Guest Blog by Mark A. Levine: CF: Teaching What Text Books Don’t

I always wanted to be a teacher. In some respects, I already am. As an engineering manager for Chrysler, I teach all the time. Outside my full-time job, I have my own ACT math and science tutoring business. I also used to help my kids with their homework before they became smarter than Continue reading Guest Blog by Mark A. Levine: CF: Teaching What Text Books Don’t

The Boomer Esiason Foundation is excited to announce the release of Jerry Cahill’s Children’s Book

BEF CF Ambassador, Jerry Cahill, created the You Cannot Fail program to challenge people to discover their own heroism, embrace the ups and downs of their life’s journey, make a difference by sharing that journey with others, and celebrate the stories that make them unique. Continue reading The Boomer Esiason Foundation is excited to announce the release of Jerry Cahill’s Children’s Book

New website to unite cystic fibrosis patients and researchers

People with cystic fibrosis (CF) will be able to access the latest research findings about their condition, volunteer for clinical trials and influence the direction of future scientific studies through a new website being launched later this week.

CFUnite.org is the brainchild of academics at The University of Nottingham who wanted to find a way of bringing patients together to discuss scientific and medical breakthroughs without risking Continue reading New website to unite cystic fibrosis patients and researchers

Nominations for USACFA Awards…

Here is your opportunity to make nominations for the two awards given by USACFA. We feel that you may know of someone who deserves one of these awards. Please read the requirements carefully.

Read about each award below and then e-mail an explanation of what your nominee did and how that exemplifies the spirit of the award. Continue reading Nominations for USACFA Awards…

Richie’s Spirit Foundation Seeks New Members for Executive Board

Richie’s Spirit Foundation’s mission is to promote organ donation to people of all ages and inspire others to live life with a positive spirit. The Board of Directors ensures the foundation keeps in line with its mission, programming, grants, and helps to further its growth, both civically and fiscally. Continue reading Richie’s Spirit Foundation Seeks New Members for Executive Board

The Breathing Room Book is Now Available!

We are VERY excited to announce the arrival of the Breathing Room book.
The book is a collection of the images and writings from “Through the Looking Glass: Images of Adults with Cystic Fibrosis” and “Caregiver Stories”, as well as biographies of the participants and photographers.  You will also find messages from our executive director, Michelle Compton Continue reading The Breathing Room Book is Now Available!

Video Short #5 – CF: Accepting and Living Your Life with CF

Now online How do you talk to people about CF? Go to http://bit.ly/OJSXD5 to watch CF patients, caregivers and experts share their personal stories on accepting CF and how they describe CF to others. Being open about CF may help strengthen your support systems and help you deal with CF’s day-to-day issues. The video features:
·         LaCrecia Britton, CF Coordinator, RN and CPNP
·         America’s Got Talent finalists, Ali and Christina Christensen, and their parents
·         Ronnie Sharpe, CF patient, author of RunSickBoyRun.com and co-founder of CysticLife.org