NEW Cystic Fibrosis Step-by-Step Video Series Launches Today!

Cystic Fibrosis Step-by-Step: What is Cystic Fibrosis?

The Cystic Fibrosis Step-by-Step video podcast series was created by the Boomer Esiason Foundation to help CF patients and families develop routines and guidelines to help them succeed and to answer basic questions that arise regularly.
https://www.youtube.com/watch?v=__m7G9KEsL8&feature=youtu.be
Continue reading NEW Cystic Fibrosis Step-by-Step Video Series Launches Today!

Organizing all the CF “stuff”

Like many of our readers, I have an abundance of CF stuff.  Between IV supplies, inhaled medications, tubing for nebulizers, nebulizers for home and travel, neb cups, oral medications and diabetic supplies I feel like I live in a hospital.  And since organizing all of the “junk” we have can be overwhelming I decided to share what I do.  This does not mean that I think my system is great, perfect or Continue reading Organizing all the CF “stuff”

Announcing BreatheCon, a space by and for CF adults

For the first time, over 50 percent of those of us living with CF are over the age of 18. Our community has a wealth of knowledge and a great desire to connect, but little ability to interact face-to-face.
Continue reading Announcing BreatheCon, a space by and for CF adults

Watch Jerry Cahill on CBS with Dr. Max Gomez

Jerry Cahill was featured on CBS Evening News with Dr. Max Gomez in a segment called, CF Survivor. It aired on CBS on June 15th, 2016. It is about Jerry Cahill, who is in a new documentary about his life called, Up For Air. It illustrates his drive to succeed with CF and how he never gave up. Four years post double lung transplant, Jerry is about to turn 60 in a few weeks. He continues to inspire many Continue reading Watch Jerry Cahill on CBS with Dr. Max Gomez

IMPORTANT ANNOUNCEMENTS FOR THE UPCOMING WEEK

CF Roundtable 2016 Annual Survey
We are conducting a survey, and your response would be appreciated. The U.S. Adult CF Association (USACFA), publishers of CF Roundtable, is continually striving to improve and we welcome your input. This should take no more than Continue reading IMPORTANT ANNOUNCEMENTS FOR THE UPCOMING WEEK

Top 10 Cystic Fibrosis Articles of 2015 Highlights from the past year’s work in disease treatments, therapies and some personal stories

http://cysticfibrosisnewstoday.com/2015/12/28/top-10-cystic-fibrosis-news-stories-of-2015/

Originally from Cystic Fibrosis News Today, online

Cystic Fibrosis News Today has covered news of the latest treatments, events, clinical trials, and research updates in cystic fibrosis on a daily basis throughout the past year. As 2015 comes Continue reading Top 10 Cystic Fibrosis Articles of 2015 Highlights from the past year’s work in disease treatments, therapies and some personal stories

Tackling the root cause of cystic fibrosis

Treatments for cystic fibrosis (CF) have added years to the lives of thousands of Americans. But they can be difficult to administer, and most don’t fix the underlying cause. Scientists have now found that a small molecule, when tested Continue reading Tackling the root cause of cystic fibrosis

Ask Gunnar 5

I was overwhelmed with all the emails and notes I received after my last blog post about 15 things you shouldn’t say to someone with CF.

It’s a pretty cool feeling to know that people are actually reading what I am Continue reading Ask Gunnar 5

Ask Gunnar # 4

The first question comes from Shawn, the father of a 14-year-old with CF. “Throughout [my son’s] life we have provided him with information that we felt was appropriate for his age; however, he is gaining more knowledge, a lot which can be hard for a young kid. What advice can you offer and what can be helpful at this age?” Continue reading Ask Gunnar # 4

Newly Released Book, “Just Breathe: Adults Living With Cystic Fibrosis,” Provides Depth & Beauty to the Story of CF

Just Breathe: Adults living with Cystic Fibrosis is a newly released book that captures the human experience of Cystic Fibrosis through a series of simple, yet complex portraits of adults living with the disease. Readers will find themselves transfixed as each page brings a new face, challenging the Continue reading Newly Released Book, “Just Breathe: Adults Living With Cystic Fibrosis,” Provides Depth & Beauty to the Story of CF