In episode 5 of the Making it Matter podcast series, Julia and I discuss our strategies for staying motivated through the good days and bad. I think it’s important to stress for as much as CF may be similar across the entire patient Continue reading Making it Matter Episode 5 – How We Stay Motivated
About Callie Deanda:
• 20 years old with CF, athletic, attending college, and from Tennesse
• Hobbies include soccer (plays on varsity team), hiking, cross-stitching
• Watching Buffy & Vampire Slayer with friends, and Callie is a huge Sporting Continue reading CF Podcast 160: Jump the Fear of CF with Callie Deanda
Fear is a nasty little bugger. It keeps us from doing things we love or makes us do things we don’t want to.
Right now for me it keeps me from doing something I love. My hope is after putting pen to paper (or fingers to keyboard) I will have faced my fear and perhaps I can eradicate it. Or head in that direction.
It is the Cystic Foundation’s pleasure to share with you an overview of the opportunities for parents, families, and CF Adults to participate in the 2016 North American CF Conference (NACFC), October 27-29, 2016.
Continue reading The 2016 North American CF Conference (NACFC), October 27-29
COLLEGE ROOMMATES PART I
This episode of the Own It Audio Podcast Series will feature my college roommates. You will meet David O’Kane, Carmen Gatta, Vince Love and Matt Continue reading OWN IT: Podcast Episode 5, College Roommates Part I
Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk Continue reading 15 Reasons I Never Hide My Cystic Fibrosis––Gunnar Esiason
CFRI’s CF Quality of Life Program
A Living Legacy of Peter & Kathy Judge
Through the Cystic Fibrosis Quality of Life (CFQoL) program, individual therapy is available to children and adults with CF as Continue reading Financial Support: Individual Counseling Services For the CF Community
Five things we need to stop calling ourselves and why.
You know what the labels are: Patient. CFer. Cystic. Fibro/Cyster. Sufferer. It makes me cringe just to write them! I strongly dislike these words, and believe that our community would be better off if they were never said again. I see Continue reading Don’t Call Me That – Language is Power. Guest blog by Chris Kvam, Esq.