by Mary Bulman; Independent UK
“Woman spends record six days without lungs thanks to ground-breaking procedure”
Yes you’ve read that correctly.
Yes, it reads six days.
A true miracle! Definitely an understatement.
Though it’s been over a year since this procedure was carried out, it’s one that I believe cannot be shared enough. A huge step for medicine and science- but perhaps a larger one for the human condition and the willingness to live and fight.
“I still don’t believe it happened. It seems very surreal.” says patient Melissa Benoit.
And that’s because it is, Ms. Benoit.
After coming down with the flu the last year 2016, Ms. Benoit was taken from her home in Burlington, Canada to the ICU in a nearby hospital located right outside of Toronto, Canada. Doctor’s made the spilt decision to go through with a first time procedure in order to save her life. After becoming resistant to most antibiotics, bacteria began to move throughout her body, eventually causing her to lapse into septic shock. One by one her organs started shutting down, due to the decline of her blood pressure.
“Although it had never been carried out before, doctors decided to remove her lungs entirely.”
“What helped us is the fact that we knew it was a matter of hours before she would die,” said Dr Shaf Keshavjee, one of three surgeons who operated on her. “That gave us the courage to say — if we’re ever going to save this woman, we’re going to do it now.”
To learn more about Ms. Benoit and the new breed of surgery that was carried out please continue onto the article below:
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The Focus Topic for the Winter 2018 issue is “Becoming A Parent With CF”. If you – our adult readers with CF – have thought about becoming a parent, what decisions and considerations did you make? Are you a parent or do you help raise a nephew, niece or another child relative? Whether you already have children or want to start a family, tell us about your journey to parenthood.
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“We’ve kind of realized that if we wait it might not happen,” she said.
Caleigh Haber has been dreaming of her wedding day for as long as she can remember, but she never realized it would come like this.
The 27-year-old, who has cystic fibrosis and is currently in need of her second double lung transplant, is about to marry the love of her life, Bryan Takayama. It’s an exciting celebration with a somber undertone.
Continue reading Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding
By Amy Braid
As I have mentioned before I have two step kids. Neither of which I knew as babies. I was brought in when they were well past their diaper and nap time stages (phew). But having step children and having children of your own are two entirely different things. I love them both and I am so blessed to have them in my life. They have allowed me to be a mom when I thought that would never happen.
But not having babies in this world of social media is difficult. Each day you are bombarded with picture after picture of babies, kids, pregnancy announcements, etc. And no matter how excited you are for the person, you still feel that tug at your heart. You see your friend who is pregnant again announcing it with fun pictures and reveals – happiness and some jealousy. You see the family photo of your parent’s friend and their kids with their spouses and kids – a little bit of envy. You see the friend who struggled for years to get pregnant finally have her baby – pure happiness because you know the desire to have a baby of your own, and only a twinge of jealousy that she got it and you didn’t.
I think back to the days when my parents were expecting my brother and I. Friends didn’t post their news on the web. They didn’t have cute little reveals or parties to announce the pregnancy or the gender. You didn’t see photo after photo of the kids doing everything from the first bath to the first grade throughout your day. It was much easier (or so I think it may have been) to kind of ignore all the baby hoopla. You dealt with it when the baby shower invitation came or the birth announcement. Holiday parties and block parties you could see the kids, or running into them at the mall. Maybe a birthday invitation here and there, but only for the first couple of years since you had no children of your own (I think that is pretty consistent in this era too). Avoidance was much easier.
But on the flip side, the social media bombardment can also be a blessing. You CAN SEE all the stages from the first bath to first grade. You can revel in the happiness of it, even if you can’t experience it with your own children. You get to watch the children grow up and become young adults right before your eyes. You can see all the moments that you would have missed otherwise and will never get with your own children. Instead of only having one or two babies you now have a classroom full. Each friend’s child is like your own. And while it may bring some envy and jealousy to your heart, deep down you know that this is almost as good as having your own child, and it comes with out the stresses of parenting and raising kids…or dirty diapers!
Having CF is difficult. There is no denying that. Some days it is hell, other days it is fairly easy given the circumstances. But with all the bad that has happened, having CF is the best thing that ever happened to me.
Continue reading Having CF is the Best Thing that Ever Happened to Me
In this podcast, Mary Cahill – mother to Jerry Cahill – sits down to discuss what it was like raising a CF child among her other “normal” children. She shares the story of his diagnosis and the subsequent decision that she and Continue reading CF Podcast 157: CF Moms featuring Mary Cahill