CF Podcast 170: Jerry’s Five Year Transplant Anniversary

Jerry Cahill, 5 years post transplant, shares the ups and downs of his journey as an organ donor recipient.
https://www.youtube.com/watch?v=AcanwNW5A4k&t=8s

This podcast was made possible through an unrestricted educational grant from GENENTECH to the Boomer Esiason Foundation.

Up For Air is Available for Rent/Purchase

Up For Air, The Inspirational Award-winning Documentary Available for Rent/Purchase

We are excited to announce that the award-winning Up For Air documentary featuring BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill, is now available to rent and purchase on Vimeo. Watch the full movie here:
https://vimeo.com/ondemand/upforair.

About Up For Air
The film, directed and produced by Artem Agafonov, was shot over a period of five years, highlighting the “lead by example” and “you cannot fail” attitude of Jerry Cahill as he overcomes the daily challenges of living with CF. Viewers will understand the importance of Jerry’s role as a coach and mentor to pole-vaulting athletes, as well as the sobering reality of Jerry’s daily medical regimen.

The documentary follows the steady decline of Jerry’s lung function, framing his body as a defective machine and pegging time as his ultimate antagonist. When Jerry’s lung capacity decreases to 19 percent, a double lung transplant becomes imminent.

Up For Air gives viewers a glimpse into Jerry’s journey as he transforms and vaults over the many obstacles of this next chapter of his life.

Learn more about Up For Air here.

BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador

We are proud to support Up For Air, a documentary about BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill.
https://www.youtube.com/watch?v=5FhWPmFHcr0

The film, directed and produced by Artem Agafonov, was shot over a period of Continue reading BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador

Trying to stay hydrated during the heat

By Andrea Eisenman

Almost every summer, since my transplant, I deal with some kind of low-sodium disaster and almost always need to go to an ER to get a saline IV, which, for me, is only temporary fix. I need to get ahead of the curve, so to speak and salt-up! Continue reading Trying to stay hydrated during the heat

CF Podcast 159: Cystic Fibrosis Medical Support Team

In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Continue reading CF Podcast 159: Cystic Fibrosis Medical Support Team

Boomer Esiason Foundation Announces Documentary Up For Air to Inspire Patients with Cystic Fibrosis to Become Active in Their Health

http://www.businesswire.com/news/home/20160607005510/en/Boomer-Esiason-Foundation-Announces-Documentary-Air-Inspire

The Boomer Esiason Foundation (BEF) today announced the documentary, Up For Air, which will premiere in a private screening on June 20, 2016 in New York City. The documentary follows Jerry Cahill, a 60-year-old pole-vaulting coach living Continue reading Boomer Esiason Foundation Announces Documentary Up For Air to Inspire Patients with Cystic Fibrosis to Become Active in Their Health

Happy Sweet 16 to My Donor Lungs!

On April 25th, I celebrated my 16-year lung transplant anniversary. Honestly, I had my doubts I would make it past year five. Not because of how I felt, but the statistics and median post-transplant Continue reading Happy Sweet 16 to My Donor Lungs!

Celebrating 4 Years Post Transplant with Jerry Cahill

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come Continue reading Celebrating 4 Years Post Transplant with Jerry Cahill

CF Podcast 150: Sean Sullivan, Being Compliant with Cystic Fibrosis

Today we meet 40 year old, Sean Sullivan, who was diagnosed with CF at 16 months after his parents grew concerned about his chronic cough and lack of weight gain. Sean is the oldest of six kids and is the only person in his family who has CF.
http://hwcdn.libsyn.com/p/f/e/6/fe6972d4fc7588c5/sullivan_mixdown.mp3?c_id=9450887&expiration=1437526065&hwt=c58630c8adb5394048f64196507c66ce Continue reading CF Podcast 150: Sean Sullivan, Being Compliant with Cystic Fibrosis

Remembering self-care while caring for others

This title sounds much too obvious to blog about. But when a loved one is in need, it doesn’t usually matter, we make sacrifices to help them. And sometimes, can forget about our own needs in the process. This can be true for taking care of our children, pets and/or parents.

It is not even the caring for someone else and not doing our own treatments but the stress and worry Continue reading Remembering self-care while caring for others