post.  I am hoping that the two weeks of oral Continue reading Hospital Must-Haves to Pack

Up For Air is Available for Rent/Purchase

Up For Air, The Inspirational Award-winning Documentary Available for Rent/Purchase

We are excited to announce that the award-winning Up For Air documentary featuring BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill, is now available to rent and purchase on Vimeo. Watch the full movie here:
https://vimeo.com/ondemand/upforair.

About Up For Air
The film, directed and produced by Artem Agafonov, was shot over a period of five years, highlighting the “lead by example” and “you cannot fail” attitude of Jerry Cahill as he overcomes the daily challenges of living with CF. Viewers will understand the importance of Jerry’s role as a coach and mentor to pole-vaulting athletes, as well as the sobering reality of Jerry’s daily medical regimen.

The documentary follows the steady decline of Jerry’s lung function, framing his body as a defective machine and pegging time as his ultimate antagonist. When Jerry’s lung capacity decreases to 19 percent, a double lung transplant becomes imminent.

Up For Air gives viewers a glimpse into Jerry’s journey as he transforms and vaults over the many obstacles of this next chapter of his life.

Learn more about Up For Air here.

My Experiences with Collapsing Lungs

By Ella Balasa

I was recently hospitalized for a pneumothorax, also known as a collapsed lung. This is not my first time at the rodeo, so I thought I would share my experience for those that would like to know more about it. Continue reading My Experiences with Collapsing Lungs

Modern Love Column in NY Times–Worth Reading

My husband and I usually read the Social Qs column on Sundays in the New York Times. Then we glance at the rest of the Styles Section. He saw that the Modern Love column was about a double lung transplant that almost destroyed a Continue reading Modern Love Column in NY Times–Worth Reading