CF Podcast 160: Jump the Fear of CF with Callie Deanda

Listen to the podcast here.

About Callie Deanda:
• 20 years old with CF, athletic, attending college, and from Tennesse
• Hobbies include soccer (plays on varsity team), hiking, cross-stitching
• Watching Buffy & Vampire Slayer with friends, and Callie is a huge Sporting Continue reading CF Podcast 160: Jump the Fear of CF with Callie Deanda

OWN IT: Podcast Episode 5, College Roommates Part I

COLLEGE ROOMMATES PART I

This episode of the Own It Audio Podcast Series will feature my college roommates. You will meet David O’Kane, Carmen Gatta, Vince Love and Matt Continue reading OWN IT: Podcast Episode 5, College Roommates Part I

15 Reasons I Never Hide My Cystic Fibrosis––Gunnar Esiason

Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk Continue reading 15 Reasons I Never Hide My Cystic Fibrosis––Gunnar Esiason

Financial Support: Individual Counseling Services For the CF Community

CFRI’s CF Quality of Life Program
A Living Legacy of Peter & Kathy Judge

Through the Cystic Fibrosis Quality of Life (CFQoL) program, individual therapy is available to children and adults with CF as Continue reading Financial Support: Individual Counseling Services For the CF Community

Don’t Call Me That – Language is Power. Guest blog by Chris Kvam, Esq.

Five things we need to stop calling ourselves and why.

You know what the labels are: Patient. CFer. Cystic. Fibro/Cyster. Sufferer. It makes me cringe just to write them! I strongly dislike these words, and believe that our community would be better off if they were never said again. I see Continue reading Don’t Call Me That – Language is Power. Guest blog by Chris Kvam, Esq.