Introduction: Miracle Flights: free medically-related air travel for ill patients, including CF

Miracle Flights recently reached out to tell us about their wonderful organization and explain the details of their service, which we have compiled into a blog article to share on our website with our CF community. Continue reading Introduction: Miracle Flights: free medically-related air travel for ill patients, including CF

Making it Matter Ep. 14

Making it Matter Ep. 14 – Advocacy and Other Things

After our week off, Julia and I come back with lots to talk about. Right after her NYC marathon effort, Julia shipped off to Europe to tour a children’s CF center in the Netherlands. She talks about how much different care is than Continue reading Making it Matter Ep. 14

Win a Trip to New York City by entering the #MyFitCFLife Giveaway

#MyFitCFLife

https://www.youtube.com/watch?v=zMooIrNk4Ag
Staying active is perhaps the most effective therapy for treating cystic fibrosis. This isn’t rocket science. As Elle Woods once said in Legally Blonde, “Exercise gives you endorphins. Endorphins make you happy.” Continue reading Win a Trip to New York City by entering the #MyFitCFLife Giveaway

The Path Forward in 2016—Guest Blog by Beth Sufian

At the beginning of a new year it is customary for people to make New Year’s resolutions.  There are many commercials for weight loss programs for those who have resolved to lose weight.  Most people with CF need to gain or maintain weight so Continue reading The Path Forward in 2016—Guest Blog by Beth Sufian

Tips for CF Vacation by Gunnar Esiason

After a seemingly endless winter here in New York, a few of my friends and I decided it was time to get away. Check out my buddy Dave in the picture above! We buried him (when I say we, I mean my other friend Joe did while I sat there reading a killer book because I have more

To conitunue reading go to link: http://gunnaresiason.com/

Travel: Preparing for Departure, Part I – Guest Blog by Jeanie Hanley

I rely on a travel list of items that are needed. My husband can pack in literally 5-10 minutes – it’s sickening. I take at least 3 hours if I am fully devoted to the task of packing or longer if not. Aside from the requisite clothing, entertainment distractions (ipad, ebook, etc) and toiletries, what usurps Continue reading Travel: Preparing for Departure, Part I – Guest Blog by Jeanie Hanley