Managing CF-Related Diabetes on the go

In this Cystic Fibrosis Wind Sprint, Jerry Cahill gives his tips and tricks for managing CFRD post-transplant. He finds that checking his sugars pre and post workout helps him keep his sugars stable. He also keeps water, candy, and sugar pills in his car in case of emergencies.

Continue reading Managing CF-Related Diabetes on the go

Medical Records Are Crucial — By Beth Sufian, JD

In this blog we provide information related to medical records and their importance to a person with CF.

Nothing in this blog post is meant to be legal advice about your specific situation and is only meant as information.  

Medical Records Are Crucial

Detailed and accurate medical records can help with a variety of issues. Medical records are important for those applying for Social Security benefits or undergoing an SSA Continuing Disability Review. Continue reading Medical Records Are Crucial — By Beth Sufian, JD

Bid to extend cystic fibrosis patients’ lifespan

http://www.irishexaminer.com/ireland/bid-to-extend-cystic-fibrosis-patients-lifespan-414380.html

Scientists from the North are hoping to develop new ways of helping cystic fibrosis patients live longer. Continue reading Bid to extend cystic fibrosis patients’ lifespan

Prometic’s PBI-4050 To Target Cystic Fibrosis As Its Next Orphan Indication

http://www.newswire.ca/news-releases/prometics-pbi-4050-to-target-cystic-fibrosis-as-its-next-orphan-indication-561768451.html

• Majority of cystic fibrosis (“CF”) patients develop diabetes and liver steatosis
• PBI-4050 shown to reduce fibrosis in the lungs, pancreas and liver in preclinical models
• PBI-4050 confirmed to reduce glycated hemoglobin in type 2 diabetes Continue reading Prometic’s PBI-4050 To Target Cystic Fibrosis As Its Next Orphan Indication

Pancreas Transplant for Cystic Fibrosis Patients with Exocrine Insufficiency

An analysis of organ transplant records between 1987 and 2014 suggests that cystic fibrosis patients who lose pancreatic function are failing to avail themselves of operations that could replace their damaged organs and restore their ability to digest food and manage blood sugar. Continue reading Pancreas Transplant for Cystic Fibrosis Patients with Exocrine Insufficiency

Cystic fibrosis–related diabetes requires different approach

Cystic fibrosis–related diabetes is a unique disease, and it requires a different mindset on the part of the treating physician.

“The risk of cardiovascular death drives a lot of the recommendations for management of our Continue reading Cystic fibrosis–related diabetes requires different approach