Jerry Cahill was featured on CBS Evening News with Dr. Max Gomez in a segment called, CF Survivor. It aired on CBS on June 15th, 2016. It is about Jerry Cahill, who is in a new documentary about his life called, Up For Air. It illustrates his drive to succeed with CF and how he never gave up. Four years post double lung transplant, Jerry is about to turn 60 in a few weeks. He continues to inspire many Continue reading Watch Jerry Cahill on CBS with Dr. Max Gomez
CF Roundtable 2016 Annual Survey
We are conducting a survey, and your response would be appreciated. The U.S. Adult CF Association (USACFA), publishers of CF Roundtable, is continually striving to improve and we welcome your input. This should take no more than Continue reading IMPORTANT ANNOUNCEMENTS FOR THE UPCOMING WEEK
Originally from Cystic Fibrosis News Today, online
Cystic Fibrosis News Today has covered news of the latest treatments, events, clinical trials, and research updates in cystic fibrosis on a daily basis throughout the past year. As 2015 comes Continue reading Top 10 Cystic Fibrosis Articles of 2015 Highlights from the past year’s work in disease treatments, therapies and some personal stories
Treatments for cystic fibrosis (CF) have added years to the lives of thousands of Americans. But they can be difficult to administer, and most don’t fix the underlying cause. Scientists have now found that a small molecule, when tested Continue reading Tackling the root cause of cystic fibrosis
I was overwhelmed with all the emails and notes I received after my last blog post about 15 things you shouldn’t say to someone with CF.
It’s a pretty cool feeling to know that people are actually reading what I am Continue reading Ask Gunnar 5
The first question comes from Shawn, the father of a 14-year-old with CF. “Throughout [my son’s] life we have provided him with information that we felt was appropriate for his age; however, he is gaining more knowledge, a lot which can be hard for a young kid. What advice can you offer and what can be helpful at this age?” Continue reading Ask Gunnar # 4
Just Breathe: Adults living with Cystic Fibrosis is a newly released book that captures the human experience of Cystic Fibrosis through a series of simple, yet complex portraits of adults living with the disease. Readers will find themselves transfixed as each page brings a new face, challenging the Continue reading Newly Released Book, “Just Breathe: Adults Living With Cystic Fibrosis,” Provides Depth & Beauty to the Story of CF
Cystic fibrosis has become the poster child for precision medicine – most new therapies are carefully tailored to a CF patient’s genetic makeup. University of North Carolina spinout Spyryx Biosciences is proposing a one-size-fits-all approach to the disease: It’s developing a peptide-based therapy that, in theory, could be effective among all CF patients. Continue reading UNC spinout looking to one-up Kalydeco with one-size-fits-all cystic fibrosis therapy
The Cystic Fibrosis Foundation will sell royalties it gets from Vertex Pharmaceuticals Inc. (VRTX)for $3.3 billion to Royalty Pharma, taking a profit from charitable investments made to fight the fatal lung disease.
A novel Cystic Fibrosis testing technology that features next-generation DNA sequencing platforms has been launched by Medical Diagnostic Laboratories, L.L.C. Certified by the Clinical Laboratory Improvement Amendments (CLIA) and accredited by the College of American Pathologists (CAP), MDL specializes in complex, state-of-the-art, automated DNA-based molecular analyses. Continue reading MDL Provides New Prenatal Cystic Fibrosis Testing