Pushing the envelope promising for patients

http://www.theherald.com.au/story/4762046/pushing-the-envelope-promising-for-patients/

A HUNTER-based fitness study looking at the effects of interval training on children with cystic fibrosis is achieving some “outstanding” results, a local exercise physiologist says. Continue reading Pushing the envelope promising for patients

USACFA Scholarship Opens June 1st 2017-June30th for Fall 2017!

Please share with young adults who would be interested and qualified!

The United States Adult Cystic Fibrosis Association (USACFA) is excited to offer the Lauren Melissa Kelly Scholarship award for the Fall semester 2017. The scholarship will range from $1500 to $2500 and be awarded to adults with cystic fibrosis who are pursuing career certifications, associates, and bachelor’s degrees.

Continue reading USACFA Scholarship Opens June 1st 2017-June30th for Fall 2017!

Please Join Us for a Free Private Screening of Up for Air at CUMC

Please join us for a FREE private film screening of
UP FOR AIR

Tuesday, May 9, 2017
6:00 – 8:00 PM

Reception followed by screening and Q & A with Jerry Cahill and the film’s Continue reading Please Join Us for a Free Private Screening of Up for Air at CUMC

From Sustaining and Surviving – to Living!

By Andrea Eisenman

Seventeen years ago I was just going through the motions of trying to keep pushing towards each day with a schedule of treatments, eating, napping, lung bleeds and more treatments. Then starting all over again the following day with Continue reading From Sustaining and Surviving – to Living!

Up For Air is Available for Rent/Purchase

Up For Air, The Inspirational Award-winning Documentary Available for Rent/Purchase

We are excited to announce that the award-winning Up For Air documentary featuring BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill, is now available to rent and purchase on Vimeo. Watch the full movie here:
https://vimeo.com/ondemand/upforair.

About Up For Air
The film, directed and produced by Artem Agafonov, was shot over a period of five years, highlighting the “lead by example” and “you cannot fail” attitude of Jerry Cahill as he overcomes the daily challenges of living with CF. Viewers will understand the importance of Jerry’s role as a coach and mentor to pole-vaulting athletes, as well as the sobering reality of Jerry’s daily medical regimen.

The documentary follows the steady decline of Jerry’s lung function, framing his body as a defective machine and pegging time as his ultimate antagonist. When Jerry’s lung capacity decreases to 19 percent, a double lung transplant becomes imminent.

Up For Air gives viewers a glimpse into Jerry’s journey as he transforms and vaults over the many obstacles of this next chapter of his life.

Learn more about Up For Air here.

Making it Matter Ep. 16

Making it Matter Ep. 16 – Football and Cystic Fibrosis

Making it Matter this week is Matt Mitchell, a freshman in college with cystic fibrosis, who joins the podcast today to talk about his career as a football player. Matt was a stand out player in high school at Joy Christian Continue reading Making it Matter Ep. 16

Gastroparesis and Cystic Fibrosis – By Meranda Sue Honaker

By Meranda Sue Honaker

Gastroparesis (delayed gastric emptying) is a common complication for many with CF; however, the condition is exceptionally hard to treat due to lack of promotility agents in the United States. In my early 20’s I began to experience Continue reading Gastroparesis and Cystic Fibrosis – By Meranda Sue Honaker

Making it Matter Podcast – CF Nutrition

Making it Matter Podcast Ep. 10 – CF Nutrition

Nutrition is something I love to talk about (well…. ever since I got my feeding tube placed in 2011). It is a vital part of CF care, something that Julia and I approach differently. While my pancreas doesn’t seem to work, Julia knows she is Continue reading Making it Matter Podcast – CF Nutrition

Jerry Cahill, Boomer Esiason Foundation Ambassador, Celebrates 60th Birthday and Demonstrates that People with Cystic Fibrosis Can Live a Normal Life with Exercise and Medical Compliance

As part of his 60th year, Jerry has Activated a “Living List,” and will Complete 60 Events this Year — This is 60:60

New York, June 27, 2016 – The Boomer Esiason Foundation (BEF) today celebrates the 60th birthday of Jerry Cahill, a BEF cystic fibrosis (CF) Ambassador and double lung transplant survivor, who proves that age is truly just a number and that success is possible with a strong commitment to your health. Within the last Continue reading Jerry Cahill, Boomer Esiason Foundation Ambassador, Celebrates 60th Birthday and Demonstrates that People with Cystic Fibrosis Can Live a Normal Life with Exercise and Medical Compliance

BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador

We are proud to support Up For Air, a documentary about BEF ambassador and 60-year-old pole-vaulting coach living with CF, Jerry Cahill.
https://www.youtube.com/watch?v=5FhWPmFHcr0

The film, directed and produced by Artem Agafonov, was shot over a period of Continue reading BEF Presents Inspirational Documentary, Up For Air, About 60-year-old CF Ambassador