Guest blog by: Reid D’Amico
Living with CF is hard. As I’ve gotten older, I’ve learned to pivot with many of CF’s new challenges. This has largely been an iterative process of successes and failures with plenty of feedback, patience, and assistance from friends and family. However, I’d like to focus on a few elements of CF that I believe have augmented my professionalism. These are elements that have taken time to develop, and are still being developed, but I believe that CF has provided a solid foundation for this professional growth. Continue reading Three Ways CF Helps Me in My Career
Jerry Cahill, 5 years post transplant, shares the ups and downs of his journey as an organ donor recipient.
This podcast was made possible through an unrestricted educational grant from GENENTECH to the Boomer Esiason Foundation.
Up For Air, The Inspirational Award-winning Documentary Available for Rent/Purchase
We are excited to announce that the award-winning Up For Air documentary featuring BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill, is now available to rent and purchase on Vimeo. Watch the full movie here:
About Up For Air
The film, directed and produced by Artem Agafonov, was shot over a period of five years, highlighting the “lead by example” and “you cannot fail” attitude of Jerry Cahill as he overcomes the daily challenges of living with CF. Viewers will understand the importance of Jerry’s role as a coach and mentor to pole-vaulting athletes, as well as the sobering reality of Jerry’s daily medical regimen.
The documentary follows the steady decline of Jerry’s lung function, framing his body as a defective machine and pegging time as his ultimate antagonist. When Jerry’s lung capacity decreases to 19 percent, a double lung transplant becomes imminent.
Up For Air gives viewers a glimpse into Jerry’s journey as he transforms and vaults over the many obstacles of this next chapter of his life.
Learn more about Up For Air here.
We are proud to support Up For Air, a documentary about BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill.
The film, directed and produced by Artem Agafonov, was shot over a period of Continue reading BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador
By Andrea Eisenman
Almost every summer, since my transplant, I deal with some kind of low-sodium disaster and almost always need to go to an ER to get a saline IV, which, for me, is only temporary fix. I need to get ahead of the curve, so to speak and salt-up! Continue reading Trying to stay hydrated during the heat
In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Continue reading CF Podcast 159: Cystic Fibrosis Medical Support Team
On April 25th, I celebrated my 16-year lung transplant anniversary. Honestly, I had my doubts I would make it past year five. Not because of how I felt, but the statistics and median post-transplant Continue reading Happy Sweet 16 to My Donor Lungs!
Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come Continue reading Celebrating 4 Years Post Transplant with Jerry Cahill
Today we meet 40 year old, Sean Sullivan, who was diagnosed with CF at 16 months after his parents grew concerned about his chronic cough and lack of weight gain. Sean is the oldest of six kids and is the only person in his family who has CF.
http://hwcdn.libsyn.com/p/f/e/6/fe6972d4fc7588c5/sullivan_mixdown.mp3?c_id=9450887&expiration=1437526065&hwt=c58630c8adb5394048f64196507c66ce Continue reading CF Podcast 150: Sean Sullivan, Being Compliant with Cystic Fibrosis